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Blood Test Negative - What To Do?

motif

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motif Contributor
motif
Posted

Not sure now, got celiac disease or not? How certain are blood tests for celiac disease?

thanks

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Lisa Mentor
Lisa
Posted

The blood tests are not always accurate. They can rule Celiac in, but the can not rule it out. A negative blood test does not mean that you do not have Celiac. There are the test that you should have had:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

If you do not want to pursue further testing, you can begin the diet. A positive dietary response is a diagnosis in itself.

aikiducky Apprentice
aikiducky
Posted

The blood tests aren't very accurate especially in adults, I've read. You could ask for a biopsy to see what the state of your intestine is. Were you eating gluten at the time of the blood tests?

Pauliina

motif Contributor
motif
Posted
  • Author
Were you eating gluten at the time of the blood tests?

Pauliina

no, actually I was gluten free since few weeks, didn't know that for blood test it is also required.

I have also B12 level done and looks like is OK, didn't see yet for my own eyes the results.

But today feeling bad, bloating and heartburn.

thanks

aikiducky Apprentice
aikiducky
Posted

If you are gluten free before the tests, it might give a false negative. The same goes for the biopsy, so if you have continued to eat gluten free, that makes any more testing unreliable. Have you felt any better on the gluten free diet? Not necessarily completely better, but at all better?

Pauliina

motif Contributor
motif
Posted
  • Author
If you are gluten free before the tests, it might give a false negative. The same goes for the biopsy, so if you have continued to eat gluten free, that makes any more testing unreliable. Have you felt any better on the gluten free diet? Not necessarily completely better, but at all better?

Pauliina

not sure, I thought I did until I got hit again 2 days ago. Definitely have less abdominal cramps and burnings,

but since 2 days I feel weak and tingling plus heartburn. True is I drink some milk and buttermilk but it's not a gluten right? Never in the youth had problem with milk.

thanks

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