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Anyone Ever Done Testing Through Enterolab?

ShayBraMom

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ShayBraMom Apprentice
ShayBraMom
Posted

If tested twice with them so far, once for Malnutrition with my daughter who has celiac disease and once now with my son. his results where:

Tissue Transglutaminase Stool Test

Fecal Antitissue Transglutaminase IgA 45 Units (Normal Range <10 Units)

So, he's pos. for Glutensensitivity- he's also the carrier of the Gene DQ2!

Did anyone of you have the same test, what was the result on it? What is your REAL diagnosis, Doctor wise? Has anyone of you scored lower then that or even higher?

the reason why I'm asking is, on the Website for EnteroLab it says that the average pos. result is 45. My son fall excatly in that score! I"m trying to find out if they just round up or down! EnteroLAB seems credible, but still the Stooltest is fairly new, they are the only LAB doing it and I'm still having the little birdy in my head from somebody questionning here really hard how credible they are!

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confused Community Regular
confused
Posted

Well I scored an 24 and have an positive blood test for celiac.

paula

fedora Enthusiast
fedora
Posted

I had 39 on anti gliadin and 18 on transglutaminase. I had been gluten free for 3.5 weeks and on a restricted wheat diet for years.

Ursa Major Collaborator
Ursa Major
Posted

My daughter's antigliadin was only 12, but her malabsorption score was 816, which is fairly high. Her blood work was negative, but many symptoms resolved after taking her off gluten (or I should say after she finally cooperated, now that I had proof that there was a problem - she is 16).

Mama Ruthies Rookie
Mama Ruthies
Posted

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

  • 2 weeks later...
ShayBraMom Apprentice
ShayBraMom
Posted
  • Author

The Docs don't like it when Patients already come with their own diagnosis! go see the GI, talk to him aobut all the issues your son has and just SAY that Celiac runs in your family and if he could test your son for it to rule it out, don't tell him aobut the EnteroLab results!

My at the time 3.5 year old son's anitgliadin was 105 and tissue transglutaminase was 102. His absorption was normal. We haven't seen a GI because one that is recommended in the area doesn't accept Enterolab's results.

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    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
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    • trents
      Positive biopsy

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      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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