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Anyone Ever Done Testing Through Enterolab?


ShayBraMom

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ShayBraMom Apprentice

If tested twice with them so far, once for Malnutrition with my daughter who has celiac disease and once now with my son. his results where:

Tissue Transglutaminase Stool Test

Fecal Antitissue Transglutaminase IgA 45 Units (Normal Range <10 Units)

So, he's pos. for Glutensensitivity- he's also the carrier of the Gene DQ2!

Did anyone of you have the same test, what was the result on it? What is your REAL diagnosis, Doctor wise? Has anyone of you scored lower then that or even higher?

the reason why I'm asking is, on the Website for EnteroLab it says that the average pos. result is 45. My son fall excatly in that score! I"m trying to find out if they just round up or down! EnteroLAB seems credible, but still the Stooltest is fairly new, they are the only LAB doing it and I'm still having the little birdy in my head from somebody questionning here really hard how credible they are!


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confused Community Regular

Well I scored an 24 and have an positive blood test for celiac.

paula

fedora Enthusiast

I had 39 on anti gliadin and 18 on transglutaminase. I had been gluten free for 3.5 weeks and on a restricted wheat diet for years.

Ursa Major Collaborator

My daughter's antigliadin was only 12, but her malabsorption score was 816, which is fairly high. Her blood work was negative, but many symptoms resolved after taking her off gluten (or I should say after she finally cooperated, now that I had proof that there was a problem - she is 16).

Mama Ruthies Rookie

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

  • 2 weeks later...
ShayBraMom Apprentice

The Docs don't like it when Patients already come with their own diagnosis! go see the GI, talk to him aobut all the issues your son has and just SAY that Celiac runs in your family and if he could test your son for it to rule it out, don't tell him aobut the EnteroLab results!

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
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    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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