Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Out I Am Low On Iron - Questions?


loraleena

Recommended Posts

loraleena Contributor

Well what I have suspected for years was shown to me yesterday when I saw my blood work. While my hematocrit and hemoglobin levels have been in the normal range, I had heard that getting Ferritin tested was crucial. So the above two have lowered to borderline normal as well as my total iron and red blood cells. My ferritin was 14! I read that the range has risen recently. My tests showed the old ranges. I have also read on here and many sites that optimal is between 50-70. Can anyone comment on this. My doc agrees there is an issue and wants me to take dessicated liver tablets. She says they work well and won't cause constipation. My other doc (allopathic surprisingly) recommended yellow hook. Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Hemoglobin and hematorcrit measure the amount of iron in the blood immediately available for use by the body. Ferritin is an iron storage protein that measures the body's iron reserves, or at least that's my understanding. The question is, why is there such a differential in your case? Neither am I sure how taking an iron supplement will impact one vs. the other. Does it take longer for iron supplementaion to impact ferritin levels than it does hemoglobin and hematicrit? These are some questions you should consider. Perhaps some other forum members have some answers.

loraleena Contributor

My other tests are all borderline low also. My doc said that I definitely need to supplement, especially given that I have symptoms as well.

  • 1 month later...
Susan-in-NC Rookie

Waiting and wondering myself about response to your question. I scored low on both tests -- way below, under teens in available iron and was told total lack of stored iron - caused heart mummur. My Doc (who assured me the one thing I did not have prior to biopsy was Celiac) just told me to take iron 3X's daily with vit C to assist w/ absorbsion. Still under normal levels after almost a year.

Let's hear What helps?

Ursa Major Collaborator

Actually, optimal is 110, not 50 to 70 (if we are on the same wavelength, and your labs normal range is the same as mine, being from 40 to 300).

If there is no iron stored to begin with, you can have symptoms of severe anemia, and your hemoglobin will slowly go down to unacceptable levels.

My ferritin (the stored iron) was only 4 a few years ago, and my doctor called me (she normally NEVER calls me) sounding very alarmed, telling me I had to start taking iron supplements immediately.

At that time I was so weak that I had days when I got out of bed in the morning and my legs were too weak to hold me. I had to crawl right back into bed and stay there for the day.

I was unable to go even for short walks on 'good' days.

I took eight iron pills a day for a few weeks, which finally gave me such severe stomach cramps that I was doubled over most of the time and had to stop taking them. They didn't really help anyway, but I didn't know why. Of course I do now, I was not absorbing nutrients due to villi damage, which of course caused the low iron to begin with.

I eventually had to get iron injections twice a week, and had my ferretin levels checked weekly as well (my veins looked like I was a druggie) to bring the iron up to slightly more acceptable levels. But even with twice weekly injections it wasn't possible to get it above 20.

Normally iron injections or an iron IV will get the numbers up and keep you feeling more energetic until your villi heal and absorb the iron from food and supplements again.

My problem, on top of malabsorption at the time was, that I also had my period every two weeks, lasting for ten days at a time with severe bleeding that was close to hemorrhaging. Very likely caused by celiac disease, which never occurred to my doctor.

I had a hysterectomy (fortunately I was already 47 at the time) which finally allowed me to stop the iron injections six months later, and my iron went up to perfect within four years after the hysterectomy.

When your iron is that low you really need more than just supplements. In order to feel better quickly it is important to have iron injections at least for a little while (or an iron IV).

In Germany they would have done an iron IV immediately after finding out there are low or no iron stores, to give you more energy. My sister had that done repeatedly. Unfortunately she refuses to even try the gluten-free diet, because she had a negative blood test and won't believe me that she has celiac disease anyway. She has ALL the symptoms, but doesn't want to give up bread without proof from testing. Foolish woman, I am afraid she will die of cancer within ten years, just like our mother, which I find very upsetting.

ItchyMeredith Contributor

This is facinating!

I just got the same results! Everything was normal except for my ferritin which was 13.

I am not sure why this is. Does anyone know why this happens? Is it celiac? Is it my vegetarian diet?

ShayFL Enthusiast

There is evidence that Ferritin over 80 can contribute to Diabetes. Both my Grammys were Diabetic. So I am shooting for 70. I am only at 22 right now, up from 11. But I am just now 5 weeks gluten-free and hoping the iron will start being absorbed now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    3. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748

    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.