Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help.. I Need Support Please


shae22

Recommended Posts

shae22 Newbie

Hi, I need some moral support. I found out I am celiac a little over a year ago... but for some reason I seem to tell myself that I"m not.. especially when I feel good. So I eat gluten and I pay for it. I use to get D but now it's constipation and with in days I am sick (cold like symptons). Not to mention that bloated tummy...yuck. Why do I do this to myself??? Then when I'm sick I just keep going on eating badly. Am I the only one with no will power??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

I had been off milk and wheat due to 'allergic reaction' as an infant, and I'd thougth for years that i'd feel better if I quit them. Finally this past fall, i was ready. If you arent ready yet, you arent ready. However, realize that the longer you eat gluten, the sicker you will become, the more likely you are to get secondary problems (including cancer) and the longer it will take for you to heal once you make the comittment.

If you do want to try, just make sure to get yourself substitute foods that you really love. Be prepared with your own treats when you go out. Dont buy the stuff you love and keep it in the house - make your family eat what you eat, as much as possible. Look at the food, and imagine how you'll feel tomorrow (that always works for me!).

I have heard there are lots of folks who cheat ... many of the ppl here were so very sick for so long, they have serious fear of that suffering keeping them from it. No one can tell you what to do . . . its your body and your choice .. .

flourgirl Apprentice

I know it's hard to change habits, and to "give up" many foods that are tied emotionally to our feeling of and need for feeling of well being. I think you have to convince yourself on both conscious and sub conscious levels that these foods are not good, will not make you feel good, and as a matter of fact are poison to your very existence! I tell myself, when tempted, that this is rat poison. I NEVER EVER want to feel this sick again, nor will I do anything to endanger my survival as a whole, healthy human being.

I would advise that you read everything you can. Look at all of the associative manifestations of Celiac Disease, so that you can make an informed choice not to expose yourself to these crippling problems. I look at my mother, who has been diagnosed years ago with IBS, who went on to have arthritis, fibromyalgia, lupus, several miscarriages, and finally breast cancer, and more. I cry to think that with the information we have today....she may have been able to avoid being so ill, and having so much pain for most of her life. I will not be in that position. Unfortunately, I can't convince her to change her ways, she thinks she's too old at this point to do anything different. In my mind, anyone who has the information, and in light of the results, really has no options.

If you are able.....take the time to reflect why it is that you are resistant to change. Is there anything in your psyche that gains something from being sick? It can be hard to admit something like that, but it happens. You may need time to really understand the ramifications of eating "poisons", to convince yourself that you can be healthy and happy without those things. Set a goal, even if it's only for today, each day, to eat only those things that are good for you. In that way, you can develope new "habits", one day at a time. Hope this helps, even a little. I'm pulling for you!

lizard00 Enthusiast

Welcome to the forum!!! Glad to see you are using it for it's purpose: support

I understand about the eating it and then eating more. Back in Dec, I ate some pizza. This was when, even though I knew that gluten was bad for me, I didn't know if I had celiac or not, so I figure it was ok. Then, as I felt bad, I ate more pizza the next day. Because hey, I already feel bad, who cares! I'll just eat more because I like it and I already feel bad, so if I'm going to feel bad, I might as well eat something that tastes good. Sound familiar? LOL

But, you do have to be ready to make a change. You have to finally decide on your own that you feel bad, you're tired of it, you know what to do, so you're going to do it. It's like quitting smoking, until you decide to quit for yourself, you fail.

I would encourage you though, to make sure you fully understand the ramifications of ingoring your illness. It's not pretty down the road, and it would be awful to carry that regret. It seems totally overwhelming at first, but it becomes second nature. The temptations get less and less with each day that you feel better. And eventually, the gluten-free bread doesn't taste so bad. :D

Hope you feel better soon!!

Respira Apprentice

I used to do the same thing, I finally realized that I did this when I was feeling deprived, feeling sorry for myself, feeling how unfair it was, feeling it can't be true...etc. But it normally would start with feeling deprived. I have found that having special treats on hand has helped. When I am feeling deprived I either have a treat or do something special for myself. I also talk out loud to myself when I am tempted to eat something I shouldn't ie: "Have you lost your mind?", "oh great! Let's be sick for the next week, that'll be fun!" etc.

shae22 Newbie

thank you all for your advice. I will take it to heart and work on getting well. I have gone off gluten for about 6 months back when I first found out and man I did feel like a different person. It's just so easy with a husband and two kids who can eat anything to stay off gluten. But I am going to take it one day at a time and I am going to hit the health food store today for some gluten free treats. I also found gluten free donuts online..... who would have thought?? Now if only they made gluten free pizza that tastes as good as the pizzeria type. Thanks again for your support.

flourgirl Apprentice

Did you know that you can have Pizza? Gluten Free Pizza? I have tried the mix to make the dough and added our own toppings. It's not so bad. I'm looking for a recipe for pizza dough that's closer to the "real" thing...eventually I'll find it. Look at it as an adventure....keep trying all the "new stuff" until you build an arsenal of all of the things you like. Bet you find lots of new foods that you like just fine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
kitten37 Newbie

I am a HUGE foodie and Italian to boot. I tried to go off gluten about 2 years ago after a specialist suggested it might "help" but not in giving me a "this is what's wrong with you." In that time I felt so much better but as time went on I slowly started eating things I shouldn't have....remembering the feel/taste of certain things and just being plain lazy about it. Trying to deny what was what.

I have just re started not eating the things I shouldn't and the temptation for the bad things is always there because that's what is easily available and what westerners associate "comfort foods" with.

However there are soooooo many more options out there for people who don't like to cook and for those who do the opportunities are endless to make yourself super tasty treats and meals so you don

Guest hightop girl

I think you nailed it! We (or maybe just me) thought food was life, but it isn't. I have had to make that brain shift in the last few months from living to eat, to eating to live. There are lots of things I used to like that the gluten free substitutes just don't do justice to. At first I thought I would really miss them, but I am trying to use this as a time to try new foods, things I never thought about liking. t

I do miss comfort food when I am stressed. My daughter had her ACL reconstructed last week. We ordered pizza for her and my husband and I had a salad. I thought I might come completely unglued just from the smell, but in the end I lived. I hope this gets easier with time.

curlyfries Contributor

I totally agree hightop girl! I have been overweight for a long time. Before I knew what was wrong with me, if my stomach hurt, I would eat something else, hoping it would calm my stomach [usually ice cream]. After I realized my gluten intolerance, I couldn't do it all at once--- I did it in stages. Now that I am gluten-free [and dairy free BTW :( ] I am ready to deal with my weight by that same realization. I just can't put that much importance on something that has been poisoning me. I have not attempted to replace my favorites. I have found new favorites that are healthier. And when I do occasionally get that feeling of being deprived, I go for my new favorite treat----gluten-free/DF chocolate/chocolate chip cookie dipped in peanut butter [maybe two :P !] YUMM!!!

AliB Enthusiast

You have to do a bit of 'psych-ing' up here.

Keep telling yourself that the stuff is evil, it is killing you and you are better off without it. It is deceptively and insidiously poisoning you. You have seen the non-gluten 'light' and are way, way better off than all those thousands of poor people out there who do not know why they are suffering, that all they need to be doing is to not eat gluten.

You are now free.

Just out of interest, I have gone right back to basics to give my gut a real healing kick-start. I have dropped not just gluten but dairy, sugar and most carbs and am just eating plain unprocessed meats, fish and poultry, fruits and veg, honey and nuts and plenty of water - there is plenty of choice within those foods groups. Already, after just 2 months I can now eat eggs and the other day I had some cheese without any problem. Ok so I can't stuff on the 'easy' open-a-packet-and-stuff-it-in stuff any more but so what, I am feeling a lot better off without it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.