Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Problem


Babygirl6915

Recommended Posts

Babygirl6915 Explorer

Ok, so I am still having problems with my thyroid & have yet to find a doctor willing to do anything about it. According to them it is not enough that I lose a handful of hair 2x a day, am constantly tired & cold, have terrible skin, insanely high cholesterol levels, & have extra body hair creeping up everyday. Somehow they find it


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

While I have not had thyroid issues (that I know of), I have run into info on the subject from time to time. Two things which come to mind are coconut oil, and a zinc picolinate supplement. Coconut oil is great for skin, hair, and nails. Plus it helps to raise thyroid function because it is so easily burned for energy. A zinc deficiency seems to be associated with hypothyroid from the reading I've done. Other nutrients are also involved with keeping the thyroid healthy.

Here's a place to start:

Open Original Shared Link

HTH

loraleena Contributor

Did you just have a TSH test? If so, what was the referance range. It should be between .3-3. Anything over 2 can cause hypo symptoms in some people and should be treated if there are symptoms. Many docs are using the old referance range of .3-5. Also you need to get the full thyroid panel including thyroid peroxidase antibodies. These should be under 20. If high that means you have hashimotos hypothryoidism which is an autoimmune version common in celiacs. Your body is essentially attacking your thryoid! Check out dr.lowe.com. This is my doc and you can do long distance consulting if you have to. Keep trying to find a doc who will listen. Endos are often the worst. Ask your regular doc for the tests. Good luck. Pm me with any questions.

Sugarmag Newbie

I'm sorry you are having to deal with these "less than pleasant" doctors! I've been hypothyroid (and Hashimoto) for about 7 yrs now, and I'm finally now (I think anyways) seeing a good endocrinologist. I don't know much about supplements, as I've always been on prescribed medication for it. I do know that my new doctor who I just saw a few weeks ago, recommends to take zinc picolinate (body absorbs this form better than the other zinc supplement) as well as selenium. He changed my meds up, and is also sending me to the hospital for the ACTH stimulation test, as he suspects some of my symptoms are adrenal related, not thyroid. I will say, my hair seems to not be falling out quite as much..but I'm still freezing all the time! I live in Florida...soooo, yeah...it's not normal! He suspects my coldness has to do with nerve damage, and will be checking into that too.

I would definitely try to get a good selenium and zinc picolinate supplement to start with. I've also heard coconut oil is great like RiceGuy said. Also, taking B12 sub lingual is a good idea too, if you are low on energy and always fatigued. Good luck! If you have any questions...feel free to PM me.

Babygirl6915 Explorer

Ok, so here are my previous test results. Comment away!

Cortisol (Free) - 24.2 (4.0-50.0)

Urine Creatine- 0.92 (0.63-2.50)

Testosterone (Free) - 1.3 (0.1-6.4)

Testosterone (Total) - 23 (2-45)

DHEA- 147 (45-320)

Progesterone level was a 32 in a range of 30-100

FSH- <0.7

LH- <0.2

TSH- 1.80 (0.40-5.50)

T-4 (Free) - 1.1 (0.8-1.8)

Like I said before I am 24 if my age is @ all important. Also these tests are from this time last year when I had only been off of BC for about 3 months. I have seen a huge increase in the severity of my symptoms since that time so I am wondering if the BC was still in my system @ the time of this test.

Babygirl6915 Explorer

Anyone?

Joni63 Collaborator

Hi,

I'm sorry I can't comment on the blood results, but I have just been diagnosed with low serum, ferritin. I've read through tons of information that says if your serum ferritin is low you can lose hair. Your TIBC, UIBC, Iron serum, and iron saturation can all be in normal range.

Have you had any bloodwork for vitamins/minerals lately?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

First of all the TSH range your doc used is old. The new range is .3-3. Even though your TSH shows normal that means squat. This test is highly innaccurate. You need to have many more tests done. There is a whole panel including FRee t3 and some others. You need to have your thyroid peroxidase antibodies checked. These should be less than 20. Elevated antibodies is indicitive of hashimotos hypothyroidism. This is an autoimmune hypo that causes the body to attack your thyroid. It is very common in people with celiac. Your doc should also be looking at symptoms which you have. I have this condition and I work long distance with Dr. Gina Honeyman (type in her name to get her website. I used to consult with both her and her husband Dr. John Lowe. They are not together anymore and each have their own practice. They work with my regular doc. Their websites are extremely informative. Also check out stopthethyroidmadness.com. If your doc won't help leave! It can be hard to find one who won't just look at the darn TSH!! There are lots of threads on here about thyroid that I and others have posted on so check them out also. Georgie has lots of good info. Maybe she will post here also. If treated you should take either ARmour thyroid or Cytomel. The typically prescribed Synthroid does not work for a lot of people. Feel free to pm me with more questions. Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.