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jmcbride4291

Different Symtoms

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I have read that many of us get crampy and vomit. I also have researched and found a variety of symtoms. My children never vomit. However had hair loss, weight prob's, attention,low energy, moody, social, learning and comprehension. Ones immune system is extremely out of wack, and tonsils affected with running a fever each week since 12/07. Also vision, dicorlered bowel, and emotional problems. Does this sound familiar. Is this common to have without vomitting or distension prob's. They even get skin prob's. Just looking for more validaion as if this is wxactly what to expect.

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Unfortunately this disease has many symptoms. My child and I had very different symptoms. Even our reactions are different. I thnk in the end, do a gluten challenge to test the diet is the only way to really "see" what it does for your child.

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Yeah, we (my family) all have various symptoms.

My oldest son, my mom, and myself all get diarrhea and stomach pains, but my youngest doesn't. So far, he doesn't get GI symptoms much at all- his are neuro symptoms.

My mother and I vomit, but my kids don't.

I'm the only one that gets bad heartburn as a symptom... unless you count my brother, who refuses to try a gluten-free diet. <_<

Pretty much the only symptom that we all share is that we've all had horrible problems with our teeth. At my oldest son's first dentist appt, he had TWELVE cavities. And I am a tooth brushing Nazi.

It also affected my kids' immune systems, and my own as well. My oldest son was the first to go gluten-free. In the last month or so before we put him on the diet, he ran an unexplained low-grade fever every single morning. By mid-day, it would fade away.

For the past few years, for all three of us, it's been one infection or virus after another, from fall to spring. This winter has been really good for my oldest son, though-- again he's been gluten-free the longest.


-Sarah

--Son, Lucas, age 7. Gluten-free since May 2007

--Son, Ezra, age 5. Gluten-free 10/13/07. Bipolar tendencies, massively improved on gluten-free diet! He's also allergic to a jillion antibiotics.

--My mother has Celiac Disease, dx'ed by Positive Blood Tests and Biopsy. Diagnosed Sarcoidosis 6/08.

--Myself, Gluten-free since 8/07

Time heals all hurt of heart... but time must be won.

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The range of symptoms is vast - our pediatric GI doc said the symptoms of celiac in children can be much different than adults. We witnessed this first hand.

Both my children are diagnosed celiac - blood work and biopsy positive.

Daughter - migraines, neckache, backache, stomach aches, fatigue, NO diarrhea or vomiting, but had bloated belly, overweight ( Not skinny like the books say a celiac should be!). Gluten free diet : no migraines, WAY more energy, lost the bloated belly, lost weight, lost the dark circles under her eyes.

Son - stomach aches, leg pain, wetting the bed, unexplained blood glucose variations. Stabalized blood glucose readings after gluten free, stopped wetting the bed, no more stomach aches.

As you can see one child had mostly neurologic symptoms and the other had vague symptoms. Interesting finding was that our son had tremendous intestinal damage as compared to his sister - even though his symptoms were "less severe". Also , that his bed wetting stopped after being gluten free about 6 weeks.

The fatigue in our daughter was significant - it affected her behavior (when you are tired = cranky), lots of tears, slamming doors..... she smiles most of the time now! ( I say most of the time cause she IS a teen!!)


Sandy

Type 1 diabetes - 1986

hypothyroid -1993

pernicious anemia

premature atrial beats

neuropathy

retinopathy

daughter is: age 15

central hypotonia and developmental delay

balance issues (rides an adult 3 wheel bike)

hypothyroid 1996

dermatographia - a form of angioedema 2002

celiac 2004 - by endoscopy

diagnosed Aspergers at age 7 - responded very well (HUGE difference) to gluten-free diet

recovered from Kawasaki (2003)

lactose intolerant - figured out in Oct/06

Gilberts syndrome (April/07)

allergy to stinging insects

scoliosis Jan 2008

nightshade intolerance - figured out April 2008

allergy to Sulfa antibiotics

son is 13

type 1 diabetic - 2003 diagnosed on his 9th birthday

celiac - 2004 by endoscopy

lactose intolerant - figured out Nov/06

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