Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety And Gluten


AmF

Recommended Posts

AmF Newbie

I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

3 1/2 YEARS AGO I WAS TESTED FOR CELIAC DISEASE AFTER A PERIOD OF STRESS (BREAK-UP/MOVE, GRADUATING COLLEGE, ACCIDENTAL DOSE OF HALLUCINOGEN) AND TRAVEL (GOT VERY SICK-SINUS-TOOK HEAVY ANTIBIOTICS THERE). THE TEST CAME BACK NEGATIVE, DESPITE PREVIOUS SUSPICION. I HAD NOTICED FEELING TIRED AND SLUGGISH AFTER MEALS WITH WHEAT AND PASTA FOR SOME TIME. DURING THIS TIME OF STRESS AND TRAVEL, I STARTED HAVING CHRONIC DIARRHEA (UPON RETURN). NUMEROUS TESTS WERE DONE FOR PARASITES BUT NOTHING SHOWED UP. I LOST 30 POUNDS IN 2 MONTHS AND WOULD GO DAYS WITHOUT SLEEPING DUE TO SEVERE ANXIETY. I BEGAN HAVING PANIC ATTACKS AND MANY IRRIATIONAL FEARFUL THOUGHTS. I KNEW I WAS NOT MYSELF DESPITE THE STRESS I WAS UNDER. I HAD DEALT WITH NUMEROUS STRESSFUL PERIODS IN MY LIFE AND MILD ANXIETY~THIS WAS DIFFERENT. (I DID TAKE A 10-DAY PRESCRIPTION FOR PARASITES AS A 'JUST IN CASE' MEASURE SUGGESTED BY A NATUROPATH)

SINCE THEN MY SYMPTOMS TURNED INTO BURNING GUT SENSATIONS AND I NOTICED A MARKED CHANGE IN WHAT MY BODY COULD HANDLE. I USED TO EAT SPICY FOODS ON A REGULAR BASIS BUT NOW MY BODY NO LONGER COULD TAKE IT. MY TASTE BUDS AND STOMACH SEEMED TO CHANGE OVERNIGHT. I WAS IN AND OUT OF SEEING DOCTORS FOR TESTS THAT CAME UP INCONCLUSIVE. THEY WOULD ONLY OFFER ANTI-DEPRESSANTS FOR THE ANXIETY. I WASN'T SATISFIED WITH THEIR RESPONSE BECAUSE I FELT/FEEL THAT THERE IS SOMETHING CONNECTED TO MY DIGESTIVE SYSTEM AND I DIDN'T WANT TO MASK IT! ALMOST TWO YEARS AGO I BEGAN HAVING SEVERE PAIN IN MY STOMACH THAT TOOK ME TO URGENT CARE AND THE EMERGENCY ROOM WHERE THEY DETECTED GALLSTONES. I CHOSE TO KEEP MY GALLBLADDER AND WENT OFF DAIRY AND KEPT MY DIET SIMPLE. I HAVE NOT HAD THE EXCRUCIATING PAIN SINCE BUT I DO STILL HAVE BOUTS OF DIARRHEA, OCCASIONAL HEADACHES (CHRONIC MIGRAINES WHILE IN SCHOOL 4 YEARS AGO), AND THIS STRANGE DISTORTED ANXIETY.

MY MOTHER HAS DONE ALLERGY TESTING AND HAS A HANDFUL THAT SHE DOESN'T ALWAYS ACKNOWLEDGE. SHE ALSO TAKES A LOW DOSE OF AN OLDER ANTI-DEPRESSANT THAT IS ALSO PRESCRIBED FOR ALLERGIES SO THIS COULD BE WHY SHE ISN'T AS READILY AFFECTED BY FOODS.

I AM VERY INTERESTED TO HEAR ANY POSITIVE "MENTAL HEALTH" IMPROVEMENTS YOU'VE HAD WITH A GLUTEN-FREE DIET. AND ANY GOOD SUGGESTIONS ON NOURISHING A DAMAGED GUT...

THANKS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pinkdljj Rookie
I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

3 1/2 YEARS AGO I WAS TESTED FOR CELIAC DISEASE AFTER A PERIOD OF STRESS (BREAK-UP/MOVE, GRADUATING COLLEGE, ACCIDENTAL DOSE OF HALLUCINOGEN) AND TRAVEL (GOT VERY SICK-SINUS-TOOK HEAVY ANTIBIOTICS THERE). THE TEST CAME BACK NEGATIVE, DESPITE PREVIOUS SUSPICION. I HAD NOTICED FEELING TIRED AND SLUGGISH AFTER MEALS WITH WHEAT AND PASTA FOR SOME TIME. DURING THIS TIME OF STRESS AND TRAVEL, I STARTED HAVING CHRONIC DIARRHEA (UPON RETURN). NUMEROUS TESTS WERE DONE FOR PARASITES BUT NOTHING SHOWED UP. I LOST 30 POUNDS IN 2 MONTHS AND WOULD GO DAYS WITHOUT SLEEPING DUE TO SEVERE ANXIETY. I BEGAN HAVING PANIC ATTACKS AND MANY IRRIATIONAL FEARFUL THOUGHTS. I KNEW I WAS NOT MYSELF DESPITE THE STRESS I WAS UNDER. I HAD DEALT WITH NUMEROUS STRESSFUL PERIODS IN MY LIFE AND MILD ANXIETY~THIS WAS DIFFERENT. (I DID TAKE A 10-DAY PRESCRIPTION FOR PARASITES AS A 'JUST IN CASE' MEASURE SUGGESTED BY A NATUROPATH)

SINCE THEN MY SYMPTOMS TURNED INTO BURNING GUT SENSATIONS AND I NOTICED A MARKED CHANGE IN WHAT MY BODY COULD HANDLE. I USED TO EAT SPICY FOODS ON A REGULAR BASIS BUT NOW MY BODY NO LONGER COULD TAKE IT. MY TASTE BUDS AND STOMACH SEEMED TO CHANGE OVERNIGHT. I WAS IN AND OUT OF SEEING DOCTORS FOR TESTS THAT CAME UP INCONCLUSIVE. THEY WOULD ONLY OFFER ANTI-DEPRESSANTS FOR THE ANXIETY. I WASN'T SATISFIED WITH THEIR RESPONSE BECAUSE I FELT/FEEL THAT THERE IS SOMETHING CONNECTED TO MY DIGESTIVE SYSTEM AND I DIDN'T WANT TO MASK IT! ALMOST TWO YEARS AGO I BEGAN HAVING SEVERE PAIN IN MY STOMACH THAT TOOK ME TO URGENT CARE AND THE EMERGENCY ROOM WHERE THEY DETECTED GALLSTONES. I CHOSE TO KEEP MY GALLBLADDER AND WENT OFF DAIRY AND KEPT MY DIET SIMPLE. I HAVE NOT HAD THE EXCRUCIATING PAIN SINCE BUT I DO STILL HAVE BOUTS OF DIARRHEA, OCCASIONAL HEADACHES (CHRONIC MIGRAINES WHILE IN SCHOOL 4 YEARS AGO), AND THIS STRANGE DISTORTED ANXIETY.

MY MOTHER HAS DONE ALLERGY TESTING AND HAS A HANDFUL THAT SHE DOESN'T ALWAYS ACKNOWLEDGE. SHE ALSO TAKES A LOW DOSE OF AN OLDER ANTI-DEPRESSANT THAT IS ALSO PRESCRIBED FOR ALLERGIES SO THIS COULD BE WHY SHE ISN'T AS READILY AFFECTED BY FOODS.

I AM VERY INTERESTED TO HEAR ANY POSITIVE "MENTAL HEALTH" IMPROVEMENTS YOU'VE HAD WITH A GLUTEN-FREE DIET. AND ANY GOOD SUGGESTIONS ON NOURISHING A DAMAGED GUT...

THANKS!

pinkdljj Rookie

Hi,

Wow, your story sounds very familiar to mine. I have dealt with anxiety, panic, strange headaches, and intestinal problems for the last 7 years. I think my intolerance to gluten started at this time because all of the sudden I started feeling very different and couldn't quite pinpoint it. They say something will trigger celiac or intolerance to gluten and you will know exactly when it starts. Mine I believe was my second pregnancy and a very stressful life situtation.

Anyhow, after seeing many doctors, psychiatrists, psychologists, etc.... and fed up with their answers (I had always dealt with stressful situation fairly easily as a child and in college, etc.) It was always a pill I should try which only made me worse, or that I had IBS and should eat more fiber, or that I needed to exercise to relieve my anxiety. The anxiety I had always felt like a doom and gloom feeling and seemed to come from my bowels. Very hard to describe to anyone. Sometimes it would happen after I had eaten and sometimes not. It got to the point that I became depressed and suicidal. My dear sister finally convinced me to go to a naturopathic clinic. They ran all sorts of tests, IgG and IgA tests, mineral, amino acid, and stress hormones.

A week later I found out I was highly intolerant to gluten and casein. Very low in minerals, vitamins, amino acids and my stress hormones were way out of whack. I immediately went on a Gluten-free Casein-free diet, started B12 shots, dhea, amino acids, and several other vitamins. I cannot tell you in words how much better I feel. The doom and gloom stopped. I have daily regular bowel movements for the first time in years. My depression is gone. It has been 2 months now and I tell everyone I meet to stop eating gluten for a week and see how they feel. Amazing, really like a miracle for me.

As to the healing process. I cannot drink coffee or eat spicy foods yet. If I do, I don't get anxiety I just get burpy and my bowels hurt. I drink warm chai with soy milk instead of coffee or straight tea. Bananas seem to be very healing to the gut. I haven't really tried a lot of gluten-free breads yet. I am mainly sticking to fresh fruits, vegies, brown rice, fish and lean meats.

I hope you have the same experience I have had. I will never touch gluten again. In fact I'm scared to death of it.

Take care,

Leslie

aikiducky Apprentice

You might want to check out the "Gluten intolerance and behavior" part of this board. Depression and anxiety get discussed a lot there.

Open Original Shared Link

Pauliina

Kritter Rookie

I have noticed a big improvement in anxiety since going on the gluten-free diet 3 weeks ago. I'm much calmer, even a friend of mine who is a Psychologist (she does not treat me, though) has noticed the change in me. I realize that the length of time it takes people to improve after being on a g.f. diet varies significantly due to the damage they have already sustained, but keep at it - I'm betting you will see an improvement in anxiety. In fact, I just read somewhere (I wish I could remember exactly where it was!!! It might even have been on this very website) that there are serotonin receptors in your gut. I had always thought that they were only in your brain. Guess I was wrong. Anyway, if your villi are damaged, I suppose it might stand to reason that your absorption of seratonin (the "feel good" chemical) is compromised. I can tell you that if I accidentally "get glutened" the anxiety is the first thing to return for me.

Have patience and keep at the diet. It's worth it!

Kritter

Oriana Newbie

I have only been doing this for a few weeks and I keep making mistakes! Anyway one thing that I notice is tension when I've been really gluten free for even just a few days I sleep better even if its less hours, and don't feel exhausted the next day. I have severe problems with night anxiety... I will lay awake all night worrying. If there is nothing to worry about then I will invent something, like oh I'm not getting enough sleep I have to wake up in x hours... its really frustrating. But I think part of the reason I sleep better when I haven't had gluten is that those thoughts aren't so strong on those nights. I don't know. I guess time will tell for me what all improves. I'm hoping to see some improvements in both my emotional health as well as physical!

gfp Enthusiast
LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

Yes ... Yes and Yes. = Short answer....

Long answer is follow aikiducky's advice above....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmF Newbie

Thank you everyone for responding so far. I was really excited that people had responded to my post! It has been a long, mysterious, scary road at times and to have your support and, in some cases, people sharing a similar experience is incredibly comforting. No one I know has been able to relate to me and my symptoms.

Thanks Paulina for the suggestion, I will check out the link.

Leslie~ Do you drink caffeinated Chai w/soy? I have been staying away from caffeine since my first panic attack 3+ years ago, ever since then caffeine brought on immediate heart palpitations. Do you also take Omega 3/6 supplements?

I wonder the effectiveness of my gut in absorbing vitamins/nutrients at this time. (Makes sense what you said Kritter) When I had my last stool test done it showed no trace of the lactobicillus "good" bacteria and I had been taking an acidophillus supplement on a daily basis for the past 3 years! I've now switched brands but have yet to be retested. Also because of chronic diarrhea, my food doesn't seem digested that well. I drink Aloe juice and that seems to sooth burning sensations.

How have others helped heal their gut in addition to a gluten free diet?

I'm looking forward to a balanced body again!

Thanks,

Amy

Kritter Rookie

AmF,

My Pharmacist recommended an acidophilus pearl. It is made by the "Leader" company. The reason he says the "pearl" is best is because it doesn't disolve in your stomach, like the capsules do. It stays intact and disolves only after it hits your intestinal tract - which is exactly where you actually need to good stuff (pro-biotics) to go. The box says their website is www.myleader.com. I just ended up calling my pharmacist and he looked into whether or not it was gluten-free it for me. Of course, it is, or I wouldn't still be taking it. Anyway, I highly recommend the pearls - they really work wonders!!!! If you can't locate the stuff, try asking a Pharmacist. They should be familiar with the brand. Good luck!

Kritter

silk Contributor

I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?"

Interesting. I was just thinking about this yesterday. I have suffered from anxiety and depression for many years and take medication for it. Aside from the occasional episodes of depression re: celiac disease and food limitations, I have noticed a significant change as has my family. Not as many high and low moments, I have been gluten-free since November. During my last visit in September my doctor suggested that I might try to wean myself from the medication. Because I was having such dietary problems and winter months are traditionally hard (SAD) for me I hesitated but I have been doing so well since going gluten-free that I have decided to wean myself from the medication and see how it goes. Keeping my fingers and toes crossed.

If you see the words "KILL DOROTHY" written in smoke over the general direction of Nebraska, you'll know it was not successful. :D

AmF Newbie

Kritter, thank you for the recommendation for acidophilus 'pearls'. I will look into that. I like the sound of it moving into the intestines, beyond the stomach, where it is truly needed. I am not that educated on how dis-ease or digestive issues keep foods and nutrients from being properly digested and absorbed but that sounds good.

Silk, I hope and wish the best for you weening off your medication and am glad to hear that you have been feeling noticeably better mood-wise on a gluten-free diet! Always encouraging to hear. :)

YoloGx Rookie
Kritter, thank you for the recommendation for acidophilus 'pearls'. I will look into that. I like the sound of it moving into the intestines, beyond the stomach, where it is truly needed. I am not that educated on how dis-ease or digestive issues keep foods and nutrients from being properly digested and absorbed but that sounds good.

Silk, I hope and wish the best for you weening off your medication and am glad to hear that you have been feeling noticeably better mood-wise on a gluten-free diet! Always encouraging to hear. :)

Just wanted to add my bit. I had schizophrenic like visions as a child and young adult caused no doubt by my gluten intolerances plus a need to have B vitamins that my body just couldn't make or absorb very well on its own. After I went off the gluten and started taking B vitamins (due to starting to progressively lose my kidneys--I decided to try my grandmother's advice to make dietary changes despite my doctor saying I should be on antibiotics forever) the visions and crankiness and inability to concentrate for the most part went away. The visions left completely when I went off all (observable) gluten--and the inability to concentrate and easily get stressed left when I started to take the (non-sorbitol) co-enzyme B's from Country Life two years ago.

Apparently undigested gluten gives off opiates into the body. I found that being off wheat and rye made me much less anxious and irritable. As time went on and I went off all gluten I now discover I actually have a very even disposition and am able to deal with the stresses of life better than most, that is if I don't get CC'd!! (like I did recently...)

I read that when this one doctor back East experimented with a hospital full of schizophrenics by taking them off all common allergens (wheat, rye, barley and oats being on top--as well as dairy), 80% went into remission... Enough said? There are other studies that show that if the school children go off sugar and common allergens they are much less likely to act out and be violent.

More mental health workers need to get clued into this as well as the general public. There is so much suffering out there that could easily be prevented by diet alone that its incredible. Institutional food as well as what they server in most school cafeterias is a crime in my humble opinion.

AmF Newbie

thanks for the additional advice. I am still in my first week gluten-free. I suspect I may have a sensitivity to corn as well. I have been taking Twin Labs Stress-Liquid B vitamins for over a year now. I notice a difference in my energy level from taking them. I think my gut has been so damaged by stress, antibiotics, and toxins (wheat/gluten) allergens that hopefully by taking those factors out I will start to absorb nutrients more efficiently again and the chronic diarrhea will subside.

my youngest sister has bipolar disorder with 'schizophrenic tendancies'. I would love if she would go on a gluten-free diet! It would be so amazing if institutions (including schools) would take this serious allergy/sensitivity into account when meal planning. The change it would bring....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,415
    • Most Online (within 30 mins)
      7,748

    KittyKatJill
    Newest Member
    KittyKatJill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.