Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Group In Fresno, Ca

glueless

Recommended Posts

glueless Newbie
glueless
Posted

I've noticed a few people looking for support in the Fresno area and would like to get information on starting a group. I've been dagnosed for almost a year and would like to share my experience and also receive the benefit of other peoples experience. Can someone direct me to a starting point?

  • 4 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Paul Jackson Rookie
Paul Jackson
Posted
I've noticed a few people looking for support in the Fresno area and would like to get information on starting a group. I've been dagnosed for almost a year and would like to share my experience and also receive the benefit of other peoples experience. Can someone direct me to a starting point?

Hi, Glueless! Mark Duran and Shannon Davis are self-employed "consultants for dietary modification," dba "Gluten Alternatives" in Fresno, California. Although I've never worked for them and am not trying to get any business for them (for I've never even met them!), I am introducing you to what I know about them as a possible "starting point." Duran and Davis have given a monthly talk at the Whole Foods Market (WFM) at Palm and Shaw avenues. Please call WFM to determine the time they'll be giving their next talk, and perhaps I'll see you there!

In the meantime, if you'd like to share your email address with me, I'd be happy to send you a gluten-free grocery shopping guide I've been writing.

Paul

("pjmaxx")

  • 4 weeks later...
karen149 Rookie
karen149
Posted

Hi,

You can contact the Celiac Sprue Association to start a support group or be a resource for your area. I have a group in Manteca and have had people call me from the Fresno area or drive to my meetings so Fresno really could use a group. I think there used to be a group but no longer.

  • 4 weeks later...
lindseymanae Newbie
lindseymanae
Posted

Hi everyone... kind of desperate here... getting married next March and having a ton of trouble finding a baker who will work with me and my gluten-free needs. Some have suggested a separate grooms cake for us to cut at the reception, but I would really like to be able to eat the real cake at my own wedding. Any advice or suggestions?

Paul Jackson Rookie
Paul Jackson
Posted

How about Sweetie Cakes Company in Santa Barbara, California? (Tel.: 805.685.4662 ; web site Open Original Shared Link )

A note from Cat Wellington, Owner, Sweetie Cakes Co.:

"We make amazingly delicious Organic, Fair Trade, Vegan baking mixes for people with food allergies. I started the company after I found out that I am allergic to eggs, dairy, wheat, peanuts and almonds. My twin sister and I are allergic to the same things and have been suffering for years trying to find yummy substitutes for the foods we love. Voila! Finally there is cake. The best gluten free cake we've ever tasted. And believe me we've tried them all....cake mixes, home made recipes, adapted recipes...you name it, we've tried it. After hundreds of cakes I finally perfected it. And I am able to use all organic ingredients. I believe we have the only Organic Vegan Gluten-Free mix out there. We are very proud and excited to offer our cake mixes online and soon in stores near you [the nearest being "Crumbs Cakery" in Santa Barbara - P.J.]

"We now offer Chocolate, Vanilla and Spice with organic sugar.

"And sugar-free Chocolate Ganache, Gingerbread and Greek Spice"

Mmmm, yummy! :P

To order your wedding cake, contact Crumbs Cakery at 5392 Hollister Avenue, Santa Barbara, California 93111 (Tel.: 805.692-crumbs)

Paul Jackson Rookie
Paul Jackson
Posted

Hey, Glueless!

Since summer began, I've been looking for a physical place where a celiac support group could meet in Fresno, California. For now, we have only metaphysical places. These are two Yahoo! discussion groups (Open Original Shared Link): one is MultipleFoodAllergySupportGroup; and the other is glutenfreefresno.

Whole Foods Market's corporate web site contains a statement that the meeting rooms at its grocery stores are available for such a support group. Though making numerous contacts of the WFM on Shaw Avenue, I've been unsuccessful in learning about the rental procedure, much less securing it for an organizational meeting. It would appear that a private-for-profit organization has gotten exclusive rights to use the room there. We can discuss this matter off line, if you'd like.

Let's just find ourselves another meeting place! Options for gluten-sensitive diners abound between River Park (W side of Blackstone Ave.) and River Park Shopping Center (E side of Blackstone Ave., a.k.a. Villagio). In-N-Out Burger, which has a location N of River Park Shopping Center (NW corner of Blackstone & Nees), is a low-price option. Recently, I noticed that construction is now underway in the lot adjacent to that In-N-Out. It will be a Chick-Fil-A ( Open Original Shared Link ), whose menu is also on the frugal side, as is Wendy's Old-Fashioned Hamburgers. The nearest Wendy's location is tucked in the middle of River Park, north of Barnes & Noble (312 W. Cromwell Ave.; phone: (559) 435-9685).

Gluten-sensitive diners have two other, though pricier options nearby: P. F. Chang's (Open Original Shared Link) on the SE corner of Blackstone and Nees avenues. To the west, across Blackstone, is Elephant Bar Restaurant with its "Lo' Carb Platters" intended for Atkins dieters, but gluten-free just the same. These platters may be low in carbs but are not low in price: Grilled Fresh Fish Platter, market price; Fire Grilled Beef Tri-Tip, $10.50; Center Cut New York Steak, $17.95. (Too pricey for me, folks!) Each is served with saut

  • 3 weeks later...
janice s Newbie
janice s
Posted
Hi everyone... kind of desperate here... getting married next March and having a ton of trouble finding a baker who will work with me and my gluten-free needs. Some have suggested a separate grooms cake for us to cut at the reception, but I would really like to be able to eat the real cake at my own wedding. Any advice or suggestions?

Hi, I live in berkeley which is a drive for you but.... there is a fantastic gluten-free bakery in Oakland.

It is called mariposa bakery on Telegraph ave. They have real cakes which are premade

and frozen. One is vanilla with a raspberry layer in between the layers and the other is

chocolate with a ganache of chocolate in between the layers. They may not be fancy-smancy

wedding cake looking but they are bakery cake looking in appearance and they are

groovy-good.

HTH

Janice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Paul Jackson Rookie
Paul Jackson
Posted
. . . Can someone direct me to a starting point?

Why, I'd be happy to! -> Open Original Shared Link

nantucket Newbie
nantucket
Posted

I also have wanted a support group in Fresno for some time. I have talked to several people about this and I'm willing to help organize a group. I think the first things we need to do is to get a list of potential places and see how many people would be in the group, when we have an approximate number of people, we can see which one of the places would be best. We need to also check if these places would allow food there. I know of some gluten free food companies that send support groups samples and items for their refreshments at their meetings.

This is just a few things for us to think about. What are your opinions about my ideas?

Nantucket

  • 4 weeks later...
Paul Jackson Rookie
Paul Jackson
Posted

I would like to invite you, Nantucket, to visit and to consider joining Gluten Free Fresno, a Yahoo! discussion group at Open Original Shared Link

Sincerely,

Paul

Paul Jackson Rookie
Paul Jackson
Posted

And how about Cakes2Love at P.O. Box 8547, Fresno, California 93747, Fax: 559/252-5976, Email: caketown1@comcast.net .

Cakes2Love makes gluten-free wedding cakes

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.