Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labwork And Biopsy Results

TruckerBird

Recommended Posts

TruckerBird Newbie
TruckerBird
Posted

Hi, I finally made it home and have my labwork and biopsy results. My 2nd GI dr says i dont have celiac but the paperwork doesnt quite backup what he said to me.

On my labwork it says :

Celiac Disease Comp Panel, Adult

(tTg) Ab, IgA =10(high) (reference range Positive = >8)

Endomysial Ab IgA = Negative

Endomysial Ab TITER = test not performed

IgA = 153 (normal range 81-463)

(tTg) Ab, IgG = test not performed

When i got home and saw my pathology report from the upper gi/ biopsy i was upset to read what he HADNT done,

"CANNOT evaluate for celiac disease with this LIMITED biopsy"

he had only taken 3 samples from the duodenal. Since he was specifically looking for celiac , this really bummed me out and made me realize that dr #2 wasnt much better then dr #1.

the pathologist was able to rule out Barretts but that was all.

The actual 3 biopsys do say:

-scant fragments of small intestinal mucosa

-intraepithelial lymphocytes are not increased in submiited tissues

I know i do need a different Dr to look after me.

Birdie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I would be quite annoyed at this doctor. He appears to be clueless and really did you a disservice. If he was going to put you through an endo the least he could have done was take proper samples and of course a full celiac panel would have been nice. Kind of makes you want to slap them upside the head, hard. :angry:

Are you on the diet yet? It may be the best way to get your answer at this point. I am sorry this idiot doctor wasted your time and money, and the time you have been waiting for results could have been spent healing.

If you haven't started on the diet yet please do so. If it helps it is very much worth the hassle.

happygirl Collaborator
happygirl
Posted

You have a few options here.

1. Take your lab work and pathology report to a doctor that has more experience in Celiac. You can get some names by contacting your local support group and asking for who their members use. A more experienced doctor may have a different interpretation of your results, or may ask for more testing.

2. Try going gluten free to see if your symptoms improve/resolve. Some of the pitfalls include: not having an official diagnosis, and not know if you have 'other' problems that are undiagnosed.

3. Pursue other reasons for your symptoms (by either this doctor, or another one).

At any point in time, unless you are undergoing testing for Celiac, you can go gluten free and see what happens.

You may also want to talk to your doctor about the pillcam which looks throughout the intestine for damage and other problems.

Best of luck.

TruckerBird Newbie
TruckerBird
Posted
  • Author

Thanks so much, your replies have given me some sound advice ( for a change) hahaha, Birdie :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.