Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Like Gluten Sensitivity?

marmtown

Recommended Posts

marmtown Newbie
marmtown
Posted

Hi guys,

I've been reading several posts in this forum for a while but this is my first post (so im not too sure what to write heheh). I recently became aware of Celiac's Disease and when I read about the symptoms everything started to make sense.

Ive had headaches all my life but the last few years they have been unbearable (usually worse after eating). The fatigue and aches usually goes with them too but it also depends on the day. Also my stomach has been very "sensitive" for the last few years too and I'm always dealing with horrible cramps/gas. I also during this time become lactose intolerant

My doctor gives me a bunch of reasons of what may be causing this but nothing she suggests seems to work and the reasoning doesn't seem to fit (that and I'm getting frustrated of getting a 'its just stress' response). When I read about Celiac's Disease I tried going gluten-free in hopes of some kind of relief and have actually noticed a difference. Is it possible I am just sensitive to gluten, because I am sure it is not as bad as Celiacs. The only thing is that though I feel relief from the bloating and pain I'm worried it's just a placebo affect and in the end I'm not better.

What do you guys think about all this? Any opinions would be great and thanks so much in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

Hello

Ok the description sounds like gluten sensitivity (but of course I am not a doc). So I suggest you go on gluten free (but be careful of hidden gluten) and keep it for a while (not for a week. I mean for a month or two) because you are not going to see the whole gluten-free effect in just a few days. And then if you see positive response keep that gluten-free diet.

Have you done blood tests or a biopsy? This could give you the answer (but sometimes a negative answer is not true) and you should do it before going gluten free cause if you go gluten-free and then you make the tests they will probably show nothing.

Headaches, bloating, gas, fatigue, psychological effects, ekzema, loss of toot enamel, trouble sleeping, itching, joint pain etc are some of celiac symptoms. Of course having one or all of them doesn't give you the diagnosis. The most accurate diagnosis is the response of your self to a gluten-free diet.

And...please....I never wanna hear again about psychological bloating.....That was the opinion of my doctor for 12 years and here I am misdiagnosed for 12 years. any way.....

kisses

Meline

lightening16 Rookie
lightening16
Posted

Some celiac people only show one symptom and it may be as simple as anemia... actually that is really not simple but you see what I mean. You don't have to have all the symptoms to be celiac. Some people show no symptoms and only find out because a family member has it and they get tested too.

I would try to stay eating gluten and get the blood test done instead of going off and then going back on again because it really is hard on the system... believe me. After being gluten free the symptoms are far worse than before for some reason.

Good luck

MELINE Enthusiast
MELINE
Posted
After being gluten free the symptoms are far worse than before for some reason.

Good luck

I thought I was crazy......

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

      What exactly are you taking from doterra?
    2. Xravith
      - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Challenges eating gluten before biopsy

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac specialist...
    4. Dakota01
      - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      This video is extremely informative and explains why I still get sick when I eat these so called gluten-free processed foods. I make every effort to stay away from all processed foods.
    5. Scott Adams
      0

      Why Celiac Diagnosis Still Takes Years—and How to Change That

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748
    Jackir
    Newest Member
    Jackir
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      What exactly are you taking from doterra? 
    • Xravith
      Challenges eating gluten before biopsy

      By Xravith · Posted

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      Awaiting Biopsy results

      By JoJo0611 · Posted

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.