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Pain In The Back Of The Chest


Chuckles

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Chuckles Newbie

Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.


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Guest Happynwgal2
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

That must be so frustrating! I feel for you. What kinds of doctors have you tried so far? Will your insurance let you go to a specialist without a referral? And have you tried a chiropractor? A good chiropractor may at least be able to steer you in the right direction if he or she cannot help you. Do not give up, but keep going to different kinds of doctors until you find out what this is.

While I have never had a pain like the one you describe, I have had other pains and problems that conventional doctors have been "unable" to find the reason for. Conventional medicine can sometimes be very rigid, until you find a doctor with a more open mind than many of them have.

Good luck! :)

YoloGx Rookie
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

I have had similar things--my lungs are very sensitive I think too to both stress and celiac. I first got pneumonia after all as an infant after first being introduced to grains.

Thus it really could be part of the celiac. I have read somewhere or other that it is one way celiac can manifest. Sometimes it causes areas of sensitivity in the lungs which can eventually have DH like sores. You might be getting hidden glutens in your diet or just from some shampoo, toothpaste or other hidden source like an old toaster or frying pan. You need to be a detective to figure out what is what...This is my best advice.

Apart from staying away from all gluten, Detoxification can also help lessen the problem. Herbs again like dandelion, burdock, yellow dock etc. and maybe some licorice root (this last if you don't have high blood pressure). You could also use a little lobelia to relax and lessen the pain. And using a Sauna will help detox the lungs quite a lot--as will aerobic exercise.

However it also could be that you need some kind of adjustment. It might be a bone or muscle out of place. For myself now I do yoga and that really helps keep that and other parts of my body working well together. Deep breathing helps too. Seeing a chiropractor might help. Also going to the Y and using the jacuzzi or getting a good massage or two...

Then too if nothing above works, I would see an acupuncturist. It might be some kind of energy or pinched nerve problem...

Or yet another undiagnosed allergen. If so, go on a fast or simplified paleolithic diet (roots, vegetables, some fruit with, later on, a little meat) and reintroduce your foods slowly to detect the culprit. You might check your pulse too. If its high sometimes and low otherwise despite no concurrent exercise this definitely indicates an allergen.

GlutenGalAZ Enthusiast

About 2 years ago I was going to the dr about my high pulse and I was getting this REALLY bad pain in my upper chest that went through to my back. The dr's could not figure it out I did lots of heart tests to make sure there were no other problems. Months later during the busy season at work I was moving lots of boxes to put stock out and I got a really bad pain in my lower back (where I was crying from the pain). My dr had me get an x-ray but nothing showed up.

My in-laws and husband suggested going to their chiropractor. MY GOSH he helped soooo much!! He did his magic cracking and then I asked about the chest pain and it was like my rib was poking out of place and hitting a nerve which caused the stricking pain that felt like chest problems and then boom the pain was gone. I was shocked and amazed b/c I had never been to a chiropractor before. I have learned that you have to watch how you sleep (i.e. if you lay on your stomach with one leg straight and one bent it messed with your hip bone area or how you place your arms above you head or under the pillow can mess with the bones in your upper chest/neck).

Oh... the pain that I got in my chest area would come and go during the day, it was not constant the whole day and I could not pin point if I did something that it would make the pain come.

Hope you can figure out what is causing the pain. :(

Best of luck.

debmidge Rising Star
Hi there, I have just been diagnosed with Coeliac and have had many symptoms which are listed on various web sites. However, I keep getting severe pain in the back of my chest to the point that even with a combination of painkillers at the same time cannot even touch it. It comes on several hours a day and is like waves of pain or something turning and moving around - I cannot walk when it is really bad and have trouble sitting still as the pain moves around. I have had many scans and tests all of which assure me that there is 'nothing nasty' according to the doctors but the pain is having a major impact on my life. I am also told the pain is in the wrong place, wrong place for what I dont know but it is what it is . I was diagnosed Xmas eve just gone and started the gluten free diet immediately - just after the New Year the pain went altogether until two weeks ago and I have had it every day since then - I would be very grateful if any one could let me know if you have experienced anything similar.

Chuckles

Do you mean that your pain is on your back, under your shoulder blade? If yes, which side? Does it move around after belching or having gas in your intestines move around?

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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