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Biopsy In One Week

KristaleeJane

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KristaleeJane Contributor
KristaleeJane
Posted

I have a biopsy in one week, and I am 95% sure I have celiac according to my blood work, which came back high for IgA. So I am just having the biopsy as a confirmation. Does anyone know that if I started the gluten free diet now if my test would be affected, my biopsy is on Apr 14-08, and I really don't want to eat like this anymore. I have heard that It can take months to heal, so would a week really matter? Any info would be greatly appreciated. Also where can I buy sublingual tablets, I heard from another blogger I should be taking those since I may not be absorbing any vitamin tablets I am taking.

Thanks

Krista

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happygirl Collaborator
happygirl
Posted

Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

KristaleeJane Contributor
KristaleeJane
Posted
  • Author
Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

Ok well that explains things for me, I will definalty tell him to do that, and he said he can give me an idea of the results right after the test, and then they will be sent away for a more in depth tests. I will post my results as soon as I know

Thanks for your advise!!!! Really appreciate it

happygirl Collaborator
happygirl
Posted

He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

Open Original Shared Link is a great resource for info. Open Original Shared Link talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

KristaleeJane Contributor
KristaleeJane
Posted
  • Author
He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

Open Original Shared Link is a great resource for info. Open Original Shared Link talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??

happygirl Collaborator
happygirl
Posted

Yes, that is the tTG IgA test, which is one of the best/most accurate predictors of Celiac. You are well on your way!

Let us know what else we can do to help.

nora-n Rookie
nora-n
Posted
My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??

I have read some articles where they discuss the numbers on this tissue transglutaminase test, and the latest news is that if the numbers are jsut slightly elevated, celiac is not sure (but we here would say they did not biopsy the right place...) , whereas a high number like yours is definitely celiac.

Forgot where I read that, but found the link at the delphi celiac forum and i might have been a university in canada that publsiched this. The researcher publiching the article was someone's doctor (and she discussed it with him; they did not classify increased lymphocyes and something else I forgot as positive....sounded like they were quite strict in diagnosis so the lower ttg numbers did not correte sith celiac...)

nora

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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