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Furthing Testing


beach

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beach Newbie

My sister has celiac and my question is this. For the past month I have had nausa and lose stools and a very rumbling stomach, especially first thing in the morning. I also have a lot of acid reflux, nervousness and dizziness (although the dizziness may be from the fluid my doctor said is in my left ear). I also have occassional night sweats and I can't sleep at night. I've also lost my appetite and have lost 7 pounds in the last month. (my doctor said it's just from not eating) He did blood work, although I have not heard back with the results, he said he would run the test for celiac as well. However, because I haven't been eating much I'm afraid the test will come back negative. If it does, should I pursue further testing? My doctor seems to think all my symptoms are related to anxiety. I know my chances of having celiac are only 10% but I'm curious. THANKS!


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lovegrov Collaborator

Top celiac rexperts and the NIH say ALL first-degree relatives should be tested. My whole family did this and my dad, with no symptoms, was positive on everything.

richard

SherriRoy Newbie

Anxiety might be the cause, but it doesn't hurt to check out celiac. I got celiac disease from my mothers half brother...so even though he's distant it is totally possible. Since it is your sister...the blood test is a good idea. I turned out half positive and half negative to the test...so they weren't initially sure if I had celiac, but with the biopsy it did show damage.

You do have a lot of symptoms that I have with celiac disease..and I even have IBS. So all aspects are worth checking out. Once you start feeling better, that might help with the sleeping problems.

Hope this helps,

Sherri

plantime Contributor

Since your sister has it, you should definitely get tested. My sister is taking my biopsy results to her doc and asking for the tests, since celiac is genetic. Your symptoms could be anxiety, which seems to be the diagnosis of choice these days, but they could also be celiac. I went to my doc about a severe headache that originated in my right ear, she said it was anxiety. Two doctors and three rounds of progressively stronger antibiotics later, the deep ear infection finally cleared up and the headache went away. Anxiety is not the cause of everything that ails us!

Carriefaith Enthusiast

You should ask your doctor to get tested for celiac, since your sister has it and because you have a lot of the symptoms. It may be just anxiety but it's better to know for sure.

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    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
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