Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doing My Part


Mom23boys

Recommended Posts

Mom23boys Contributor

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Not sure how I can help although in things you send her you can quote some of the things we are doing in Hawaii with chefs and restaurant guidelines and classes for culinary students. Chefs tell me 10% of the guests not have some food allergy, mostly celiac followed by peanut followed by shellfish, so they know they have to get up to speed on it all.

Magazines love to write about hawaii!

good luck

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)
VioletBlue Contributor

Hmm, best of luck with that. Foodies can be some of the nastiest people when it comes to being tolerant of allergies and food intolerances. I learned that on the Jamie Oliver forum. One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill". But then these are people who are insisting that school lunch programs use "free range" chickens exclusively. Yeah, that would fly in the US.

My point is, they tend to get really defensive. I think they somehow see those of us with allergies and intolerances as somehow limiting their future options or something.

Violet

Mom23boys Contributor
One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill".

Well, I know you can have a nut case on any message board but the way this is set up in the recipe area doesn't really encourage it. I am focusing my efforts in the area where it asks for comments from people who have tried the recipe and give their reviews. If people can say needs more salt or needs less pepper, I feel I can say works well with soy as a sub or if you don't eat wheat use the rice noodles instead of corm.

I first choose a defining name using Gluten-free Casein-free in the name. I am trying basic recipes at first and giving my ratings and comments. After I have some up I am going to start trying recipes that call for pasta or milk. I still encounter way too many people who think we are some frumpy, twig eating, hippie types. We have actually had people accept invites out of curiosity only to find out we were "NORMAL". "Your stove is newer then mine!", "You have air conditioning", "You have furniture"...it gets down right scary at times when you hear the confessions.

The stereotype needs to be broken and they need to recognize that we can also be the teacher, the lawyer, the mom/dad, the company president...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.