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I Need Help With My 17 Month Old Dd And Diarrhea!

pinkdljj

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pinkdljj Rookie
pinkdljj
Posted

My little girl has diarrhea almost everyday and has had for 3 months. I had her tested at the doctors office for celiac. I have it. Anyway, the tests all came back negative for everything. I then had her stool tested through enterolab and it came back with elevated antibodies for gluten. Also, she carries both sets of celiac genes. So I have taken her off of gluten entirely. I am so careful about cross contamination because of my own diet.

After going off gluten her diarrhea stopped for about a week. Now it comes back about every other day. I don't know what else to do. She does eat dairy and soy. If anyone has any experience with this or suggestions, please help. Her doctors won't help, they think the diarrhea is still associated with a virus she had 3 months ago. Go figure!

Leslie

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Ursa Major Collaborator
Ursa Major
Posted

You know, dairy and soy can both cause diarrhea as well. A lot of us can't tolerate dairy and soy on top of the gluten intolerance. I imagine if you remove dairy and soy from her diet your daughter will be fine within a couple of days.

By mentioning the dairy and soy, you really appear to know what the problem could be. Even though it is a pain to eliminate more foods, you obviously need to. Hopefully it isn't something else as well, like eggs, corn or nightshades.

ksymonds84 Enthusiast
ksymonds84
Posted

Hello, sorry your little girl is going through this, doctors can be so narrow minded when it comes to tests. I just wanted to add that it can take time for the diarrhea to completely stop since she will be healing and the dairy and soy could slow her down with that if she's sensitive to them. Hugs to your little one.

pinkdljj Rookie
pinkdljj
Posted
  • Author
You know, dairy and soy can both cause diarrhea as well. A lot of us can't tolerate dairy and soy on top of the gluten intolerance. I imagine if you remove dairy and soy from her diet your daughter will be fine within a couple of days.

By mentioning the dairy and soy, you really appear to know what the problem could be. Even though it is a pain to eliminate more foods, you obviously need to. Hopefully it isn't something else as well, like eggs, corn or nightshades.

Thanks. Her casein antibodies were normal through enterolab. I'm thinking it must be the soy. I rotate milks for her between almond, rice and soy. I will get rid of the soy first. Today she has had no diarrhea. So far so good.

Leslie

pinkdljj Rookie
pinkdljj
Posted
  • Author
Hello, sorry your little girl is going through this, doctors can be so narrow minded when it comes to tests. I just wanted to add that it can take time for the diarrhea to completely stop since she will be healing and the dairy and soy could slow her down with that if she's sensitive to them. Hugs to your little one.

Thanks for the encouragment. Believe me, she gets lots of hugs :) Yes, most doctors are ignorant to this disease. Her ped told me she didn't look like a classic celiac child because she has chubby thighs. I told her if her diarrhea last for many months she will look like a "celiac" child and then maybe you'll believe me. Oh well.

Thanks again,

Leslie

Worriedtodeath Enthusiast
Worriedtodeath
Posted

My little silly can't handle any soy. Soy cheese comes right back out. Just last night, at after hours a ped told me if you have negative antibodies and neg biopsy, then you don''t have it. I laughed at him. He looked offended. I told him the diet is the only thing that has worked and just last month, she reversed her FTT dx and has grown 2.5 inches and packed on 4 lbs in 4 months and we have no diaherra. He said he'd never heard of such a thing. I told him when he had been a dr long enough, he'd figure out not everything is in his books. Sometimes you step outside those tests results and do what works regardless of why. He wished us luck and said he look into that. he's probably just out of training and maybe we taught him something that might help some other little kid. Or maybe he's just pacifing the crazy mom. ;) hope the no soy works for ya.

Stacie

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