This Gene Is Inherited From Where?

[azedazobollis]

Someone told me that being gluten intolerant is inhereted from the mother's genes? Is this true? My middle daughter is the gluten intolerant one. Hmmm. wondering if I should cut the gluten myself and see if I have any obvious changes? I don't have any health issues since I have lost 70 lbs (weight watchers). What do you think?

[darlindeb25]

think i did read somewhere that more women have celiacs then men, but that may only be because more women will go to the doctor then men ---as for the gene--i never heard that one--i dont think it matters who carries the gene--while reading this forum--i dont think celiacs is picky about who it takes--men, women, teens, elderly, babies, toddlers--not choosy one little bit deb

[MySuicidalTurtle]

At my first support group meeting I met a man with Celiacs. . .he came from a line of men who had it. So, I do not belive there is any truth that women are the gene passers.

[lovegrov]

Not true.

richard

[tarnalberry]

Celiac disease is not a sex-linked condition - the gene can come from either parent (or both).

[3kbab]

I was told that it is from European decent, and has nothing to do with male or female. I am the only one as far back as my great grandmother could remember who has had this. No other blood line or records indicate that anyone else has carried this. On both sides of my parents.

I am the only one

Kristy

[Guest ~wAvE WeT sAnD~]

Kristy---

Don't feel bad--I have no clue where my gene came from, either. Someone suggested that I have my grandparents' remains tested (two had Celiac-like symptoms, one being unexplained secondary cancer), but I'm not interested in disturbing graves.

I am the only Celiac in my family.

[MySuicidalTurtle]

My Mother has Celiacs, so I know where I got mine from.

[Maggie1956]

Kristy---

Don't feel bad--I have no clue where my gene came from, either. Someone suggested that I have my grandparents' remains tested (two had Celiac-like symptoms, one being unexplained secondary cancer), but I'm not interested in disturbing graves.

I am the only Celiac in my family.

Yes, it is the same for me too. I'm the only known celiac in my family as well.

I think my Dad was a celiac. He died this past August 2004. There is no way I'd have his body exhumed either. His two brothers, also deceased, had "problems with their swallowing". My Dad and one of these uncles gagged on food a lot while eating.

I reckon that was a symptom of celiac disease. I do the same thing. So, I believe that either sex gets it, and passes it on.

I also noticed that you have limitted caffeine? If I have more than a couple of cups of instant (I'm Australian ) I end up with stomach cramps.

[lovegrov]

A couple of points:

If you have a child with celiac and you haven't been tested, you should be. ALL experts recommend that ALL first-degree relatives be tested, even if you don't have symptoms. All mine were and my father was positive. Siblings, parents and children should all be tested.

Unless you have all first-degree relatives tested for the genes, it's impossible to know if you're the only one in the family with it. The vast majority of people with the gene never develop celiac.

richard

[pturse]

I have it and my brother and father do not (or so they say because they have not been tested). They show no signs. My my mother's sister has it.

I heard that lack of breast feeding may play a huge role. That the milk from a mother can help maintain and strengthen a babies intestinal wall. Also, when mothers do not breast feed and use formula, the formula contains a lot of gluten which is too harsh for a babies intestinal wall. They did a study some where and came up with this theory.

It makes sense because my brother was breast fed and does not have it. I was not because my mother had issues and I have it. Unfortunately my mother passed away when I was 16 and will never know if she had symptoms herself.

[MySuicidalTurtle]

Can you show me this study. To me that theory doesn't make any sense and I'd like to see what they are saying.

You should remind your family that just because they don't have symptoms doesn't mean they don't have it.

[pturse]

I heard it on an NPR radio program in Sacramento.

Here is the link to the web page where you can listen to the program.

Open Original Shared Link

And it makes total sense to me.

And there is no hope telling my Italian father that he can no longer have bread, pasta and beer. He is the healthiest man I know for his age and yeah I know you don't have to have symptoms to know you have the disease. Unfortunately I did have symptoms which is why I got tested. If I could only turn back time . . .

[MySuicidalTurtle]

I am listening now. . .

[celiac3270]

Yes, I heard that on the radio a couple weeks ago

[MySuicidalTurtle]

I finished listening.

When asked what could prevent/delay Celicas the doctor said there was a Swedish epidemic of Celiacs in children and that when the mothers then breast fed and got rid of gluten in the formula the epidimic stopped. . .that makes no sense. . so I looked up things for the research the Swedish did and they said:

"This epidemic pattern is quite unique for a chronic disease of immunological pathogenesis, suggesting that prevention could be possible."

Now, that to me sounds like this was a special case.

Later, he said that children who are breastfed will develop Celiacs when they get older and that it would be milder.

There isn't a real way to do research on Celiacs, unless you have a family line of it, because not everyone develops it. The family lines can be seen. Not everyone who wasn't breastfed develops Celiacs. It is something you were born with, so even if having been breastfed you would have developed it. Remember that correlation is not causation.

[MySuicidalTurtle]

In 1991 the Sweds then started this study:

Open Original Shared Link

Looks like it says. . .those infants who were breast-fed were at a lower risk for celiac diease. . .some of the ones who were not breast-fed developed it sooner. . .and those who developed it and were breast-fed were diagnosed before the age of 2.

I think the studies being done now, with family lines, will be much more helpful.

[pturse]

I am not saying everyone who wasn't breastfed has celiacs. And I cannot understand how it does not make sense to you. But oh well.

[MySuicidalTurtle]

I know that's not what you are saying. . .however, it does sound like you think you're not being breast-fed is a contributing factor with you having Celiacs.

It doesn't make sense to me because Celiacs is not something you develop. It is something you are born with. That mean that you would have had it if you were breast-fed or were not.

Being breast-fed can delay the start of symptoms, but not prevent you from having Celiacs.

[Guest ~wAvE WeT sAnD~]

Maggie1956:

My caffeine tolerance has improved...I can only have a a few ounces (less than the standard cup size) of coffee or I will have a reaction to it. I become emotional and hypersensitive when I drink too much caffeine.

[tarnalberry]

Actually, celiac IS something you develop. Many people who have the genes for it do NOT develop celiac. It's not caused soley by genetics, but an environmental trigger is required as well. There are a lot of theories on what the trigger(s) may be, though no conclusive evidence just yet.

[MySuicidalTurtle]

"an environmental trigger is required as well"

Just like you said. . .you have the gene and the triggor. . .

That goes along with what I was saying. . .not beaing breast-fed can bring about it faster but it not the reason why you got it.

[celiac3270]

Right--there's a very good chance the person would've gotten it regardless. I wasn't breastfed and I probably developed celiac around 6-8 years old. Being breastfed might have put it off awhile, but I think I would've eventually triggered it somehow.

I guess it doesn't really matter why I--or anyone--developed celiac. However it came about, we all have it and we can't change anything that happened in the past, but just deal with the disease and the diet--I haven't read the whole thread, so I'm not total up to date on the conversation.......I don't really know what i'm saying anymore...rambling

[Maggie1956]

Maggie1956:

My caffeine tolerance has improved...I can only have a a few ounces (less than the standard cup size) of coffee or I will have a reaction to it. I become emotional and hypersensitive when I drink too much caffeine.

Jill, that's the way it is for me too. I've cut down to just one mug of instant coffe a day. Thanks for the info.

[angel-jd1]

I ran across an interesting thing earlier. It is coffee made from soy beans instead of coffee beans. The website is here: Open Original Shared Link I have no idea how much it costs, or how it tastes, but might be something to look into if you are having troubles. It says :

But be careful!

Not all Soy Coffees are the same. Only Soyfee is guaranteed to have

No Pesticides

No Insecticides

No Caffeine!

No Artificial flavors, Colors or Preservatives

No Tannic Acids

No Barley

No Carbs

No Sugars or added sweeteners

Accurate nutritional values

Kosher Certification by KO

No glutens

-Jessica