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No Celiac Chat Sites

Grissomz

By Grissomz
in Introduce Yourself / Share Stuff

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Grissomz Newbie
Grissomz
Posted

I've yet to find a full-time Celiac chat site.

I've seen some on a lot of other illnesses, but no go on Celiac.

If anyone know of one, don't hesitate to let me know.

Griss

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celiac3270 Collaborator
celiac3270
Posted

No, I haven't found a celiac chat room, either. There are many message boards and I've been to a few, but I like this one best--enough information to be useful, but small enough to be personal and for you to actually feel like you know the people here.

I think that in a way, a message board is better than a chat room. If you have AIM, AOL, Yahoo Instant Messenger, MSN something, etc. you can talk to someone or even, with celiac AOL members, create a private chat room. On a message board, though, your topic stays up there forever, so you can get replies hours, days, and weeks later. Additionally, the information is left there for others to see and use....but no, I don't know of any chat rooms on celiac.

Canadian Karen Community Regular
Canadian Karen
Posted

Hi!

I also am not really a fan of chat sites..... but I know of one at

www.delphiforums.com

Click on "Health and Wellness" on the left hand side. The celiac website is at the top of the list in this section..... They have a chat section in there, I don't know what it is like though.....

Have a great day!

Karen

celiac3270 Collaborator
celiac3270
Posted

Oh, wow...I didn't know there was a chat room at Delphi Forums! Never seen that...then again, I don't spend much time there...i'll go check it out, but I still like message boards :D

celiac3270 Collaborator
celiac3270
Posted

Oh, I went to the Delphi site, but I can't get the chat room feature to work...maybe nobody else was on--that might have been my problem. With some chat rooms, they only work if someone is already at the page waiting or something weird like that. I saw the feature, though :)

darlindeb25 Collaborator
darlindeb25
Posted

are you a member of their forum--maybe u have to be a member for it to work--i have gone in there many times when no one else is there--it is very slow--but i have had lots of fun there :lol: deb

lovegrov Collaborator
lovegrov
Posted

The celiac chat room at delphi is rarely in use. I THINK there is a regular time when some people get on but you'd have to ask there.

richard

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flagbabyds Collaborator
flagbabyds
Posted

ON the Yahoo support group sites there is a chat feature, I don't know if many people go there.

celiac3270 Collaborator
celiac3270
Posted

I am a member there, but don't post--you're required to be a member to read the boards, so I joined for that purpose...

Thanks for the information, Richard.

angel-jd1 Community Regular
angel-jd1
Posted

HA HA celiac3270........you post on my board!! I guess I just must be special :)

Even on the yahoo groups it is hard to get a time set aside to "chat" because people live in so many different time zones etc! I own a board there and I have tried getting the chat feature going and it seems to be hard for that reason. I would LOVE to be able to use that more, I think it would be a great resource.

I guess I'll have to try harder!! ;)

-Jessica :rolleyes:

celiac3270 Collaborator
celiac3270
Posted
HA HA celiac3270........you post on my board!! I guess I just must be special

Even on the yahoo groups it is hard to get a time set aside to "chat" because people live in so many different time zones etc! I own a board there and I have tried getting the chat feature going and it seems to be hard for that reason. I would LOVE to be able to use that more, I think it would be a great resource.

LOL... :D

Yes, that's another obstacle...there's a three hour difference between the east coast and the west coast...then there are also people from the UK on many of these boards.....there's a 5 hour difference between the east coast of the US and the UK....etc.

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

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    • knitty kitty
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      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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      By rei.b · Posted

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