Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Be Eating Gluten To Be Tested?


DMarie

Recommended Posts

DMarie Apprentice

Hi,

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator
I
tarnalberry Community Regular

Yep, you need to be eating gluten to do blood tests (or biopsies) for it.

Dustyman Newbie

Hi. I think I need some help...quick. Many years ago an allergist told me I had a mild wheat allergy. I didn't pay a whole lot of attention to it until recently when my symptoms got totally out of control. Told my GI I thought I might have celiac disease and I am going to have blood work done this Wednesday and a biopsy the following Wednesday (have an endoscopy yearly for another digestive problem). Anyway, in early December I stopped eating anything with glutin and I feel amazingly better. The problem is, it occurred to me that perhaps my blood work and biopsy will turn up negative because I've changed the way I eat. Checked with the doctor's office to see if I should start eating wheat again for these tests and they told me it's not necessary. After reading the postings on this site, I'm really nervous that I'm going to end up with negative results. What say you all? I don't want to do it, but if it means positive versus negative results... Obviously, at this point I don't have a month to do it, but I know what some of my worst triggers are.

By the way...I am thrilled to have found this site! Thanks for any input.

Carol

MySuicidalTurtle Enthusiast

If the diet is working well for you you can stick with it if you'd like but if you really want the test diagnosis then should eat gluten.

celiac3270 Collaborator

Your other option is Open Original Shared Link (depending on how long you've been gluten-free). You can order a test kit for celiac and you'll get accurate results as long as you haven't been solidly gluten-free for a few years....and I assume you haven't been gluten-free for 4 years or something :)

P.S. It's unlikely that your doctors would accept Enterolab, but many here have used it and been very satisfied. ;)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,583
    • Most Online (within 30 mins)
      7,748

    Caleb.rice
    Newest Member
    Caleb.rice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.