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Anyone Ever Done Testing Through Enterolab?

ShayBraMom

Recommended Posts

ShayBraMom Apprentice
ShayBraMom
Posted

If tested twice with them so far, once for Malnutrition with my daughter who has celiac disease and once now with my son. his results where:

Tissue Transglutaminase Stool Test

Fecal Antitissue Transglutaminase IgA 45 Units (Normal Range <10 Units)

So, he's pos. for Glutensensitivity- he's also the carrier of the Gene DQ2!

Did anyone of you have the same test, what was the result on it? What is your REAL diagnosis, Doctor wise? Has anyone of you scored lower then that or even higher?

the reason why I'm asking is, on the Website for EnteroLab it says that the average pos. result is 45. My son fall excatly in that score! I"m trying to find out if they just round up or down! EnteroLAB seems credible, but still the Stooltest is fairly new, they are the only LAB doing it and I'm still having the little birdy in my head from somebody questionning here really hard how credible they are!

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confused Community Regular
confused
Posted

Well I scored an 24 and have an positive blood test for celiac.

paula

fedora Enthusiast
fedora
Posted

I had 39 on anti gliadin and 18 on transglutaminase. I had been gluten free for 3.5 weeks and on a restricted wheat diet for years.

Ursa Major Collaborator
Ursa Major
Posted

My daughter's antigliadin was only 12, but her malabsorption score was 816, which is fairly high. Her blood work was negative, but many symptoms resolved after taking her off gluten (or I should say after she finally cooperated, now that I had proof that there was a problem - she is 16).

Mama Ruthies Rookie
Mama Ruthies
Posted

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

  • 2 weeks later...
ShayBraMom Apprentice
ShayBraMom
Posted
  • Author

The Docs don't like it when Patients already come with their own diagnosis! go see the GI, talk to him aobut all the issues your son has and just SAY that Celiac runs in your family and if he could test your son for it to rule it out, don't tell him aobut the EnteroLab results!

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

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  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
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      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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      Fiber Supplement

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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