Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lasted A Week

misulli

By misulli
in Coping with Celiac Disease

Recommended Posts

silk Contributor
silk
Posted
Grocery list.....something I started a long time ago (because I blamed the brain fog on just being too busy and couldn't remember anything for more than 2 minutes) .....is a perpetual list that stays on the counter by the fridge. Anytime I am any where near the end of anything it goes on the list. If I'm looking at recipes, what I need goes on the list. If I shop and don't pick up something on the list, it gets written on the new list.

I keep all of my gluten-free baking supplies in clear plastic tubs, and put the label on the edge where I can see what it is without taking everything out of the cupboard. Any "mixes" that I make before hand have their own tub marked with marker. Organization helps me out a lot. I started a recipe box for gluten-free stuff that I try (seperate from the "real food recipe box". I don't add any recipes to the box until I have made it and dubbed it worthy of a place there. That way the box doesn't get filled with recipes that I'll never use again.

Hope some of this helps. I'm too scatter brained without these helpful tools. Hoping the fog will lift sometime soon. I USED to be a genius! :lol:

I do the list too. It's really helpful. The only problem is that I need to make a list to remind me to take my list when I go to the store. :huh: If I go without a list and only need one thing, I come out with every thing but what I went in for. It's like AADD. Once I walk through those doors, there is so much to look at and see that I can't focus on the reason that I'm there. I usually remember what I originally wanted two blocks from home. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wonka Apprentice
Wonka
Posted

If you are interested and want to p.m. me, I would be happy to get the recipe to you.

Not MNBeth but I'd love the recipe.

RiceGuy Collaborator
RiceGuy
Posted
Organization helps me out a lot. I started a recipe box for gluten-free stuff that I try (seperate from the "real food recipe box".

Interesting. I thought the gluten-free stuff was real food! Everything else is poison, no matter how tasty it might be.

And yes, gluten-free bread is better homemade. I'm still experimenting, but since my fav was always biscuits, not sandwiches (except for the PB&J), it seems a bit easier.

For those interested in the site about marshmallow peeps, here it is: Open Original Shared Link. Just make sure you're not eating when you go there. I don't relish the idea of making someone choke from laughter.

ravenwoodglass Mentor
ravenwoodglass
Posted
For those interested in the site about marshmallow peeps, here it is: Open Original Shared Link. Just make sure you're not eating when you go there. I don't relish the idea of making someone choke from laughter.

I haven't laughed so hard in a long time. Thanks for posting the link

silk Contributor
silk
Posted
If you are interested and want to p.m. me, I would be happy to get the recipe to you.

Not MNBeth but I'd love the recipe.

I'm sorry Wonka, I'm not sure who your question was intended for. I offered to provide a recipe for someone earlier in this thread but I'm not sure if someone else made the same offer??? If I am the person you were requesting the recipe from, I would be happy to help you. If not, I'm not sure that it's clear who you are talking to. :) Also, if it is me, I have talked about recipes for a Farmhouse White Loaf bread and a recipe for homemade ravioli. Which were you interested in?

Morrisun Newbie
Morrisun
Posted
Hey all,

So the bread drama. I am also a bread adict and this diet is killing me. I can't find one I like either. The closest I have come is Pamela's Bread mix. I tried Kinnkinnick and HATE it. I feel like a freek saying taht because everyone else loves it. The texture, fact that it doesn't turn color when you toast it, ahh just everythign was all wrong for me. The other thing I am struggling with is pizza dough. I have tried gluten free pantry and Pamela's. I hated both. Both have either no texture or are a pain to make. Grr the frustration, I dont think I will ever feel happy again, like I did when I ate regular bread!

Have you tried the Chebe pizza crust mix?? That's my favorite so far, although I haven't tried a ton of different kinds.

Wonka Apprentice
Wonka
Posted
I'm sorry Wonka, I'm not sure who your question was intended for. I offered to provide a recipe for someone earlier in this thread but I'm not sure if someone else made the same offer??? If I am the person you were requesting the recipe from, I would be happy to help you. If not, I'm not sure that it's clear who you are talking to. :) Also, if it is me, I have talked about recipes for a Farmhouse White Loaf bread and a recipe for homemade ravioli. Which were you interested in?

It was your recipe for Farmhouse White Loaf Bread that I was interested in but I'd happily accept a ravioli recipe as well. I love to cook and love to receive already tried and loved recipes. I do find this forum a bit harder to follow regarding who posts are directed at than the food forum I also hand out in (fine cooking). Each post is numbered and the responses tell you which post # the response is for. Very user friendly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


silk Contributor
silk
Posted
It was your recipe for Farmhouse White Loaf Bread that I was interested in but I'd happily accept a ravioli recipe as well. I love to cook and love to receive already tried and loved recipes. I do find this forum a bit harder to follow regarding who posts are directed at than the food forum I also hand out in (fine cooking). Each post is numbered and the responses tell you which post # the response is for. Very user friendly.

I agree with you Wonka. Because people use 'interesting' names for their posts, I usually have to check the spelling at least once before I reply.

I will be happy to send you the recipes. As I explained to someone else, the bread recipe is from a cookbook that I had checked out from the library and I had to return it. And because I have ordered it for myself, did not think to make a photo-copy of the recipe. The book should be here by Monday so I will be happy to send both recipes to you then.

Wonka Apprentice
Wonka
Posted
I agree with you Wonka. Because people use 'interesting' names for their posts, I usually have to check the spelling at least once before I reply.

I will be happy to send you the recipes. As I explained to someone else, the bread recipe is from a cookbook that I had checked out from the library and I had to return it. And because I have ordered it for myself, did not think to make a photo-copy of the recipe. The book should be here by Monday so I will be happy to send both recipes to you then.

Thankyou very much. I hope you enjoy your new purchase (I love new cookbooks).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    AndiSchweb
    Newest Member
    AndiSchweb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.