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roxie

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roxie Contributor

Hey to ALL who wrote me back. I have not totally learned how to use this site yet, and I couldn't figure out how to reply back to individual messages. I just wanted to say that I REALLY APPRECIATE all of the positive support I got. It made me feel so much better about my diagnosis. I still think it's going to be hard - but I have a much more positive outlook now. Thanks again. Roxie


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Lisa Mentor

I'm glad that you're feeling better. Every day gets easier. :)

oceangirl Collaborator

Good job.

Believe me, we all understand how frustrating this journey is. One day at a time. You will feel well and be well sooner than you think. And you will have gifts to offer others...

lisa

Glutenfreefamily Enthusiast

Welcome to the board. It does get easier. Its hard on everyone at first. My hardest part to deal with was the loss of convenience. After my initial diagnosis we found that my daughter has gluten intolerance through enterolab. We thought she was a fine healthy little girl but after going gluten free by default due to me, alot of things like whining and temper tantrums went away. She occasionally would get a few bumps on her butt and we never knew what they were but now it only happens if she is accidentally glutened.

I always bring food with us now everywhere we go. Find some good lunch coolers (lands end has some nice ones). I also keep cake mix and a few ingredients for frosting on hand for parties so its quick to whip one up.

When I figured out what my intolerances were all my back aches that I had for over 22 years, they started when I was 13, have almost completely gone. I do have degenerative disc disease but on most days you wouldnt know it about me anymore. I hope you get as great of a blessing with that as I have.

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      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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