Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Columbia Presbyterian

mela14

By mela14
in Doctors

Recommended Posts

mela14 Enthusiast
mela14
Posted

I'm hoping that this post gets on the board. I have not been able to post from home so I am trying now from the office.

Does anyone have any experience with Columbia Presbyterian in NY?

I made an appointment with Dr. Peter Green for the end of March but he does not take my insurace so I am thinking about going with another doctor there that does take my insurance. Her name is Dr. Suzi Lee. I am moving up to NJ in about a month and am looking for someone competent in that area. I wil be moving to Manalapan, NJ and as of now I will make the ride into NY for this appointment.

Thanks,

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mela14 Enthusiast
mela14
Posted
  • Author

I just found a dr. Lawrence Pickover in East Brunswick, NJ..anyone know of him?

He was listed on this website.

thanks,

celiac3270 Collaborator
celiac3270
Posted

I live in NY and know that Columbia Prebyterian has a good reputation. It is known also for having some sort of celiac program. Of course, I don't know about the individual doctor, but the hospital is good :)

  • 3 weeks later...
irish Contributor
irish
Posted

Hi, I go to Dr. Lee in Columia Presbyterian Hospital. She is very good. She is understanding. The hospital is very good. There is also a nutritionist there that is very good. But unfortunately she does not take any insurance.

Loretta

  • 4 weeks later...
Hearts Apprentice
Hearts
Posted

Hi,

I don't have personal experience with Dr. Suzi Lee but someone strongly recommended her to me for my son. Unforturnately for us, she doesn't take pediatric patients. Hope that helps for you!

While we are on the subject of Columbia.. Does anyone know of Dr. Amy DeFelice who is a pediatric GI at Columbia?

celiac3270 Collaborator
celiac3270
Posted

I go to Dr. Levy (but he only takes kids) at Columbia Presbyterian. The nutritionist you're probably refering to is Anne Lee -- Dr. Green sends all his patients to her if they need to see a nutritionist.

Also, I had my surgery done at Columbia Presbyterian. It's a very clean, new-looking hospital--nice nurses--good doctors.....I would definitely go there above any other hospital.

Hearts Apprentice
Hearts
Posted

Did you like Dr. Levy? I have an appt. for my son but still not clear if he takes our insurance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

He's terrific...I very highly recommend him to anyone with celiac children in New York. Diligent, persistent, spends time with you and doesn't make you feel like you're being rushed the way some doctors do....

Hearts Apprentice
Hearts
Posted
:rolleyes: Thanks for that feedback!
celiac3270 Collaborator
celiac3270
Posted

Dr. Levy also has an office at 16 East 60th street, suite 410 (that's 5th avenue), so you don't need to go all the way up to Columbia Presbyterian. Oh...full name: Joseph Levy (since there might be multiple Levys :)). He is a great doctor, though--helped with the celiac, but also found the malrotation--very thorough and persistent. His phone number is 212-305-5903. Sorry if I'm getting too assertive here, but he's been a terrific doctor for me and everyone else I know who has went to him.

mela14 Enthusiast
mela14
Posted
  • Author

OK..guys...I have an appt this Friday with Dr Susie Lee at Columbia Presbyterian. I also put a call into Ann Lee the Nutritionist but she doens't have time to see me this friday. She actually called back and left a message on my machine!

I'm going to try to make an appt with her for next week.

has anyone seen her there and what was your experience like?

i really need some diet guidance as I have soooooo many intolerances and have been suffering terribly with my diet.

any info on what to expect there is appreciated. Of course I will bring whatever blood tests I have so they have something to look at.

I don't know what I am hoping for.....i know that the only real thing that will help is Not eating gluten! I have been trying so hard but have not made enough of an improvement. I just think it has gone on too long udiagnosed that it will take longer to get better.

wish me luck!

bigapplekathleen Contributor
bigapplekathleen
Posted

Hi there,

I see both Anne Lee and Dr Green at Columbia Presbyterian. They are both amazing to work with. I found both to be totally approachable about anything. In fact, when I have called DR Green with pressing issues, he has personally called me back. He will spend A LOT of time with you at your first visit and at follow-ups as needed. I saw Anne several times for help with the gluten-free diet and for help with other allergies. I have even emailed her with problems with I was out of the country; she was a great help in dealing with food concerns while traveling.

The Celiac Disease Center as Columbia also has Patient Education Days throughout the year. They have a family screening day coming up this month as well. They are on the cutting edge of everything celiac.

Best wishes,

Kathleen

Diagnosed with celiac disease - Aug 2003 - by blood test

Diagnosis is now officially non-celiac gluten intolerance (because I don't have the genes for Celiac)

Diagnosed with peripheral neuropathy, ovarian problems, anemia, multiple food allergies, etc. (the list is HUGE!)

incredibly improved on a very strict gluten-free diet but still get symptoms (probably due to other food allergies) ...a gluten challenge is coming up...

  • 4 months later...
Funkalicious Newbie
Funkalicious
Posted

Hi,

I was just told yesturday that I have celiac disease, I live in NJ so I'm going to try to see Dr's at Comumbia. Would love to hear more feedback from your first visit and any follow up visits. Thanks for sharing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Dakota01
      - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      This video is extremely informative and explains why I still get sick when I eat these so called gluten-free processed foods. I make every effort to stay away from all processed foods.
    2. Scott Adams
      0

      Why Celiac Diagnosis Still Takes Years—and How to Change That

    3. JoJo0611
      - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.
    4. cristiana
      - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area. I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who had real pain when she turned her torso in a certain...
    5. emzie
      - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748
    Suelle
    Newest Member
    Suelle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):

  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JoJo0611
      Awaiting Biopsy results

      By JoJo0611 · Posted

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Stomach hurts with movement

      By emzie · Posted

      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      celiac disease and braces

      By Scott Adams · Posted

      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.