Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Like Gluten Sensitivity?


marmtown

Recommended Posts

marmtown Newbie

Hi guys,

I've been reading several posts in this forum for a while but this is my first post (so im not too sure what to write heheh). I recently became aware of Celiac's Disease and when I read about the symptoms everything started to make sense.

Ive had headaches all my life but the last few years they have been unbearable (usually worse after eating). The fatigue and aches usually goes with them too but it also depends on the day. Also my stomach has been very "sensitive" for the last few years too and I'm always dealing with horrible cramps/gas. I also during this time become lactose intolerant

My doctor gives me a bunch of reasons of what may be causing this but nothing she suggests seems to work and the reasoning doesn't seem to fit (that and I'm getting frustrated of getting a 'its just stress' response). When I read about Celiac's Disease I tried going gluten-free in hopes of some kind of relief and have actually noticed a difference. Is it possible I am just sensitive to gluten, because I am sure it is not as bad as Celiacs. The only thing is that though I feel relief from the bloating and pain I'm worried it's just a placebo affect and in the end I'm not better.

What do you guys think about all this? Any opinions would be great and thanks so much in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

Hello

Ok the description sounds like gluten sensitivity (but of course I am not a doc). So I suggest you go on gluten free (but be careful of hidden gluten) and keep it for a while (not for a week. I mean for a month or two) because you are not going to see the whole gluten-free effect in just a few days. And then if you see positive response keep that gluten-free diet.

Have you done blood tests or a biopsy? This could give you the answer (but sometimes a negative answer is not true) and you should do it before going gluten free cause if you go gluten-free and then you make the tests they will probably show nothing.

Headaches, bloating, gas, fatigue, psychological effects, ekzema, loss of toot enamel, trouble sleeping, itching, joint pain etc are some of celiac symptoms. Of course having one or all of them doesn't give you the diagnosis. The most accurate diagnosis is the response of your self to a gluten-free diet.

And...please....I never wanna hear again about psychological bloating.....That was the opinion of my doctor for 12 years and here I am misdiagnosed for 12 years. any way.....

kisses

Meline

lightening16 Rookie

Some celiac people only show one symptom and it may be as simple as anemia... actually that is really not simple but you see what I mean. You don't have to have all the symptoms to be celiac. Some people show no symptoms and only find out because a family member has it and they get tested too.

I would try to stay eating gluten and get the blood test done instead of going off and then going back on again because it really is hard on the system... believe me. After being gluten free the symptoms are far worse than before for some reason.

Good luck

MELINE Enthusiast
After being gluten free the symptoms are far worse than before for some reason.

Good luck

I thought I was crazy......

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Additional Concerns
      3

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748

    Debruary
    Newest Member
    Debruary
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.