Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Info About Biopsy- Please Help


fedora

Recommended Posts

fedora Enthusiast

Hi,

I am seeing a dermatologist next week about a mole. Since I will be there already I want to have him look at my rash on my hands. It is DEFINATELY food intolerance related. When I do not eat any wheat, it goes away. When I eat wheat, it comes back. It was diagnosed as dyshidrotic eczema. This is a fluid filled tiny blister rash on hands and feet only. It pops and crusts over. It itches. it can get very bad. The Drs don't know what causes it, but I know mine is dietary related. I was eating more wheat than usual this winter and my rash came back. I read about a lady on here who also has this and hers reacted to gluten and other food intolerances too.

I gave up gluten 2 months ago. No cheating at all. My other health issues that were not effected by wheat have gotten much better. My hands are still breaking out, but just mildly.

I am thinking of getting a DH biopsy done. It has never been done. Regardless, I am never eating gluten again. I know it is a huge problem for me now in othe ways-muscles, joints, mood, digestion.

I feel like if it shows it is DH for sure then it will help me monitor if I get CCed somehow. I have delayed reactions to gluten, not immediate. If it comes back negative, I realize it could still be DH or it could mean I am reacting to something else. I know it takes time for the antibodies to leave the skin, but don't the road it could be helpful.

Any suggestions or advice? Does this sound like DH? I do have it on both hands. This winter I was itching all over without a rash. It was terrible. I do itch on my buttocks, sides, chest, and armpits alot, but nearly as much as before.

About the biopsy, do I need an active blister to get tested accurately? I know to get it next to the rash and not on it. I am worried the little bumps I have will have already crusted over by then. Does that matter?

I have to pay for this myself, so I am not totally sure it is worth it yet.

Thank you!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daveswife Newbie
Hi,

I am seeing a dermatologist next week about a mole. Since I will be there already I want to have him look at my rash on my hands. It is DEFINATELY food intolerance related. When I do not eat any wheat, it goes away. When I eat wheat, it comes back. It was diagnosed as dyshidrotic eczema. This is a fluid filled tiny blister rash on hands and feet only. It pops and crusts over. It itches. it can get very bad. The Drs don't know what causes it, but I know mine is dietary related. I was eating more wheat than usual this winter and my rash came back. I read about a lady on here who also has this and hers reacted to gluten and other food intolerances too.

I gave up gluten 2 months ago. No cheating at all. My other health issues that were not effected by wheat have gotten much better. My hands are still breaking out, but just mildly.

I am thinking of getting a DH biopsy done. It has never been done. Regardless, I am never eating gluten again. I know it is a huge problem for me now in othe ways-muscles, joints, mood, digestion.

I feel like if it shows it is DH for sure then it will help me monitor if I get CCed somehow. I have delayed reactions to gluten, not immediate. If it comes back negative, I realize it could still be DH or it could mean I am reacting to something else. I know it takes time for the antibodies to leave the skin, but don't the road it could be helpful.

Any suggestions or advice? Does this sound like DH? I do have it on both hands. This winter I was itching all over without a rash. It was terrible. I do itch on my buttocks, sides, chest, and armpits alot, but nearly as much as before.

About the biopsy, do I need an active blister to get tested accurately? I know to get it next to the rash and not on it. I am worried the little bumps I have will have already crusted over by then. Does that matter?

I have to pay for this myself, so I am not totally sure it is worth it yet.

Thank you!!!

My husband was recently diagnosed with HD through a biopsy as well, he was told that he should continue to eat gluten as this is the only way they could get an accurate positive reading. They took several samples from the rash on his stomach as well as his forearm. Good luck.

fedora Enthusiast

Hi,

Thanks for the reply. Anyone else?????

Has anyone had a positive biopsy after they stopped eating gluten?

Anyone else just have a rash on their hands that had a positive biopsy?

Alona Newbie

Hi, I haven't had my biopsy yet, will be in less than 2 weeks though.

I've read someone on a message board say you need to be eating gluten for 6 weeks before the test; however, I've also read articles that say the IgA can stay in your skin for months. I suppose it depends when you have your biopsy, I decided to go gluten free as of Wednesday to see what happens since it's only 2 weeks away.

From what I've read the biopsy is supposed to be done on healthy skin NEAR the rash site, not actually of the rash site. I've also read that iodine can induce the rash, so you could try putting a little medical iodine on your skin to see what happens. I haven't tried it myself though.

2kids4me Contributor

my experience with biopsies is from clinic situations. Prep of skin is minmal as prep solutions can affect biospy results. With skin, we take a minimum 5 biopsies. 2 from active lesions, 3 resolving lesions, an adjacent area of normal skin, and samples are taken from multiple sites on the body (anywhere lesion is found).

Do not try and use iodine to induce a reaction - it may appear microscopically as an inflammatory reaction to iodine / allergic reaction to iodine.

The skin often shows lesions as systemic response to foods / inhaled allergens etc. they can also be contact lesions (reaction to fabric softeners, laundry soap, or dryer sheets.

Sandy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,544
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.