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Dang! My Neck Hurts!

ellen123

By ellen123
in Coping with Celiac Disease

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ellen123 Apprentice
ellen123
Posted

Well today for only the second time since going gluten free in early February, my neck is starting to throb. I am so bummed out and puzzled, because the first time it happened, I could clearly trace where and how I got glutened. This time, I haven't eaten anything at all different from the things I've been eating all week -- all of which I've been careful to assess as gluten-free -- except for a big latte I got at Starbucks today. I've had them before with no problem. Is there somehow a chance I got CC'd by the latte? If not, is there any reason I would have a symptom flare up out of the blue? I realize that the many years of damage to my nervous system couldn't have completely healed in a month, but why would my neck just start hurting (in the same place, in the same way as before) for no reason?

Do any of you get relapses when you can't trace it to an accidental glutening or cc? Thanks.

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YoloGx Rookie
YoloGx
Posted
Well today for only the second time since going gluten free in early February, my neck is starting to throb. I am so bummed out and puzzled, because the first time it happened, I could clearly trace where and how I got glutened. This time, I haven't eaten anything at all different from the things I've been eating all week -- all of which I've been careful to assess as gluten-free -- except for a big latte I got at Starbucks today. I've had them before with no problem. Is there somehow a chance I got CC'd by the latte? If not, is there any reason I would have a symptom flare up out of the blue? I realize that the many years of damage to my nervous system couldn't have completely healed in a month, but why would my neck just start hurting (in the same place, in the same way as before) for no reason?

Do any of you get relapses when you can't trace it to an accidental glutening or cc? Thanks.

Just wanted to say that the last time I got CC'd was when I got tea at a cafe. The food server had just made someone else a sandwich. The same kind of things may have happened to you.

I am now more than a little paranoid about getting anything at a restaurant or cafe. I carry my thermos and food everywhere so I won't miss out on socializing and at the same time not starve.

jerseyangel Proficient
jerseyangel
Posted

My guess is that you got cross contaminated at Starbucks--the person who made your latte most likely had just handled a pastry for someone else.

I go to Starbucks regularly, but I drink tea (coffee doesn't agree with me). I always ask for my tea bag still in the wrapping--before I began doing this, I got glutened once--not again since.

I get the neck ache when glutened, too. It's not fun :( I hope you feel better soon!

Takala Enthusiast
Takala
Posted

Friends don't let friends drink Stargluts. :ph34r:

I know theoretically there are supposedly safe gluten free drinks at Starbucks, but.... I don't do the mixed drinks either anymore after one two many mystery migraines. If I must drink something from them I want to see the teabag (they used Tazo and some of the Tazo teas have gluten, and they've even given me the wrong teabag) or I want to just put the plain coffee in the cup myself, put the half and half in the cup myself, and not let them otherwise touch it. And I react to their soy milk (don't ask me why, I don't know, I just do. I assume the brand they use has some sort of cc ) so I don't do that stuff with them anymore either.

Exasperating. As so many other people want to take one to Stargluts all the time.

The other really frustrating thing for me recently was there was an all night coffeeshop between the coast and Sacramento that used to be safe for me to get mixed coffee drinks at, and they were very good, and we used to stop there during the drive if we travelled on the weekend. The last time we stopped there, it was "under new management." The place had been redecorated. I won't describe the decor exactly, but it was a type of place before that was a student study hangout, very quiet, lots of people intently reading text books, drinking coffee, and they had coffee I could drink, and actual snacks even I could eat, like fruit, etc. There was also sandwiches, donuts, and pie for the regular eaters. The fruit was in a separate display. (does this sound nice, or what?!) It was friendly. Now there were warning signs NO OUTSIDE FOOD TO BE BROUGHT IN OR CONSUMED. IF YOU WANT THIS SHOP TO STAY OPEN, BE A CUSTOMER. And the display case was full of nothing but .... ramen noodle soup snacks. And the entire display of candy bars, including ones even we can eat, was gone. And there were a bunch of plaques on the wall with religious sayings, not the sweet ones but the stern ones. And the entire atmosphere was different.

And I got a coffee drink, and I got glutened really bad. Arrrrrggggghhhhhh.

I seriously wonder just what in the world people who run businesses are thinking some times. Do they honestly think college students intently studying and travellers would prefer nothing but salty old ramen noodle soups with their gluten coffee drinks ? :blink:

gluten15 Apprentice
gluten15
Posted

Usually when I read through a topic..something someone said will trigger a thought.

Pertaining to the soy milk at Starbuck's.

Here I go again on my carrageenan rant..I do so because I can react to this like I do glutlen..D

I believe Starbuck's uses Silk Soymilk..which does contain carrageenan..which can cause digestion distress.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
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