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Doc Confirms Gluten Sensitivity. Says Stay gluten-free


Ivanna44

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Ivanna44 Apprentice

Hi all,

Just an update. I saw my doctor today for a follow up appointment after being one month gluten-free (for the most part) Its a learning process. I told her about the couple of times I got glutten >the 1st time as an experiment and the 2nd time by accidently.

She review my food diary logs, and indicated that "yes" gluten does seem to affect your wellbeing. She indicated that she could send me off to a gasterologist. But, they in turn would only say the same thing in her opinion, to remain gluten-free . She felt I was wise enough to know my own body and how it reacts. She encouraged me to continue to research and remove all traces of gluten from my food items as well as toiletries etc. When I told her how my husband rolled his eyes, when he saw me looking at a gluten-free no-no list for cosmetics. He said, what its in make up too!! rolling his eyes. I tried to say, that you touch your face and then eat something and get gluttened. The doctor confirmed that yes, you need now to remove all traces of gluten from ALL areas of your life, as based on your wellbeing results of being "gluttened" even a trace amount can make you quite sick. Now, it's just a case of getting my husband to understand what this all means. >> OH boy .... he's a stubborn sell. :rolleyes: (big time rolls my eyes)

Phewwwwwwwwwwwwww! I was really worried that she'd order more tests to confirm it. I knew from other postings that you had to "return" to the gluten items, and basically get really Sick :( to prove that gluten was making me sick :(

She wants me to remain gluten-free for the next 2 months at least, give the body time to heal. Then she wants me to redo the blood works to see if there are changes. If there are changes then it definately confirms without a doubt that I should remain gluten-free .

Again, I'd like to thank all of you members for your help with past postings, in helping me with my many (and more to come :) ) questions and just being a huge support in this life style change.

hugs to all.


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Crimson Rookie

That's the kind of Doctor I want. One that realizes that YOU know your body. And that you have the ability and TIME to research your own issues and hand them to the Dr. for guidance.

I'm very happy for you!

I've no clue what to say about the husband.

Sometimes people do not connect importance to things that do not directly affect them.

I'm not saying your husband is not affected at all. Just not physically *unless you decide to beat the

info into his skull* <_<

sneezydiva Apprentice
Hi all,

Just an update. I saw my doctor today for a follow up appointment after being one month gluten-free (for the most part) Its a learning process. I told her about the couple of times I got glutten >the 1st time as an experiment and the 2nd time by accidently.

She review my food diary logs, and indicated that "yes" gluten does seem to affect your wellbeing. She indicated that she could send me off to a gasterologist. But, they in turn would only say the same thing in her opinion, to remain gluten-free . She felt I was wise enough to know my own body and how it reacts. She encouraged me to continue to research and remove all traces of gluten from my food items as well as toiletries etc. When I told her how my husband rolled his eyes, when he saw me looking at a gluten-free no-no list for cosmetics. He said, what its in make up too!! rolling his eyes. I tried to say, that you touch your face and then eat something and get gluttened. The doctor confirmed that yes, you need now to remove all traces of gluten from ALL areas of your life, as based on your wellbeing results of being "gluttened" even a trace amount can make you quite sick. Now, it's just a case of getting my husband to understand what this all means. >> OH boy .... he's a stubborn sell. :rolleyes: (big time rolls my eyes)

Phewwwwwwwwwwwwww! I was really worried that she'd order more tests to confirm it. I knew from other postings that you had to "return" to the gluten items, and basically get really Sick :( to prove that gluten was making me sick :(

She wants me to remain gluten-free for the next 2 months at least, give the body time to heal. Then she wants me to redo the blood works to see if there are changes. If there are changes then it definately confirms without a doubt that I should remain gluten-free .

Again, I'd like to thank all of you members for your help with past postings, in helping me with my many (and more to come :) ) questions and just being a huge support in this life style change.

hugs to all.

It's so wonderful to hear that someone has such a wonderful doctor.

As far as your husband goes, if he is anything like mine, he'll come around. "The proof is in the pudding" as they say. As you start to feel better, he'll take notice, and he will be much more motivated to maintain your newfound wellbeing, even doing things that seem so trivial to him now.

Glutina Rookie

Hi!

I am also recently diagnosed as extremely gluten-sensitive by my specialist...yay for good docs!

My doc never suggested to re-check my blood-work, although I think that's a great idea I might ask about at my next appointment.

The hardest part for me is that I am in university and so preparing food ahead of time and finding food when i am on campus late is very difficult.

I have also addidentally glutened myself a few times :(

But---I am feeling so much better already (2 months) that there is no question that this was the right diagnosis.

How are you finding the gluten free life so far?

-Glutina

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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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