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Does This Sound Like Gluten Sensitivity?


marmtown

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marmtown Newbie

Hi guys,

I've been reading several posts in this forum for a while but this is my first post (so im not too sure what to write heheh). I recently became aware of Celiac's Disease and when I read about the symptoms everything started to make sense.

Ive had headaches all my life but the last few years they have been unbearable (usually worse after eating). The fatigue and aches usually goes with them too but it also depends on the day. Also my stomach has been very "sensitive" for the last few years too and I'm always dealing with horrible cramps/gas. I also during this time become lactose intolerant

My doctor gives me a bunch of reasons of what may be causing this but nothing she suggests seems to work and the reasoning doesn't seem to fit (that and I'm getting frustrated of getting a 'its just stress' response). When I read about Celiac's Disease I tried going gluten-free in hopes of some kind of relief and have actually noticed a difference. Is it possible I am just sensitive to gluten, because I am sure it is not as bad as Celiacs. The only thing is that though I feel relief from the bloating and pain I'm worried it's just a placebo affect and in the end I'm not better.

What do you guys think about all this? Any opinions would be great and thanks so much in advance!


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MELINE Enthusiast

Hello

Ok the description sounds like gluten sensitivity (but of course I am not a doc). So I suggest you go on gluten free (but be careful of hidden gluten) and keep it for a while (not for a week. I mean for a month or two) because you are not going to see the whole gluten-free effect in just a few days. And then if you see positive response keep that gluten-free diet.

Have you done blood tests or a biopsy? This could give you the answer (but sometimes a negative answer is not true) and you should do it before going gluten free cause if you go gluten-free and then you make the tests they will probably show nothing.

Headaches, bloating, gas, fatigue, psychological effects, ekzema, loss of toot enamel, trouble sleeping, itching, joint pain etc are some of celiac symptoms. Of course having one or all of them doesn't give you the diagnosis. The most accurate diagnosis is the response of your self to a gluten-free diet.

And...please....I never wanna hear again about psychological bloating.....That was the opinion of my doctor for 12 years and here I am misdiagnosed for 12 years. any way.....

kisses

Meline

lightening16 Rookie

Some celiac people only show one symptom and it may be as simple as anemia... actually that is really not simple but you see what I mean. You don't have to have all the symptoms to be celiac. Some people show no symptoms and only find out because a family member has it and they get tested too.

I would try to stay eating gluten and get the blood test done instead of going off and then going back on again because it really is hard on the system... believe me. After being gluten free the symptoms are far worse than before for some reason.

Good luck

MELINE Enthusiast
After being gluten free the symptoms are far worse than before for some reason.

Good luck

I thought I was crazy......

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      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
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