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Support Group On Oregon?


sunshyne

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sunshyne Newbie

Is anyone familar with any groups in Portland?

  • 4 weeks later...

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loregon Newbie

Try this: Open Original Shared Link

I belong to the Portland group. It's a good group. And so is the Vancouver group.

Maybe we'll see you there.

celiac3270 Collaborator

Open Original Shared Link

Here are some :)

tdrew Rookie

Anybody know of any support groups in southern Oregon?

Thanks!

Tom in Klamath Falls

  • 2 months later...
haysn Newbie

Is there a support group in Salem area or anywhere between there and Oregon City. I live North East of Salem. What happens in these support groups anyway. I would just love to find someone who has been there done that, who can answer questions.

Nancy

  • 2 months later...
eugenelowcarb Newbie

I have a low carb store in eugene and I am getting ready to devote shelf and freezer space to gluten-free. I also have floor space where groups could meet...free of charge of course! If there is anyone in the area who is interested in getting something going, please let me know. eugenelowcarb@yahoo.com

  • 4 weeks later...
veggf Newbie

I realize that these are old posts, but Nancy, I've heard that the Salem group is incredible, but that was a few years ago.

Tom, I haven't heard of active groups outside of Portland and Salem areas. I heard a rumor a few years ago that there was a bit of a group in Bend.

Hope this helps!

I asked this in another thread, but does anyone know of any gluten-free friendly restaurants in Bend? Thanks!


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  • 1 year later...
choiceshealthfood Newbie

We finally have a Gluten Free Support Group in Eugene, Oregon!

Our next gathering is Thursday, November 9th @ 6pm; I posted on Craigslist under 'Groups'.

This week we will have guest speaker, raffle items, recipe exchange, and much more!

Email, or call me for more information & directions:

brynn, 541.338.8522 or brynn@choiceshealthfood.com

See you there!

  • 3 months later...
Granny Garbonzo Apprentice
<br />I realize that these are old posts, but Nancy, I've heard that the Salem group is incredible, but that was a few years ago.<br /><br />Tom, I haven't heard of active groups outside of Portland and Salem areas. I heard a rumor a few years ago that there was a bit of a group in Bend.<br /><br />Hope this helps!<br /><br />I asked this in another thread, but does anyone know of any gluten-free friendly restaurants in Bend? Thanks!<br />
<br /><br /><br />

There is a little bake shop with some gluten-free stuff that is really good in Sisters. On the side street next to a fishing shop....if you are heading from salem to bend the side street with the bake shop is on the left, ones street over....wish I could recall more....sorry

Granny Garbonzo Apprentice

I am in Albany Oregon and must drive to Salem or Eugene to attend a support group....and don't seem to get emails back from the one closest to me in Salem......I think the other salem group that responded to me said it would be ok for me to attend their meetings.....but we all need to get busy creating more support groups. Food is like language, it is a natural social need to be around others who eat and talk like we do.

  • 3 months later...
gfkidsrock Newbie

I started a support group in Eugene / Springfield for gluten free kids and their families. I have two kids that needed the support. We attended the Salem R.O.C.K. (Raising Our Celiac Kids) and thought it was great and just what we needed in Eugene.

We have gluten free samples and foods. Activities are provided for the kids while they have fun with other gluten free kids and the parents swap stories, recipes, tips, etc...

For more information about this support group, please call Sheri at 541-747-1696 or e-mail at gf_kids.rock@yahoo.com (when e-mailing please type ROCK in the subject line)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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