Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptom Questions


WhimsiKay

Recommended Posts

WhimsiKay Apprentice

Hi, everyone! So, I had a major gluten episode last night that has carried over to tonight. I've been really careful of late, so it was a total surprise -- and so bad, too!

We had gluten-free pancakes for dinner, and bacon. Within ten minutes of eating my first bit of bacon, I got hit by symptoms. Within the hour, it was full-blown. I checked the package of bacon again, and it doesn't say anything about gluten or wheat. It does says "smoke", though, and I'm wondering, could it be the bacon? Are nitrates bad, for that matter?

That said, I did have a plate of fries for lunch at a restaurant, and while I've had success there before, I also don't know if something I ate hours before would cause symptoms at night? Of course, my symptoms have always been worse at night, which has always been really weird for me. I'd have bread or whatnot for lunch, be fine, then around 6pm, start feeling it. Is that normal?

And if that's the case, could I have gotten THAT sick from cross-contamination hours before?

As if that wasn't enough, I did realize that the pan I cooked the pancakes in was one I never used for anything more solid than eggs, but the pan I cooked the bacon in was one I'd used for years to cook all sorts of gluteny things. Could I have fallen victim to gluten stuck in the non-stick pan?

In the meantime, over the past couple of days, I've been feeling extremely dehydrated. (Sorry for the detail here...) My urine is a kind of dark, rich yellow, which I've always associated with needing more liquids, but I've been drinking a lot, so I'm not sure what's going on! For example, I had a full, very large bottle of water today plus my green tea, and I still feel like my saliva is all thick and my mouth is dry, and I feel like I need more. This concerns me. Is this feeling a symptom of gluten-issues? Or is this what normal people have to deal with and I'm just getting used to the real-world of being able to absorb stuff better, and so need more? ^^;

Any thoughts you have would be great, and thanks a lot in advance. I tell you what, now that I know what it's like to live without intestinal cramps and pain, I sure get wimpy when I'm hit by it again. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



babysteps Contributor

ah, could even be what my hs history teacher called "multiple causation"

bacon - I am okay with "smoke", but "smoke flavor" or "natural flavors" (basically flavor is a codeword for highly processed, which may include wheat products as agents but not ingredients, don't you love how the labeling laws work) can affect me (once had a reaction to unsalted butter, then checked the ingredients - yup, "natural flavors")

fries - unless you double checked about that batch, it's possible that they could have used fryer for something with gluten before your fries this time around. trust but verify ;)

pan - others have reported definite issues. I didn't replace my nonstick pans, but I do put them through the dishwasher, and haven't noticed an issue for me

while initially my reactions were immediate (while at a restaurant, or within 20 minutes of eating), now they can take up to a day and a half to occur, and some posters cite a 2-3 day lag

hope you feel better soon!

Lisa16 Collaborator

Bacon makes my ears turn red and itch-- in my case, I think it is the nitrates. I have noticed this only recently-- since going gluten-free. Most processed lunch meat seems to do this to me.

However, I had a bad hotel breakfast experience that is a similar story. I consumeed three things and got incredibly sick (it was a 12 episode within 1 hour kind sick and the effects lasted 5-6 days. I got DH blisters too.) I had a plate of fresh fruit. I had a side order of bacon (and the waitress looked at the ingredients-- no wheat listed. It was a hormel product.) And I had a glass of cranberry juice from the fountain.

I thought it was the cranberry juice. I was sure it was the cranberry juice. Maybe it was the bacon. Maybe it was cc, but it was so severe that I am sure I actually ate some more major gluten.

Hang in there! I no longer eat breakfast in hotels.

Lisa

fedora Enthusiast

hi,

About your urine, if it does not go back to normal, you may want to get your blood sugars checked. That was my friend's first signs of diabetes. He got really thirsty, was drinking tons of water, but his urine was still very yellow and thick. He went to the dr. and found out he was diabetic.

Not to scare you. I think we ( including me) have a tendency to blame everything on gluten. I hope things get better for you. Take care,

aikiducky Apprentice

For me, increased thirst is a glutening symptom, and it goes away a few days later again. I just obey it and drink more after a glutening.

A reaction can come six hours after eating the glutened food, so it's quite possible that it was the fries. The time depends on how quick your immune system is to react I think, since the gluten reaction is actually a reaction of your immune system. With time and experience with the diet you start to learn what your individual time frame is.

Though it might be safer to retire the pan that you used to cook gluteny things in before, unless it's a stainless steel one and you can really scrub it clean.

If it was me I'd give the bacon the benefit of a doubt and try it again in a couple months time or so.

Pauliina

WhimsiKay Apprentice

Hey, thanks everyone! Good to know!

I'll keep an eye on all such symptoms and call it good. I did check with the place I ate and their fries fryer is completely separate from the fryer they use for the breaded products, but that said, I guess it's true you can't be sure about CC.

I did have more fries today (before I checked these replies, heh), so we'll see how I feel tonight. If bad, I know that all I had was a burger with no bun and fries, and lots of water and green tea!

Cheers,everyone!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.