Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Today Is My Anniversary!

angel-jd1

By angel-jd1
in Coping with Celiac Disease

Recommended Posts

angel-jd1 Community Regular
angel-jd1
Posted

Today begins my third year of being healthy and gluten free. On December 31,2002 I visited the doctor for test results and was sent on my merry way with a small piece of paper and a diagnosis of Celiac Disease. Thank God for the internet or I do not think I would have made it to where I am today. I have learned so much from others with Celiac, not from Doctors. ;)

It is sort of odd that my new life began on New Years Eve day, but it was a great way to usher in a new year and new life for myself. A life filled with hope, health, and new friends because of the disease. Thank you to each of you for helping me learn. It is great to be healty and have my life back!!

-Jessica :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

Congratulations on 3 years gluten free! I too have learned a lot about celiac from the internet and from this board.

darlindeb25 Collaborator
darlindeb25
Posted
;) congrats--keep up the good work and HAPPY NEW YEAR!!!!!!!!! DEB
Canadian Karen Community Regular
Canadian Karen
Posted

Congratulations on celebrating the day your life changed for the better!!! I also learned my diagnosis during the Christmas holidays (many years ago!!!) It was a message on my answering machine on Christmas Eve from the dr. giving me the diagnosis of celiac disease.....

Happy New Year!

Karen

celiac3270 Collaborator
celiac3270
Posted

Yes, congratulations!

Karen, when were you diagnosed? I didn't realize that you had been on this diet for years and were STILL having symptom problems. :(

Canadian Karen Community Regular
Canadian Karen
Posted

Well, it's kind of a long story, but in a nutshell:

I was first diagnosed with celiac disease and endometriosis in my early 20's. After 1 1/2 years on the gluten-free diet with no change or improvement, that when the "diagnosis roller coaster" started. It then was "Okay, we think you have Crohns' disease.... then is was IBS......." So off the gluten-free diet I go. Years after, still no improvement, just getting worse.....

Three years ago, I finally went to another GI dr. By this time, the bloodtests were available to easily detect celiac. When the results came back, my numbers were through the roof! So back on the gluten-free diet I go again. After three years and AGAIN no improvement, that's when my GI dr. sent me down to St. Mike's to the celiac specialist (this is where he was discussing with me the strong possibility of refractory celiac......). It was only then that the collagenous colitis was discovered. So obviously, it was celiac AND collagenous colitis from the beginning, but because the collagenous colitis wasn's detected and treated, that's why there was no improvement. So when I say that I have had permament diarrhea for years, IT REALLY HAS BEEN YEARS!!!!! lol!

One thing that I consider myself very lucky for is that for all three of my pregnancies (especially the twin pregnancy), things turned out okay despite the fact that I was not on the gluten-free diet for all my child bearing years. I thank God that all my pregnancies resulted in healthy, strong babies (the boys were nine weeks early due to it being twins, but despite the fact that they both weighed only 3 1/2 lbs each, they were really quite strong from the beginning). Knowing what I know now, the outcome certainly could have been very different.... Thinking back, for my first pregnancy, I lived off of chicken on a bun. For the second pregnancy, I lived off of bread and peanut butter. For the twin pregnancy, I constantly ate chinese food with LOTS of soy sauce.....

So, after so many years of dealing with this, I really have such high hopes for 2005. I really see a light at the end of this long tunnel I have travelled.....

Happy New Year!

Karen

Maggie1956 Rookie
Maggie1956
Posted

:D:):P HAPPY ANNIVERSARY ANGEL

That's great! Good for you. ;)

HAPPY NEW YEAR to everyone as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Oh, wow! Before, when I saw you joined in June, I just assumed that you were diagnosed around that time...you've been through a lot :(

Canadian Karen Community Regular
Canadian Karen
Posted

June is when I started taking this disease as seriously as I should have from the beginning.....

It was when the dr. started talking to me about refractory, it kind of woke me out of my indifference and into the reality that this stuff could be really serious..... That's when I started searching the internet for everything I could get my hands on and that's how I came to this site.... Thank goodness I found it!!!

Karen

tarnalberry Community Regular
tarnalberry
Posted

Congrats on three years!

angel-jd1 Community Regular
angel-jd1
Posted
  • Author

Thanks to all for the kind words, just wanted people to see that it CAN be done and we can be healthy and happy. It is such a struggle, but very worth it.

-Jessica :rolleyes:

ryebaby0 Enthusiast
ryebaby0
Posted

Hey! My son's "anniversary" is also Dec. 31 (but of '03). In another month he will have his tTg repeated to see if it is within normal range (last May it was still positive) but after a year gluten-free he has normal zinc, iron, and folate levels, normal B12 and calcium density; his sed rate is back in normal range, grown 3.2 inches and he has gained (from his low weight) 30 pounds! He is still only in the 25th percentile for weight, but hey, we'll take that. Happy anniversary :) Bring on the Truffle Brownies!

joanna

mom and wife to celiacs (DH has been gluten-free 6 weeks now. "I can't believe how much better I feel and I didn't even know I was sick")

angel-jd1 Community Regular
angel-jd1
Posted
  • Author

AMEN to the truffle brownies!! YUM!! We had "New Years Eve Food" at our house. Velveeta cheese with rotel, hillshire farms little smokies in sweet baby ray's bbq sauce, a cheese ball with blue diamond almond thins, and vegetable soup!! ha Great celebration.

-Jessica :rolleyes:

PS. Happy Anniversary to your son!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Cecile
      - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time.
    2. Jmartes71
      - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
    4. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
    5. RMJ
      - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748
    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Cecile
      Symptoms

      By Cecile · Posted

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      Not validated

      By Jmartes71 · Posted

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      New issue

      By Jmartes71 · Posted

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      Do Gluten Enzymes actually work?

      By RMJ · Posted

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.