Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching Not From Dh Or Psoriasis


mushroom

Recommended Posts

mushroom Proficient

Please help; this itching is getting more than I can bear.

I do have psoriasis (4 years), so know what that does. I do not have, as far as I can ascertain, from the descriptions and pictures, DH. I have no blisters or lesions, nothing that looks like chickenpox which the pictures show. This is a blanket red skin rash which is inflamed and seriously itches. It is worse in bed at night especially when I get overheated (it is summer here), almost like a heat rash).But I also itch in areas that have no redness, and I also have hives develop and disappear at random on various parts of my torso. To the best of my knowledge I have eliminated all gluten from my house and life--pantry, bathroom, cosmetics and cleaners. I have only eaten gluten out once in the last month and there was a little CC but not much. My major gluten symptoms have gone away, only to be replaced by this intolerable itching which is keeping me awake more than the gluten ever used to.

I have been advised by my ND to eat fish (I don't like farmed salmon so have been eating lots of canned tuna and sardines (almost every day), and am wondering if I am getting a metal toxicity reaction -- mostly New Zealand tuna and sardines. Any advice or help would be greatly appreciated. In the meantime these items are off the menu!!

Neroli


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

mushroom Proficient
Have you looked into the possibility of a candida infection? I'd try caprylic acid capsules, and at the same time avoid all sugars, yeasts, vinegars, and fruit.

What was the reason that your doctor suggested fish? Is it was for the omega-3s, you could have flax seeds, walnuts, and chia seeds. This might actually supply more O-3s, at the same time as avoiding those heavy metals.

HTH

Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

  • 1 month later...
mushroom Proficient

Hi all:

Just a quick update on the red itchy rash that was driving me nuts. I decided to do an elimination diet of sorts--soy, dairy (the rest like cheese and yogurt) and corn. I was really careful about the soy part because I had been diagnosed as sensitive to it years before with the skin test, but had never actually been bothered by it (or eaten much of it). I would avoid it if there were a choice but a little bit in a salad dressing, say, I would not worry too much about.

So when I went gluten free I could not give up my cookies so purchased gluten free cookies. Ate some chocolate, occasionally bought gluten free venison sausages, etc. Well, when I really started reading the labels on these products I had substituted in I discovered that when they took out the gluten they added soy!! Lots of it. In everything! So it turns out that the rash and itching were caused by the soy. When the soy went away so did the rash and itching. Now I can't even have chocolate anymore except the Lindt extra dark. I am doing that hard. :angry: Also had to give up even my "fake" ice cream. Seems like they put soya lecithin in almost everything.

I finally have some gluten free cookbooks and a pantry stocked with most things. Have been unable to find any sorghum (juar, jowar) flour down here yet, no Teff, etc.,so a lot of the recipes in Carole's and Bette's cookbooks are not on the menu yet. I think I will be back in Nevada in June so will have to carry an extra empty bag for baking supplies. Will also have to find a new airline to fly because Air New Zealand are limiting us to one 30 kg piece of luggage. Now who except superman can manage that? Certainly not an "older-looking" lady (as one of my docs too kindly put in a report) with rheumatoid arthritis! May have to fly to Sydney and try to pick up something from there as only ANZ and Qantas fly out of Auckland any more. And I hate Qantas as much as the koala bear does.

End of rant.

Cheers to all. Am feeling a bit happier, and am going to see a new rheumatologist next week. I think I will have to find a med. I am not intolerant of because being gluten free is not controlling the arthritis and it is really flaring up again. Pity because my hair is just growing back in at the front.

Neroli

BRUMI1968 Collaborator

Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

  • 2 weeks later...
Graceanna Newbie
Look for coconut bliss ice cream. And check out Enjoy Life brand for soy-free stuff. Coconut blissssssssssssss.

I have psoriasis, psoriatic arthritis and coeliac. I recently cut out dairy and took soya milk instead. No problems. I read about soya lecithin as a supplement good for psoriasis as source of omega 3. Took this supplement and my feet are burning and toes inflamed. Could I be soy intollerant? Maybe I should be on rice milk. Interested in your thoughts. I never thought that soy could be a problem.

BRUMI1968 Collaborator

Soy is one of the highest allergen foods (soy, wheat, corn, dairy, eggs). I'm unaware if soy lecithin is a problem for most folks with soy problems.

I tested as positive to antibody response to soy in a stool analysis (meaning, my body creates antibodies to soy - acting as though it is the enemy) though I've never attributed any symptoms specifically to it. I don't touch it. There is also a decent bit of evidence that soy has other problems associated with it (blocks absorption of minerals, is estrogenic, etc.)

So I'm not sure what to say, other than that soy is a high allergen food, so it is certainly possible that the supplement bugged your system.

I wish I could be more help with the itching.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator
Thank you, RiceGuy; I had not considered candida. Will have to look into that.

I was used to getting my O-3's from flaxseed but the ND felt I would be better off with the fish. I find we all have our preferences/prejudices when it comes to O-3 sources. I did not know about chia seeds (like you grow on the pottery ornaments??) Sure hope I don't sprout like that, I've got enough skin problems already!!

You can get the omegas from fish oil. Carlson's is a very reputable brand that has good practices to be sure you're not getting the heavy metals. It doen't taste bad either. Some have a slight lemon flavor. I gave it to my son and figured I'd better try it too to make sure I wasn't torturing him. He never complained.

RiceGuy Collaborator

Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

Guest Talia
Another possible cause of skin problems is foods which are high in iodine, such as sea vegetables. So it is probably a good idea to avoid kelp and other things derived from seaweed. Iodine is known to have a tendency to make DH worse, because the immune system uses iodine to help heal the skin.

I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

dally099 Contributor
I am also struggling with the skin problemsand celeiac I have had psoriasis, since birth,

scalp, bottom, . it moves around on my scalp. I itch so much,. I know it is food related.. i just have to be dilegent and write down everything I put in my mouth. reading this site is so amazing, the things I think are ok, end up beign disasters... like dream rice milk(had gluten) , which i didn't know unitl I read this.

I am tryint to stick with iodine free salt, I think I will just make up a little spice bottle to carry with me when we eat out.

Also has anyone had reactions to apples? Pectin maybe is an issue, I started eating an apple last night,, and alomost as soon as i started eating it , i was inflamed.

Good luck to you

talia

hi, i can totally sympathise, last year i had this on my feet and my hands, i wanted to take the cheese grater to them. i found out it was the soy in my diet, as well i now take a hantihystamine daily, and have special creams, get in to see an allergist again, as well as a skin docter, its probably something you are in injesting, take care!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,168
    • Most Online (within 30 mins)
      7,748

    watsonjennifer12
    Newest Member
    watsonjennifer12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...