Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Constipation For Years From Casein


griffen88

Recommended Posts

griffen88 Newbie

Hello,

I had my gall bladder removed at 18 and still had many stomach issues that never went away. I'm 50 now and about 5 years ago cut out most wheat products with dramatic results. I had non-stop all-day heartburn that virtually disappeared, but have still had to deal with chronic constipation. I always noticed that if I ate cheese, it felt like a brick travelling through my system. I could actually feel it sluggishly making its way through. I had also recently developed a constant burning on the left side, in between my rib and belly button.

My doctor recently did a colonoscopy and a barium enema and found I have a very long colon and diverticulosis... probably all caused by my chronic constipation. I had often gone to the doctors complaining about this problem and wondering whether it was due to dairy, but they always said "No, if it was dairy, you'd have diaharea (in other words: lactose intolerance). They kept saying that I needed to eat more fibre. This was completely crazy as my diet was pretty much as follows: Breakfast a banana, followed later by 2 cut up apples and figs. For lunch usually a salad with some sort of protein. Dinner usually tofu, whole grain rice, more vegetables. In between I was taking heaping teaspoons of psyllium husk with water and drinking about 8 large glasses of water a day. I was soooo bloated and sometimes still constipated even with all that fibre.

I am so grateful for this forum, because there was a post that gave me a clue that my problem with constipation might be caused by the casein protein in dairy products. I quit eating dairy and within a week I started to have normal bowel movements. Pretty much the same diet, but no psyllium husk and best of all, no straining. I also read this book: "The Bowel Book: A Self-Help Guide for Sufferers" by Michael Levitt, which talks in a very straight forward way about different bowel problems and this idea of throwing more and more fibre at constipation will sometimes that making it worse. He offers other solutions for chronic constipation.

The burning pain seems to be disappearing, so I am hopeful in time it will be gone. I know that eliminating gluten was an essential first step, but the casein was also a real troublemaker. The gluten/dairy free diet has literally changed my life for the better. For the first time in 50 years I am finally free of constant pain. So thanks to everyone for posting. It all helps! And I hope if someone with my problem reads this it might help. :) good health to you all!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



truthsearcher Rookie

Thanks for that post.

I too chronic C for years and lost my gallbladder. All fiber acts like a plug in me. I had all the GI colonoscopys and barium studies as well. I have a very redundant, sluggish colon. Food goes through me like jagged glass and a bowling ball and still no bm. Feels like I'm having baby contractions.

Avoiding casein and gluten has improved it but not completly.

Abdominal massage helps as well.

For me I believe Lyme disease is the main culprit. I'm praying as the lyme is treated I'll be a whole lot better.

Thanks,

Green12 Enthusiast

Glad you are finally getting results! Thanks for your post.

I also have suffered with "c" for many years. Psyllium was the worst for me and it sounds like it added to your situation as well.

Magnesium can be very helpful to relax and move the bowels too.

mftnchn Explorer

GFCFSF has helped me a lot too.  I am actually tolerating small amounts of dairy now and still having daily BM; I can't ever remember being this regular before.

The lyme may be playing a role for me but I treated lyme for 6.5 years and had no change in the bowel stuff until the GF diet.  I am quite sure that I am celiac at this point so probably although the two interact the celiac has been the major player for the C.

I am also using magnesium and Vit C; my body is particular about what brand and what form, but this has also really helped.

Recently I was thinking--I never knew I could have BM without straining or whatever; it is so different now.

Nancym Enthusiast

It's been known that dairy can cause constipation. Search for casomorphin in pubmed. Casein breaks down into morphine like peptides and guess what? Morphine causes constipation too.

I always remember my Mom saying that "cheese binds you up". It really did in our family.

Green12 Enthusiast
It's been known that dairy can cause constipation. Search for casomorphin in pubmed. Casein breaks down into morphine like peptides and guess what? Morphine causes constipation too.

I always remember my Mom saying that "cheese binds you up". It really did in our family.

I was going to mention the same thing.

I heard for years, "cheese is binding" :lol:

curlyfries Contributor
I was going to mention the same thing.

I heard for years, "cheese is binding" :lol:

:P Maybe that's why (before gluten-free) I only had slight D problems!(It was more GI related) I LOVE cheese! Now that I'm gluten-free/DF, if I get CC---watch out!! :o


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

Oh my gosh, curly fries, Me too! I went off gluten first just to see the difference. Then I cut out dairy alot. When I ate cheese it totally stopped traffic. But when I had ice cream or butter, the water slide is open for business. :o

My grandmother said "Cheese binds you up"

Now that I am gluten-free/cf my intestines have to totally adjust. They are way more loosy goosy where before they were very slow. My psyllium had gluten in it. No wonder it did not work <_<

truthsearcher Rookie

Mftnchn,

Hi do you mind sharing what Vit C and Mg you found helpful. I've tried all kinds of both to no avail. Very high doses do nothing. The only Mg I found that helped somewhat was 3A Magnesia by Lane Medical. I have to take the full dose of 6 at bedtime to get any affect and this is the complete colon cleanse. :blink:

thanks

BTW I'm GFCFSF as well. On a rare occasion have some sugar.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,155
    • Most Online (within 30 mins)
      7,748

    lfedas
    Newest Member
    lfedas
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.