Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Being Celiac/or gluten-free Effect Your Taste?


silk

Recommended Posts

silk Contributor

Odd question I'm sure...although since finding this board, I have discovered that there is really no question too odd for this disease. I have noticed since going gluten-free 3 months ago that things taste different to me.

For instance, I have always eaten and loved natural unsweetened applesauce. Now when I eat it, no matter what brand, it has almost a chemical aftertaste to me. Also, last evening I made a gluten-free chicken pot pie with ricemilk in the gravy and tapioca and white rice flour in the pastry dough and although it looked yummy and my husband and daughter, who are straight...um I think I mean they can eat toxic glutened stuff, loved it. Said it was delicious and that they wanted me to make it again. It tasted okay to me too except that it had the chemical taste as well. I also seem to be more sensitive to salty and sweet. There have been other things that taste different too, right on the tip of my tongue... :P just cant think of them right now. Also, while I have always liked tuna once in a while...now I crave it. Favorite lunch: Can of tuna, crunched up mission corn chips, chopped up celery and carrot and a little cider vinegar. Grosses most people out to even watch me eat it but it tastes so good to me right now. Used to love a good steak. Not loving it so much anymore. Tastes different and also seems to bother my stomach more than it used to. Maybe that is because my stomach used to hurt all of the time from the gluten and I never attributed the pain to other foods as well but beef and pork...ack..just seem harder to digest since going gluten free.

Has anyone else experienced this or can I add a new wrinkle to the fabric of my life? (Geez. I need a big iron!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikky Contributor

dont worry your not the only one, ive come across a lot of gluten free food that has a strange after taste, i think its something to do with the alternatives they use, i have also been noticing salt more.

normal food that is naturally gluten-free tastes the same to me though, maybe your just noticing how things taste more now that you feel well enough to taste your food and enjoy it rather than just chewing and swallowing?

and its natural to have a bigger appetite now because your body is making up for a long period of not being able to get any nutrients or fat from your food

CDFAMILY Rookie

Silk,

You may want to get your vitamin and mineral levels checked. When my daughter and I were low on zinc everything tastes weird and not the same.

Open Original Shared Link

Zinc: What is it?

Zinc is an essential mineral that is found in almost every cell. It stimulates the activity of approximately 100 enzymes, which are substances that promote biochemical reactions in your body (1,2). Zinc supports a healthy immune system (3,4), is needed for wound healing (5), helps maintain your sense of taste and smell (6), and is needed for DNA synthesis (2). Zinc also supports normal growth and development during pregnancy, childhood, and adolescence (7, 8).

Are you taking a good multivitamin?

There is a zinc copper ratio you need so it is best to get levels checked before taking them.

kenlove Rising Star

I found myself more sensitive to sweet and less to salt after almost 2 years. I never used added salt before going gluten-free.

Have always felt processed things taste like chemicals. I also cant stand to eat anything that touched aluminum foil.

Your favorite lunch sounds great to me!

Odd question I'm sure...although since finding this board, I have discovered that there is really no question too odd for this disease. I have noticed since going gluten-free 3 months ago that things taste different to me.

For instance, I have always eaten and loved natural unsweetened applesauce. Now when I eat it, no matter what brand, it has almost a chemical aftertaste to me. Also, last evening I made a gluten-free chicken pot pie with ricemilk in the gravy and tapioca and white rice flour in the pastry dough and although it looked yummy and my husband and daughter, who are straight...um I think I mean they can eat toxic glutened stuff, loved it. Said it was delicious and that they wanted me to make it again. It tasted okay to me too except that it had the chemical taste as well. I also seem to be more sensitive to salty and sweet. There have been other things that taste different too, right on the tip of my tongue... :P just cant think of them right now. Also, while I have always liked tuna once in a while...now I crave it. Favorite lunch: Can of tuna, crunched up mission corn chips, chopped up celery and carrot and a little cider vinegar. Grosses most people out to even watch me eat it but it tastes so good to me right now. Used to love a good steak. Not loving it so much anymore. Tastes different and also seems to bother my stomach more than it used to. Maybe that is because my stomach used to hurt all of the time from the gluten and I never attributed the pain to other foods as well but beef and pork...ack..just seem harder to digest since going gluten free.

Has anyone else experienced this or can I add a new wrinkle to the fabric of my life? (Geez. I need a big iron!)

silk Contributor
I found myself more sensitive to sweet and less to salt after almost 2 years. I never used added salt before going gluten-free.

Have always felt processed things taste like chemicals. I also cant stand to eat anything that touched aluminum foil.

Your favorite lunch sounds great to me!

Thanks for the replies. Glad to know I'm not the only odd duck on the block. I had been taking Magnesium with Zinc and a good multivitamin but went through such a bad spell with my stomach a couple of weeks ago that I quit taking them and anything else but my necessary meds to see if things would calm down. They did so I will have to try again.

I also don't like things wrapped in foil or anything like pop or softdrinks out of a metal can. Had to be in the glass. Can't do milk out of the little paper cartons either. Used to gag me when I was a kid in school.

kenlove Rising Star

I dont think I had a coke since I was 10 and thats back when they cost 7 cents!

Never liked carbonation or the taste of anything from a metal can either.

You raise a good point though. I wonder if the vitamins can affect our taste perception.

I stopped all meds when I was diagnosed and have been gradually adding vitamins that I used to take when I know for sure they are gluten-free.

take care

Thanks for the replies. Glad to know I'm not the only odd duck on the block. I had been taking Magnesium with Zinc and a good multivitamin but went through such a bad spell with my stomach a couple of weeks ago that I quit taking them and anything else but my necessary meds to see if things would calm down. They did so I will have to try again.

I also don't like things wrapped in foil or anything like pop or softdrinks out of a metal can. Had to be in the glass. Can't do milk out of the little paper cartons either. Used to gag me when I was a kid in school.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.