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KristaleeJane

Biopsy In One Week

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I have a biopsy in one week, and I am 95% sure I have celiac according to my blood work, which came back high for IgA. So I am just having the biopsy as a confirmation. Does anyone know that if I started the gluten free diet now if my test would be affected, my biopsy is on Apr 14-08, and I really don't want to eat like this anymore. I have heard that It can take months to heal, so would a week really matter? Any info would be greatly appreciated. Also where can I buy sublingual tablets, I heard from another blogger I should be taking those since I may not be absorbing any vitamin tablets I am taking.

Thanks

Krista


Gluten Free since Apr 14-08

Mar 08.....Blood work-Positive for Celiac Results were High (92)

Apr 08....Biopsy Results indicating abnormalities associated with celiac disease & Villi atrophy.

May-08.... Appendicitis

July 08.....X-ray indicates Degenerative Disc Disease

Symptoms that the gluten free diet has helped: All Stomach Problems, Bloating, Vomiting, Heartburn & D, Energy, overall feeling of health again, Migraine, Degenerative disc Disease, and Infertility.

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Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

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Do not start gluten free until after the testing. I know its tough, but you want as accurate results as possible. If you go gluten free now, you can get a false negative. The damage from Celiac is patchy, and can be easily missed. Going gluten free before the test negates the point of the test-to see the damage.

The nutritionist from the Celiac Center at Univ of Maryland, Baltimore, spoke and said that changes to the intestines does occur within one week and CAN affect the biopsy results.

Speak with your GI before the procedure and confirm that he is taking 4-6 biopsies. One biopsy specimen is not enough to have confidence in your results (if negative).

Best of luck!

Ok well that explains things for me, I will definalty tell him to do that, and he said he can give me an idea of the results right after the test, and then they will be sent away for a more in depth tests. I will post my results as soon as I know

Thanks for your advise!!!! Really appreciate it


Gluten Free since Apr 14-08

Mar 08.....Blood work-Positive for Celiac Results were High (92)

Apr 08....Biopsy Results indicating abnormalities associated with celiac disease & Villi atrophy.

May-08.... Appendicitis

July 08.....X-ray indicates Degenerative Disc Disease

Symptoms that the gluten free diet has helped: All Stomach Problems, Bloating, Vomiting, Heartburn & D, Energy, overall feeling of health again, Migraine, Degenerative disc Disease, and Infertility.

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He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm is a great resource for info. http://www.celiacdiseasecenter.columbia.ed.../C04-Biopsy.htm talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

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He can give you an idea, but you won't know for certain until you receive the pathologist's report. A doctor may say, "no you don't have Celiac" but your biopsy could prove otherwise.

http://www.celiacdiseasecenter.columbia.edu/CF-HOME.htm is a great resource for info. http://www.celiacdiseasecenter.columbia.ed.../C04-Biopsy.htm talks about needing adequate biopsies.

Which bloodwork did you have done? There are five tests that make up the Celiac panel---you may want to ask your doctor about this.

Spend the week eating your "favorite foods" and read up on label reading, safe/unsafe foods, places to eat, etc. Good luck!

My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??


Gluten Free since Apr 14-08

Mar 08.....Blood work-Positive for Celiac Results were High (92)

Apr 08....Biopsy Results indicating abnormalities associated with celiac disease & Villi atrophy.

May-08.... Appendicitis

July 08.....X-ray indicates Degenerative Disc Disease

Symptoms that the gluten free diet has helped: All Stomach Problems, Bloating, Vomiting, Heartburn & D, Energy, overall feeling of health again, Migraine, Degenerative disc Disease, and Infertility.

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Yes, that is the tTG IgA test, which is one of the best/most accurate predictors of Celiac. You are well on your way!

Let us know what else we can do to help.

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My test result say:

(NEW) ANTI TISSUE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS, NORMAL RANGE AT 20 UNITS

PRESENCE OF IgA ANTIBODY TO TISSUE TRANSGLUTAMINASE SUGGESTS GLUTEN SENSITVE DISEASE. SENSITIVITY AND SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPR 95%

So do you know what test this is??

I have read some articles where they discuss the numbers on this tissue transglutaminase test, and the latest news is that if the numbers are jsut slightly elevated, celiac is not sure (but we here would say they did not biopsy the right place...) , whereas a high number like yours is definitely celiac.

Forgot where I read that, but found the link at the delphi celiac forum and i might have been a university in canada that publsiched this. The researcher publiching the article was someone's doctor (and she discussed it with him; they did not classify increased lymphocyes and something else I forgot as positive....sounded like they were quite strict in diagnosis so the lower ttg numbers did not correte sith celiac...)

nora


gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.

daughter officially diagnosed celiac and casein intolerant.

non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5

Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet

Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

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