Positive Igg/negative Biopsy?

[kkv]

i just had a series of blood tests, my IGG was at 36 and then an endoscopy biopsy was negative and the doctors have NO answers other than to take probiotics...

does anyone have experience with this? It is so FRUSTRATING!

[jayhawkmom]

does anyone have experience with this? It is so FRUSTRATING!

Yep.

All my other tests were within range, some on the high side of "normal." My antigliadin IgG - however, was 67 - the negative reference range is less than 11.

My allergist informed me that there was no reason to follow a gluten free diet.

My GI - on the other hand - said it was definitely worth further investigation.

Endoscopy/biopsies were normal - 100%.

I was advised to *try* removing gluten from my diet to see if it made any difference. It has. A lot.

A month after I'd gone gluten-free, I had the blood tests run over again... because my allergist insisted that they ran the wrong tests. They ran the SAME tests over again, but included the total serum IgA - which was forgotten the first time. After a month of being gluten-free - my antigliadin IgG's had dropped down to 40-something.

At that time, my allergist acknowledged that I "might" have an issue with gluten, and should stick to the lifestyle.

I totally understand how frustrating it is. And, there are MANY of us here in the same boat.

[chasing4]

My dd just got diagnosed a couple weeks ago. Her IGG levels showed she could have Celiac, but her biopsy was in normal levels. He said that she has gluten sensitivity and has not technically diagnosed her with Celiac yet, but he still told us to cut out gluten from her diet. And ever since we did that, she has been so much happier than she has been in a long time.

[Willow5]

I had and initial Igg of 39 and all other tests came in within normal limit. I have been mostly gluten-free for the last 2 years and I notice definate differances in my levels of energy when I stick with gluten-free and have a rash that appears within hours of a cheeting experience.