Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Head Twitches


Mr. Peppa

Recommended Posts

Mr. Peppa Newbie

Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

Mr. Peppa Newbie

Whats up with all the quotes... they dont really help me :huh:

Lemonsieur Newbie

If indeed the smoking is causing it, it can take a while before it is completely out your system, and the side effect goes away.

Medications could possibly be the culprit as well. The asthma inhaler albuterol would give me the same head twitch only it would jerk to the left side. It would also give me shaky hands, roaming muscle spasms, and nightmares.

After I stopped taking albuterol it took a couple of months for all the symptoms to subside.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

Mr. Peppa Newbie
Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

ravenwoodglass Mentor
I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

I find your comment about swaying very telling. I did this for years before I was diagnosed and it stopped within a couple of months gluten free, as did the tapping foot (I can't do the fast tap even if I try now but was never completely still since I was a child). I think you should make real sure you are gluten free for a while, I would go six months since neuro problems can take longer to resolve. The reason why I suggested a sublingual B12 is because your body may not be able to absorb and utilize it when it goes into the stomach. The sublingual is absorbed by the mucous membranes in the mouth and goes right into the bloodstream there bypassing the gut. B12 is needed for proper nerve function. It helps the nerves fire and pick up the way they are supposed to. Misfires can cause the sort of thing you are experiencing and they can be progressive.

As to the idea that smoking pot did this, it is highly unlikey. I have done a lot of study over the years on the effects of drugs, I taught a drug, alcohol and sex education and prevention program and have also done a great deal of research. I have never heard of an effect like that from pot. However many of the rolling papers that are used to smoke it have gluten. Gluten is another molecule that is absorbed by mucous membranes, when you smoke a joint you are absorbing the gluten the minute it touches your lips. If however what you are talking about smoking is crack or meth, well that is another story. Those could very well do damage to the nervous system that would result in the type of effect you are having. I don't think you were referring to those substances though.

The best thing you can do is to do a strict trial of the diet and at first you need to avoid gluten containing alcohols and vinagers. You can challenge them later when you are well but many with neuro symptoms are sensitive to them and for complete resolution of your symptoms you may need to avoid them also.

It also sounds like you started smoking suddenly, was there a reason for this? Were you under a lot of stress? Had you been ill? Did something happen that caused you to look for relief from the world? Celiac may be triggered by a severe emotional or physical stress. You simply may have triggered the celiac at about the same time.

Mr. Peppa Newbie

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Eric-C Enthusiast

Cut out the carbs and sugar.

I get neurological problems like that. Hands/arms shaking and its a combination of things.

Its an incredibly long story but basically if I get myself really screwed up with gluten the sugar/carbs go right into my blood stream, kind of like leaky gut.

I had it happen last week to me. Sugar free(by choice for weight loss) and I went and accidently ate a ton of gluten...followed by a lot of simple carbs and sugar which I usually do not have.

Woke up shaking and couldn't stop it. Hands, arms, muscles in the neck...

You can either wait for your insides to heal and you'll start absorbing it properly and it'll go away or cut that stuff out, wait for it to heal and slowly add it back in.

It takes a while to go away, like 4-5 days for me but if you keep eating the carbs/sugar it takes longer.

ravenwoodglass Mentor
Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Every body is different, as is every bag of combustable materials. It is hard to know for sure whether or not something has been added although it is not common to spike pot. If others you are smoking with are drinking beer or smoking cigs that can contaminate the bong or pipe, just like if your significant other is drinking a beer and you kiss.

Sometimes we just don't know what caused an excaberation, it can be hard to pinpoint. It is also possible that for you pot is neurotoxic to a greater extent than the regular population, I have never heard of an effect like that but it doesn't mean it can't occur. I would stay away from the herb and alcohol for a bit until you are yourself again.

Also you say you have been gluten-free for a long time, does this include your toiletries, shaving creams, soaps, shampoos, lotions etc? Are you consuming gluten free grain alcohols and vinegars? Many with neurotoxic effects from gluten are unable to tolerate those although a lot of places will call them gluten free.

As for the embarrasment, try standing in front of a class of 30 11 year old boys with a male teacher and discussing nocturnal emissions. The teacher was under the desk before I was halfway done. :lol:

Edit: I do want to add that if this continues you really should get a second opinion, preferably from a neurologist. The doctor that was blaming it on 'nerves' and medicated you with an psychotropic without looking for a physical cause did you a disservice.

VioletBlue Contributor

Yeah, well, here's the fun question. Pot can get cut with all sorts of things. Do you truly know what's in yours? It's not like it comes with an FDA approved ingredient list :P

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Mr. Peppa Newbie

so if it was spiked, and this is the after affect, does it take time to wear off?

fedora Enthusiast

I live in a area with a unusually high amount of pot smokers. I have seen teenagers, pregnant women, nursing women, adults and seniors smoking. I have heard, but never seen, of kids smoking here. I have never heard of anyone starting to bob or shake from pot. Some people do get amped up from it. It is more of an upper than a downer for some. No bobbing though.

It does take a month for pot to leave your system. Speaking form someone who use to smoke alot, but hasn't in years, it took longer than that for the total effect to be removed from my body. I can not smoke. I have an autoimmune reaction to pot, but I didn't use to when I was younger. I had a few events in my life cause a change in my body. Although it is unlikely the pot itself causes this, it could be. You may have developed a reaction to it that will stop when it eventually leaves your body.

I have never heard of pot being cut. What I have heard of is Mold and pesticides and fertilizers. Do you know where it came from? Pot can mold. When it does it discolors. You may not notice this if it was Brick. Is it from Mexico? They use heavy pesticides. Non organic growers will use chemical fertilizers and pesticides in the US too. You can't wash pot to cleanse them off.

I have heard of people smoking laced pot, but you would definately know. They had PCP trips for days afterwords. This was in the late 80s early 90s though.

I do hope this subsides for you. If not PLEASE see a neurologist. I wouldn't take your drs word for it. It could be totally unrelated to pot, but the High triggered it more. Now it has just showed itself on it's own.

  • 8 months later...
drakey Newbie

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch and i could not stop it so i stopped weed and about a month after stoppin weed the twitchs stopped. but recently they have started up again and i have not smoked weed in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

drakey Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

ravenwoodglass Mentor
hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

You need to see your doctor and most likley a neurologist. This could be caused by a number of things including reactions to some meds. If you are on any prescription meds make sure you let you doctor know this is happening ASAP.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.