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Does This Sound Like Gluten Sensitivity?

marmtown

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marmtown Newbie
marmtown
Posted

Hi guys,

I've been reading several posts in this forum for a while but this is my first post (so im not too sure what to write heheh). I recently became aware of Celiac's Disease and when I read about the symptoms everything started to make sense.

Ive had headaches all my life but the last few years they have been unbearable (usually worse after eating). The fatigue and aches usually goes with them too but it also depends on the day. Also my stomach has been very "sensitive" for the last few years too and I'm always dealing with horrible cramps/gas. I also during this time become lactose intolerant

My doctor gives me a bunch of reasons of what may be causing this but nothing she suggests seems to work and the reasoning doesn't seem to fit (that and I'm getting frustrated of getting a 'its just stress' response). When I read about Celiac's Disease I tried going gluten-free in hopes of some kind of relief and have actually noticed a difference. Is it possible I am just sensitive to gluten, because I am sure it is not as bad as Celiacs. The only thing is that though I feel relief from the bloating and pain I'm worried it's just a placebo affect and in the end I'm not better.

What do you guys think about all this? Any opinions would be great and thanks so much in advance!

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MELINE Enthusiast
MELINE
Posted

Hello

Ok the description sounds like gluten sensitivity (but of course I am not a doc). So I suggest you go on gluten free (but be careful of hidden gluten) and keep it for a while (not for a week. I mean for a month or two) because you are not going to see the whole gluten-free effect in just a few days. And then if you see positive response keep that gluten-free diet.

Have you done blood tests or a biopsy? This could give you the answer (but sometimes a negative answer is not true) and you should do it before going gluten free cause if you go gluten-free and then you make the tests they will probably show nothing.

Headaches, bloating, gas, fatigue, psychological effects, ekzema, loss of toot enamel, trouble sleeping, itching, joint pain etc are some of celiac symptoms. Of course having one or all of them doesn't give you the diagnosis. The most accurate diagnosis is the response of your self to a gluten-free diet.

And...please....I never wanna hear again about psychological bloating.....That was the opinion of my doctor for 12 years and here I am misdiagnosed for 12 years. any way.....

kisses

Meline

lightening16 Rookie
lightening16
Posted

Some celiac people only show one symptom and it may be as simple as anemia... actually that is really not simple but you see what I mean. You don't have to have all the symptoms to be celiac. Some people show no symptoms and only find out because a family member has it and they get tested too.

I would try to stay eating gluten and get the blood test done instead of going off and then going back on again because it really is hard on the system... believe me. After being gluten free the symptoms are far worse than before for some reason.

Good luck

MELINE Enthusiast
MELINE
Posted
After being gluten free the symptoms are far worse than before for some reason.

Good luck

I thought I was crazy......

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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