Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Info About Biopsy- Please Help


fedora

Recommended Posts

fedora Enthusiast

Hi,

I am seeing a dermatologist next week about a mole. Since I will be there already I want to have him look at my rash on my hands. It is DEFINATELY food intolerance related. When I do not eat any wheat, it goes away. When I eat wheat, it comes back. It was diagnosed as dyshidrotic eczema. This is a fluid filled tiny blister rash on hands and feet only. It pops and crusts over. It itches. it can get very bad. The Drs don't know what causes it, but I know mine is dietary related. I was eating more wheat than usual this winter and my rash came back. I read about a lady on here who also has this and hers reacted to gluten and other food intolerances too.

I gave up gluten 2 months ago. No cheating at all. My other health issues that were not effected by wheat have gotten much better. My hands are still breaking out, but just mildly.

I am thinking of getting a DH biopsy done. It has never been done. Regardless, I am never eating gluten again. I know it is a huge problem for me now in othe ways-muscles, joints, mood, digestion.

I feel like if it shows it is DH for sure then it will help me monitor if I get CCed somehow. I have delayed reactions to gluten, not immediate. If it comes back negative, I realize it could still be DH or it could mean I am reacting to something else. I know it takes time for the antibodies to leave the skin, but don't the road it could be helpful.

Any suggestions or advice? Does this sound like DH? I do have it on both hands. This winter I was itching all over without a rash. It was terrible. I do itch on my buttocks, sides, chest, and armpits alot, but nearly as much as before.

About the biopsy, do I need an active blister to get tested accurately? I know to get it next to the rash and not on it. I am worried the little bumps I have will have already crusted over by then. Does that matter?

I have to pay for this myself, so I am not totally sure it is worth it yet.

Thank you!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daveswife Newbie
Hi,

I am seeing a dermatologist next week about a mole. Since I will be there already I want to have him look at my rash on my hands. It is DEFINATELY food intolerance related. When I do not eat any wheat, it goes away. When I eat wheat, it comes back. It was diagnosed as dyshidrotic eczema. This is a fluid filled tiny blister rash on hands and feet only. It pops and crusts over. It itches. it can get very bad. The Drs don't know what causes it, but I know mine is dietary related. I was eating more wheat than usual this winter and my rash came back. I read about a lady on here who also has this and hers reacted to gluten and other food intolerances too.

I gave up gluten 2 months ago. No cheating at all. My other health issues that were not effected by wheat have gotten much better. My hands are still breaking out, but just mildly.

I am thinking of getting a DH biopsy done. It has never been done. Regardless, I am never eating gluten again. I know it is a huge problem for me now in othe ways-muscles, joints, mood, digestion.

I feel like if it shows it is DH for sure then it will help me monitor if I get CCed somehow. I have delayed reactions to gluten, not immediate. If it comes back negative, I realize it could still be DH or it could mean I am reacting to something else. I know it takes time for the antibodies to leave the skin, but don't the road it could be helpful.

Any suggestions or advice? Does this sound like DH? I do have it on both hands. This winter I was itching all over without a rash. It was terrible. I do itch on my buttocks, sides, chest, and armpits alot, but nearly as much as before.

About the biopsy, do I need an active blister to get tested accurately? I know to get it next to the rash and not on it. I am worried the little bumps I have will have already crusted over by then. Does that matter?

I have to pay for this myself, so I am not totally sure it is worth it yet.

Thank you!!!

My husband was recently diagnosed with HD through a biopsy as well, he was told that he should continue to eat gluten as this is the only way they could get an accurate positive reading. They took several samples from the rash on his stomach as well as his forearm. Good luck.

fedora Enthusiast

Hi,

Thanks for the reply. Anyone else?????

Has anyone had a positive biopsy after they stopped eating gluten?

Anyone else just have a rash on their hands that had a positive biopsy?

Alona Newbie

Hi, I haven't had my biopsy yet, will be in less than 2 weeks though.

I've read someone on a message board say you need to be eating gluten for 6 weeks before the test; however, I've also read articles that say the IgA can stay in your skin for months. I suppose it depends when you have your biopsy, I decided to go gluten free as of Wednesday to see what happens since it's only 2 weeks away.

From what I've read the biopsy is supposed to be done on healthy skin NEAR the rash site, not actually of the rash site. I've also read that iodine can induce the rash, so you could try putting a little medical iodine on your skin to see what happens. I haven't tried it myself though.

2kids4me Contributor

my experience with biopsies is from clinic situations. Prep of skin is minmal as prep solutions can affect biospy results. With skin, we take a minimum 5 biopsies. 2 from active lesions, 3 resolving lesions, an adjacent area of normal skin, and samples are taken from multiple sites on the body (anywhere lesion is found).

Do not try and use iodine to induce a reaction - it may appear microscopically as an inflammatory reaction to iodine / allergic reaction to iodine.

The skin often shows lesions as systemic response to foods / inhaled allergens etc. they can also be contact lesions (reaction to fabric softeners, laundry soap, or dryer sheets.

Sandy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    2. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

    3. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,883
    • Most Online (within 30 mins)
      7,748

    Jrgrimes914
    Newest Member
    Jrgrimes914
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jay Heying
      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.