Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Has gluten-free Worked For Adhd?


FlourShopGirl

Recommended Posts

FlourShopGirl Explorer

My son is 12 and has ADHD. I am gluten-free right now but it's really hard keeping him gluten-free. He wants to eat the lunches at school (which aren't actually that bad health-wise) but obviously not gluten-free. I've heard Gluten-free Casein-free would be a great option to meds but does anyone have personal experiences with this>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
My son is 12 and has ADHD. I am gluten-free right now but it's really hard keeping him gluten-free. He wants to eat the lunches at school (which aren't actually that bad health-wise) but obviously not gluten-free. I've heard Gluten-free Casein-free would be a great option to meds but does anyone have personal experiences with this>

My dd was too young for an ADHD diagnosis when we first figured out her gluten/casein issues. And for that, I feel extremely lucky because even at the age of 15 months, my dd's hyperactivity was so extreme that I thought my dh and I wouldn't be able to keep it together for much longer. She NEVER sat down, not even to eat. And she barely slept. It was a running joke in our house that she was always advanced on her milestones because she never slept so had more time to learn and be ahead!

We were floored the first day of the diet. Dd sat down, she was able to concentrate and we read through 5 books (before she couldn't sit through one). Two days on diet and her nap times extended and she slept better and longer at night. A week in, appetite increased and she began gaining much needed weight. And the evening tantrums....well they disappeared entirely.

Dd is still an extremely active child. She's full of curiosity and has an eagerness about her. You can just tell she's looking forward to getting into something. lol! But it's not the same as it was before the diet. And I can tell you this, we've been doing this diet for the past 3+ years. The most minor of slip-ups lands us back to the out of control hyperactive behavior, with the incessant talking, squirming, inability to concentrate...ugh! It is a nightmare when she is cross-contaminated! And I have no doubt that she'd be eligible for a diagnosis if the person assessing her were to see her in this state.

To answer your question a bit more directly, you may want to get The ADHD & Autism Cookbook by Pamela J. Compart, MD and Dana Laake, RDH, MS, LDN. According to their stats, 2/3 of the children with ADHD and autism are helped by the diet. It gives wonderful information on why it works, how it works and addresses other potential food allergens as well as recipes. I found this book to be extremely helpful in more places than the kitchen.

As for your ds, he's at a tricky age for adhering fully to the diet. Your best bet for success is to find a way to have him take ownership in it. He needs to be "on board" for giving the diet a real try and that will involve having a long talk with him about the diet, discussing the sacrifices that will have to be made and how you will work with him to try and make it work. Ultimately, he will bear most of the responsibility. But with you in his corner, you may be surprised at how it all turns out.

I wish you the best in trying this out. And I truly hope it works out.

Cinnamon Apprentice

I have two ADHD kids and the diet definitely helped one, but did nothing for the other, though she still has to be gluten free because of her stomach pains and rashes. With my son, we had the dramatic improvement that Shayesmom above had, though he isn't 100%. It didn't make the ADHD go away, but it significantly improved. Dairy was also making him hyper, so I had to take him off that for a while, too, though lately I've been cautiously letting him have some real cheese on things and so far it's been okay. Food colorings were hyping him up, too.

I think it's definitely a good idea for anyone with ADHD to give the diet a try. It's not an easy diet to do for kids this age (my son is 11 and daughter 12) but hopefully they will see the benefit and want to feel better. My son fights me on it sometimes, but I keep on saying, "remember that horrible brain fog? Remember how you peed the bed every night for 11 years? Remember how you couldn't sleep at night? Do you want to go back to that? And he'll sigh and say, "well....no....". I try to keep some gluten free treats around for moments like that. But he does see the benefits. He'll come home from school and say, "So-and-So at school must really have a gluten problem. You won't believe what he did!"

RainyZ Rookie

I know this thread is a few days old and have debated commenting.

My DD is 15 months old and has issues with gluten. The house is now gluten free and she has greatly improved. Down to 2 diapers a day that are formed versus 6 or 7 undigested food mush. I decided that my son and husband can eat gluten products when they are away from the house, but at home we will all be gluten free.

It is not about her that I am writing though. Because I am still breastfeeding, I am also gluten free. I was diagnosed many years ago with ADHD w/hyperactivity and currently not medicating because of the nursing. My DD's pediatrician has ok'd me taking Adderall on a strict schedule with nursing, but I have yet to do it. Too risky for me. The diet has helped many of my symptoms - most notably "brain fog" which seems to be a symptom of gluten intolerance. I am also able to sit and read to my children without jumping up every few minutes to do or get something. :D

HTH

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,815
    • Most Online (within 30 mins)
      7,748

    JaneD
    Newest Member
    JaneD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.