Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Out I Am Low On Iron - Questions?


loraleena

Recommended Posts

loraleena Contributor

Well what I have suspected for years was shown to me yesterday when I saw my blood work. While my hematocrit and hemoglobin levels have been in the normal range, I had heard that getting Ferritin tested was crucial. So the above two have lowered to borderline normal as well as my total iron and red blood cells. My ferritin was 14! I read that the range has risen recently. My tests showed the old ranges. I have also read on here and many sites that optimal is between 50-70. Can anyone comment on this. My doc agrees there is an issue and wants me to take dessicated liver tablets. She says they work well and won't cause constipation. My other doc (allopathic surprisingly) recommended yellow hook. Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Hemoglobin and hematorcrit measure the amount of iron in the blood immediately available for use by the body. Ferritin is an iron storage protein that measures the body's iron reserves, or at least that's my understanding. The question is, why is there such a differential in your case? Neither am I sure how taking an iron supplement will impact one vs. the other. Does it take longer for iron supplementaion to impact ferritin levels than it does hemoglobin and hematicrit? These are some questions you should consider. Perhaps some other forum members have some answers.

loraleena Contributor

My other tests are all borderline low also. My doc said that I definitely need to supplement, especially given that I have symptoms as well.

  • 1 month later...
Susan-in-NC Rookie

Waiting and wondering myself about response to your question. I scored low on both tests -- way below, under teens in available iron and was told total lack of stored iron - caused heart mummur. My Doc (who assured me the one thing I did not have prior to biopsy was Celiac) just told me to take iron 3X's daily with vit C to assist w/ absorbsion. Still under normal levels after almost a year.

Let's hear What helps?

Ursa Major Collaborator

Actually, optimal is 110, not 50 to 70 (if we are on the same wavelength, and your labs normal range is the same as mine, being from 40 to 300).

If there is no iron stored to begin with, you can have symptoms of severe anemia, and your hemoglobin will slowly go down to unacceptable levels.

My ferritin (the stored iron) was only 4 a few years ago, and my doctor called me (she normally NEVER calls me) sounding very alarmed, telling me I had to start taking iron supplements immediately.

At that time I was so weak that I had days when I got out of bed in the morning and my legs were too weak to hold me. I had to crawl right back into bed and stay there for the day.

I was unable to go even for short walks on 'good' days.

I took eight iron pills a day for a few weeks, which finally gave me such severe stomach cramps that I was doubled over most of the time and had to stop taking them. They didn't really help anyway, but I didn't know why. Of course I do now, I was not absorbing nutrients due to villi damage, which of course caused the low iron to begin with.

I eventually had to get iron injections twice a week, and had my ferretin levels checked weekly as well (my veins looked like I was a druggie) to bring the iron up to slightly more acceptable levels. But even with twice weekly injections it wasn't possible to get it above 20.

Normally iron injections or an iron IV will get the numbers up and keep you feeling more energetic until your villi heal and absorb the iron from food and supplements again.

My problem, on top of malabsorption at the time was, that I also had my period every two weeks, lasting for ten days at a time with severe bleeding that was close to hemorrhaging. Very likely caused by celiac disease, which never occurred to my doctor.

I had a hysterectomy (fortunately I was already 47 at the time) which finally allowed me to stop the iron injections six months later, and my iron went up to perfect within four years after the hysterectomy.

When your iron is that low you really need more than just supplements. In order to feel better quickly it is important to have iron injections at least for a little while (or an iron IV).

In Germany they would have done an iron IV immediately after finding out there are low or no iron stores, to give you more energy. My sister had that done repeatedly. Unfortunately she refuses to even try the gluten-free diet, because she had a negative blood test and won't believe me that she has celiac disease anyway. She has ALL the symptoms, but doesn't want to give up bread without proof from testing. Foolish woman, I am afraid she will die of cancer within ten years, just like our mother, which I find very upsetting.

ItchyMeredith Contributor

This is facinating!

I just got the same results! Everything was normal except for my ferritin which was 13.

I am not sure why this is. Does anyone know why this happens? Is it celiac? Is it my vegetarian diet?

ShayFL Enthusiast

There is evidence that Ferritin over 80 can contribute to Diabetes. Both my Grammys were Diabetic. So I am shooting for 70. I am only at 22 right now, up from 11. But I am just now 5 weeks gluten-free and hoping the iron will start being absorbed now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.