Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten By Accident. Starting From Zero?


MELINE

Recommended Posts

MELINE Enthusiast

Hello. There was a bad information from my doctor, who allowed me to eat dinkel (spelt) bread which finally proved to be non gluten-free. After 3 days of eating it, all the symptoms came back. Just wanted to ask. If someone does accidentaly eat gluten, then he starts the healing period from zero point? Maybe it depends on the amount? To tell you the truth it only took me 2 days to stop feeling exhausted, and the headache disappeared in only few hours so I hope it is like it never happened? or it is not??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

kahleespehrah

For me it depends on the type of accident I eating or inhaling or degree of cross contamination.

I think it also depends on how far you are from the starting point and how much you have healed.

For me its been almost 2 years and if I have an accident now, it can take 2 days to a week to feel normal again.

A year ago it could take 3 weeks.

Ken

Hello. There was a bad information from my doctor, who allowed me to eat dinkel (spelt) bread which finally proved to be non gluten-free. After 3 days of eating it, all the symptoms came back. Just wanted to ask. If someone does accidentaly eat gluten, then he starts the healing period from zero point? Maybe it depends on the amount? To tell you the truth it only took me 2 days to stop feeling exhausted, and the headache disappeared in only few hours so I hope it is like it never happened? or it is not??
MELINE Enthusiast
kahleespehrah

For me it depends on the type of accident I eating or inhaling or degree of cross contamination.

I think it also depends on how far you are from the starting point and how much you have healed.

For me its been almost 2 years and if I have an accident now, it can take 2 days to a week to feel normal again.

A year ago it could take 3 weeks.

Ken

Kalispera to you too!!!

I see...so it is not a rule that you start all over again! It only took me 2 days after eating a good amount of non gluten-free bread, so I guess I don't have to worry so much. thanx for the information ken.

Meline

kenlove Rising Star

I think it just takes time to get to know how your body changed from celiac. I'm still learning after 2 years after 55 years of no trouble with anything.

Some of us on the forum are trying to develop the perfect gluten free pylo. Do they have any gluten free foods in Greece?

Take care

ken

Kalispera to you too!!!

I see...so it is not a rule that you start all over again! It only took me 2 days after eating a good amount of non gluten-free bread, so I guess I don't have to worry so much. thanx for the information ken.

Meline

MELINE Enthusiast
I think it just takes time to get to know how your body changed from celiac. I'm still learning after 2 years after 55 years of no trouble with anything.

Some of us on the forum are trying to develop the perfect gluten free pylo. Do they have any gluten free foods in Greece?

Take care

ken

They actually have, even though people are not aware of celiac. I read on the net that in Greece there is only 1 in 11. 000 people with celiac.....Can it be true?? The same article mentioned 1 in 300 people for Ireland.....Any way!!! I found pasta and bread and cookies and many many things, but unfortunatelly I can't eat them because I also have problems with sugar and lactose and several other foods. But I really don't care. I am so happy with my new non-exhausted self that anything else is tiny little detail. My friends and my family keep telling me they feel so sorry about me not beeing able to eat so many things and I am just wondering why do they pitty me??? Celiac is not such a big deal after all. It just needs some attention. I really never want to taste bread again if it is to feel again that pain in my head and in my stomach and that awfull feeling that I am going to collapse if I make one more step......

as far as pylo is concerned....oups.....I don't know the meaning of that word.....I am going to look it up...But I hope you can make it (whatever it is, I guess it will be a nice surprise..)

MELINE Enthusiast

couldn't find the word pylo....I still don' know the meaning...

YoloGx Rookie
couldn't find the word pylo....I still don' know the meaning...

I think what Ken meant was the paleo diet--after the ancient Paleolithic Hunter Gatherers (i.e. who ate a non-grain diet like everyone did before 15,000 years ago). It means mostly vegetables including roots and squash, some meat, nuts and seeds (soaked and sprouted best), some fruit and if you can handle it sometimes some honey. To branch out you can add some ancient grains--amaranth, teff, quinoa and maybe some rice and corn. But even there it shouldn't be the main part of the diet.

Maybe you had some stray barbarian from the north as one of your ancestors or heaven forbid an Italian. It was the northern Europeans that mostly developed the celiac reaction to gluten. Without it you should be less likely to get degenerative diseases since gluten actually isn't that digestible by anyone--which eventually can makes the body break down more easily.

Yolo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

I must be spelling it wrong, the wrap for spanakotiropita phylo or filo?

Its great you have such a good attitude towards celiac.

Sure it is natural to miss to eat some foods but there are new ones to explore for, find and enjoy.

I work a lot of figs I think you call seko. The best in the world are from Greece.

Like you I do not miss to have bread at all. But somethings like spanakopita I would like to make again.

take care

couldn't find the word pylo....I still don' know the meaning...
MELINE Enthusiast
I think what Ken meant was the paleo diet--after the ancient Paleolithic Hunter Gatherers (i.e. who ate a non-grain diet like everyone did before 15,000 years ago). It means mostly vegetables including roots and squash, some meat, nuts and seeds (soaked and sprouted best), some fruit and if you can handle it sometimes some honey. To branch out you can add some ancient grains--amaranth, teff, quinoa and maybe some rice and corn. But even there it shouldn't be the main part of the diet.

Maybe you had some stray barbarian from the north as one of your ancestors or heaven forbid an Italian. It was the northern Europeans that mostly developed the celiac reaction to gluten. Without it you should be less likely to get degenerative diseases since gluten actually isn't that digestible by anyone--which eventually can makes the body break down more easily.

Yolo

Hi yolo! That's a pretty clever version of what Ken may wanted to say, but as you can see in his post finally he meant smth else.....as far as northern europe and celiac is concerned guess you are right...

KEEEEEEEEEEN please do try to find out the best way to make gluten free pheelo for spanakopitaaaaaaaaaaaaaaaaaaaaaaaaa. That's a food I am missing!!!! My mother is going to try it this weekend but I don't know the results.....And about seeko - figs oups....Allergy for me there....But you are right! really tasty in greece

kenlove Rising Star

Hi Meline,

What will your mother use to make the spankopita?

I hope she can make a good recipe. My son is a chef here in Hawaii but his first cooking lessons when he was very young were at a Greek church during a festival in Chicago. Growing up in Chicago your countries culture was everywhere and when I trained as a chef in Japan, my teacher asked me to make Greek foods for him since he never tried them.

It's too bad you cannot have seeko. I am lucky I only have celiac and no other troubles.

Can you eat other fruits?

Yolo helped me a lot with information about her diet and information on vitamins and herbs.

adio

ken

Hi yolo! That's a prettycelver version of what Ken may wanted to say, but as you can see in his post finally he meant smth else.....as far as northern europe and celiac is concerned guess you are right...

KEEEEEEEEEEN please do try to find out the best way to make gluten free pheelo for spanakopitaaaaaaaaaaaaaaaaaaaaaaaaa. That's a food I am missing!!!! My mother is going to try it this weekend but I don't know the results.....And about seeko - figs oups....Allergy for me there....But you are right! really tasty in greece

MELINE Enthusiast
Hi Meline,

What will your mother use to make the spankopita?

I hope she can make a good recipe. My son is a chef here in Hawaii but his first cooking lessons when he was very young were at a Greek church during a festival in Chicago. Growing up in Chicago your countries culture was everywhere and when I trained as a chef in Japan, my teacher asked me to make Greek foods for him since he never tried them.

It's too bad you cannot have seeko. I am lucky I only have celiac and no other troubles.

Can you eat other fruits?

Yolo helped me a lot with information about her diet and information on vitamins and herbs.

adio

ken

Kalimera ken

Unfortunately she is going to use only riceflour and oil because at least for the next 6 months I am not allowed to eat anything else that people use to make pheelo for spanakopita. (As far as I know she also uses ouzo, but guess what...allergy in ouzo....)

I can eat bananas and mantarinia (I don' t know the translation....they look like little oranges), and appricots and apples and that's all for fruits....Unfortunatelly extremely limited choises in food.....any way.....It's ok...no big deal.

Interesting...You are a chef and you had a training in Japan....and you live in Hawai....All these places are so exotic to me!! You must have had a nice travelling experience in Japan...Didn't know that in Chicago there are many Greeks....Any way....If you need any recipe for greek food please feal free to ask. (not a gluten-free one, cause I found out that I had to exclude gluten for a life time just last week so my mother did not have time to come up with solutions....And here in Greece only 1 in 11.000 people are celiac - I read yesterday that it is the lowest rate in Europe-so there are no gluten-free products to use in foods...)

kenlove Rising Star

Hi Meline

I think at one time Chicago had more Greeks than anyplace outside of Athens!

ITs too bad you have so many allergies now but maybe some will clear up. We can never stop the celiac but

maybe some of the others. It's too bad about Ouzo. Here no stores sell retsina so I have to order it.

I think mantarinia must be mandarin or tangerine, smaller than orange.

Hawaii and Japan are both similar to Greece in that they are surrounded by ocean and many of the foods come from the sea.

To me Greece is a place I always plan to travel. I've been to so many countries around the world but never to yours.

I hope someday to visit. Maybe when I am in Italy working this summer.

I have to leave for the airport in a few minutes,

take care

ken

Kalimera ken

Unfortunately she is going to use only riceflour and oil because at least for the next 6 months I am not allowed to eat anything else that people use to make pheelo for spanakopita. (As far as I know she also uses ouzo, but guess what...allergy in ouzo....)

I can eat bananas and mantarinia (I don' t know the translation....they look like little oranges), and appricots and apples and that's all for fruits....Unfortunatelly extremely limited choises in food.....any way.....It's ok...no big deal.

Interesting...You are a chef and you had a training in Japan....and you live in Hawai....All these places are so exotic to me!! You must have had a nice travelling experience in Japan...Didn't know that in Chicago there are many Greeks....Any way....If you need any recipe for greek food please feal free to ask. (not a gluten-free one, cause I found out that I had to exclude gluten for a life time just last week so my mother did not have time to come up with solutions....And here in Greece only 1 in 11.000 people are celiac - I read yesterday that it is the lowest rate in Europe-so there are no gluten-free products to use in foods...)

MELINE Enthusiast
Hi Meline

I think at one time Chicago had more Greeks than anyplace outside of Athens!

ITs too bad you have so many allergies now but maybe some will clear up. We can never stop the celiac but

maybe some of the others. It's too bad about Ouzo. Here no stores sell retsina so I have to order it.

I think mantarinia must be mandarin or tangerine, smaller than orange.

Hawaii and Japan are both similar to Greece in that they are surrounded by ocean and many of the foods come from the sea.

To me Greece is a place I always plan to travel. I've been to so many countries around the world but never to yours.

I hope someday to visit. Maybe when I am in Italy working this summer.

I have to leave for the airport in a few minutes,

take care

ken

Have a nice flight Ken!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.