Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severely Glutened?


kim26

Recommended Posts

kim26 Apprentice

hey everyone,

i think my 8 yr old daughter was glutened. on saturday my husband and i went out for our anniversary so my dd spent the day with my sister. we packed her lots of food, but they did go see high school musical on ice lol, anyway she ate a couple of my sister's nachos(just chips and cheese sauce). which im sure has many things in it that are off limits, to say nothing of cc issues! i think they both thought they were ok since there are nacho cheese sauces on the market that are gluten-free. on sunday night she had some french fries from braums, a rare treat that she's never had any trouble with. anyway, by monday morning she started vomiting. she did this from 6 in morning until about 5pm that night :-( with some D mixed in too. no fever, no chills, nothing that would indicate a virus, and non of the rest of the family are sick. could a reaction be this delayed from the nachos on sat night, or should i assume it was the fries? any help would be great, we are new to this as she was only diagnosed this month. thx! ~K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It seems that a lot of people are ill with the stomach flu these days, which causes the same kind of symptoms you describe. Normally nobody will throw up for that long because of being glutened (even though it is possible, of course). I just had the stomach flu a couple of weeks ago, and then my grandchildren (who I was visiting at the time) got sick a week later.

Hopefully the other kids won't get sick, but it could take them about a week after being exposed to the flu to get it as well.

OBXMom Explorer
It seems that a lot of people are ill with the stomach flu these days, which causes the same kind of symptoms your describe. Normally nobody will throw up for that long because of being glutened (even though it is possible, of course). I just had the stomach flu a couple of weeks ago, and then my grandchildren (who I was visiting at the time) got sick a week later.

Hopefully the other kids won't get sick, but it could take them about a week after being exposed to the flu to get it as well.

I wonder, are people with celiac more susceptible to tummy bugs, or does it just seem like it because of the injustice of it all?

kim26 Apprentice
It seems that a lot of people are ill with the stomach flu these days, which causes the same kind of symptoms your describe. Normally nobody will throw up for that long because of being glutened (even though it is possible, of course). I just had the stomach flu a couple of weeks ago, and then my grandchildren (who I was visiting at the time) got sick a week later.

Hopefully the other kids won't get sick, but it could take them about a week after being exposed to the flu to get it as well.

Ursa Major,

thx for the quick reply! i assumed a virus was definitely a possibility, i guess its just throwing me because she had no fever or anything like that, she had frequent bouts of vomiting with no fever etc before we got her diagnosed. gi doc said unexplained episodes of vomiting and diarrhea were most likely related to celiac. im wondering if this is what we are in for any time she gets glutened.

Ursa Major Collaborator
Ursa Major,

thx for the quick reply! i assumed a virus was definitely a possibility, i guess its just throwing me because she had no fever or anything like that, she had frequent bouts of vomiting with no fever etc before we got her diagnosed. gi doc said unexplained episodes of vomiting and diarrhea were most likely related to celiac. im wondering if this is what we are in for any time she gets glutened.

Okay, apparently your daughter is one of the few people who reacts with vomiting to gluten. That makes it much harder to pinpoint the problem!

Not everybody gets a fever with the stomach flu, though. One of my grandchildren threw up several times over the course of a day, but didn't have a fever, either.

I guess you might just have to let it go, how would you know the difference? If she gets sick again with eating the same foods, then you can be sure that somehow there is gluten in them, and will have to avoid them permanently.

taweavmo3 Enthusiast

My guess would be the fries.....I have found very few fast food places that have safe fries for my dd. Also, if she was just diagnosed, her reactions will most likely get stronger the longer she is gluten free.

My dd didn't react visibly to gluten before getting diagnosed. But after a few months into the diet, she became very sensitive to trace amounts. Now, she vomits for hours if she get glutened. She vomits so much we have for force her to drink small amounts of water just to keep her hydrated.

Someone told me early on that it is best to avoid all fast food in the beginning, which I know is WAY easier said than done with kids, lol. But they were right, b/c until they start to heal...you'll never really know what they are reacting to. It can turn into an endless guessing game and you can drive yourself crazy wondering if it's a bug or gluten. Once they heal.....reactions usually become much stronger and easier to identify.

Hope that helps some! I remember how hard it was in the beginning, I glutened my dd quite a few times before I really got the hang of the diet. Now it's usually pretty easy to tell when she has a reaction to something, and now that she is 6, she is able to notice it herself. She is able to tell me almost immediately if she ingests gluten.....I guess she can feel the effects as soon as it gets into her system. Goodl luck, and welcome to the board!

kbtoyssni Contributor

It's hard to know. Many nachos are gluten-free, although CC is always a possibility. I don't get very strong reactions to gluten now, but I do pick up every bug going around when my immune system is already compromised from gluten. When I'm not glutened, I rarely get sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,234
    • Most Online (within 30 mins)
      7,748

    AjaxandLynda
    Newest Member
    AjaxandLynda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.