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Isn't It Ironic...

luvs2eat

By luvs2eat
in Coping with Celiac Disease

Recommended Posts

minibabe Contributor
minibabe
Posted

I was always the one in my family to do all of the dessert baking. I would make at least 10 different cookies for each holiday and this was my first christmas with out any cookies. But I told my family that it was to tempting and I would never bake somthing again unless it was edible for me.

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celiac3270 Collaborator
celiac3270
Posted
celiac3270, I just had a gluten-free frozen pizza from Amy's---plain cheese, but still pretty good.

I've tried gluten-free replacements...I think I like Chebe the most so far, but right now acidic foods really bother my stomach, so I haven't even had a gluten-free pizza in months....which in itself doesn't entirely replace the old pizza. Thanks, though :D

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Cynical,

Swiss Miss Hot Chocolate is gluten-free.

I called the company..double check if you want -- it has been good to me.

mela14 Enthusiast
mela14
Posted

My dad is a baker. I grew up in an Italian bakery!!! I worked there after school and during college to make money. I worked in the back helping dad to bake things and in the front catering to my customers! It was hard work but I loved the sense of being with the family and working! The hoidays were the best! We made so many differnt types of bread, rolls, sweet bread, muffins, pastries and cakes. Of course I would treat myself to something every day and when dad made a new recipe I had to try it! My brother followed in his footsteps and has 2 bakeries and a bread factory...dad works with him. He's 72 and still going. It's his passion. The other day I called him for a recipe and tried to subsitute potatoe flour for the regular flour. What a nightmare! It was horrible! I had to thorw it our. Each week I've attemted a new recipe and each week it was not edible!

maybe I can get my dad to work on creating something that I can eat.....just a dry bisquit will do. The problem is that in addition to the gluten ...I can't tolerate, milk, soy and eggs!!! I tried adding the ener-g products but I just couldn't get them right!

Does any one have a recipe for something sweet that I can get my dad to make for me?

I haven't attempted the bread yet so if you have any suggestions please let me know!

I'll always miss going into the bakery and not being able to try something....but just walking in there and connecting with my famiy is fun enough! I love the energy there! I just have to say no when they want me to sample things!!!!!!!!!!!!!!!!!

thanks,

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      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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