Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy


Oriana

Recommended Posts

Oriana Newbie

Hi everyone,

I seem to have problems with soy. I've read that a lot of people with gluten problems also have problems with soy. Does anyone know what the connection between the two are? I just don't understand why one would cause the other. I understand it as far as lactose goes because once you heal you can add it back. But soy isn't like that, is it? I just wonder if anyone knows what the connection is!

thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmw Newbie

I have had problems with soy. For me I think it was my vastly increased dependence on soy following my switch to the gluten-free life. I cut it out completely and can now handle small amounts. I've since learned to rotate my foods and pay careful attention to how I feel. I keep a food/symptom diary that helps me track all of this.

I think a lot of it depends on the state of your gut - if it's badly damaged the proteins in soy could be wreaking havoc along with other food proteins. Soy is also very estrogenic and not really all that good for you.

Oriana Newbie

Does soy damage the villi too? Just curious. I think I'm going to keep a food log too.

I have had problems with soy. For me I think it was my vastly increased dependence on soy following my switch to the gluten-free life. I cut it out completely and can now handle small amounts. I've since learned to rotate my foods and pay careful attention to how I feel. I keep a food/symptom diary that helps me track all of this.

I think a lot of it depends on the state of your gut - if it's badly damaged the proteins in soy could be wreaking havoc along with other food proteins. Soy is also very estrogenic and not really all that good for you.

AliB Enthusiast

Along with the grains, Soy is yet another food that has been genetically 'mucked about' with.

A friend of mine was saying today that she had a problem with Soy Milk. She took it to an alternative practitioner she goes to, for testing. He tested her against some 'pure' soy milk he had and she was fine, when he tested her against the soy milk she had brought she reacted. It was just bog-standard soy milk from Tescos.

How on earth we can find stuff that hasn't been interfered with is beyond me. Possibly the only way is to test different products until we find one that we can cope with, or ask the manufacturers what source their beans are from. It could even be chemicals that the beans have been sprayed with whilst growing that affects whether we react or not!

I am sure good beans from a good 'uninterfered with' source would be fine - at the end of the day they are just beans - it's what they do to them afterwards that is the problem!

Someone posts a link on the forum to illustrate how bad soy is - are you out there Great Bear?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.