Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid


Aleshia

Recommended Posts

Aleshia Contributor

ok, here is my question, my thyroid tested normal... but I have symptoms of thyroid disorders like hashimotos and hyperparathyroidism does this mean I don't have either of those? or does that not even show up with the thyroid test?? I'm just trying to find out what is wrong with me cause the doctors keep saying i don't have celiac disease and the celiac panel came back negative 2 times (I don't think they did the full panel the second time but I'm not sure)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aleshia Contributor

does anyone know if the blood calcium levels are taken when they do a chemistry panel??

nora-n Rookie

Hi, on the thyroid forums we discuss this all the time, that one can be hypothyroid despite of "normal" blood test results. The reason is that the reference range is way too wide. Often people are already hypothyroid when the TSH is 2. 1 is normal. In Germany, many labs have lowered the top of the reference range down to 2,5 and people in fact report they get treatment for hypo with a TSH of 2,5. I the US, often patients have to wait until TSH goes up to 5.

Also, hyperparathyroidism can mimick hypothyroid symptoms.

Have you read www.parathyroid.com ?

You might get better answers if you post your lab reports and the reference ranges.

I do not know wether the ionized calcium is part of the blood chemistry panel. (the total calcium is about useless, only the ionizzed will do)

nora

loraleena Contributor

Check out all the posts on the thyroid threads and also check out dr.lowe.com, dr.ginahoneyman.com, and stopthethyroid madness.com.

MelliDuff Rookie

I will take a stab at answering your question. :lol:

First of all understand that hashimotos is different than Hypo or hyper thyroid. (hashimotos can exhibit the same symptoms of both) Though some doctors use the term hypothyroid interchangeably with hashimotos it is not the same thing. I suppose they do this because in most cases hashimotos causes your thyroid to EVENTUALLY to go into hypothyroid mode permanently, which in term will eventually (years of you dealing with hypothyroid symptoms or hyper not showing up in test ) require you to take synthriod or some other equivalent of the drug. (this is a genetically synthetically reproduced t4 compound used for treating hypothyroid) let me tell you though it is not the same thing. I think a lot of doctor cause unneeded confusion by using the two terms as one in the same. You can HAVE a hyper or hypo thyroid action with hashimotos. Basically you cycle between the two at any given time - making most people with hashimotos feel almost bi-polar. - Also making your tsh test normal or high or low at any given time- From what I know about this you may have all the symptoms of HYPOTHYROID and be testing as "normal" for your t4 and t3 uptake with a normal TSH lvl.

Hypothyroid - When you have this you are not converting your t3 into t4 - or you simply are not making enough t3 to convert to T4 therefor everything slows down - this is not caused by the destruction of the thyroid itself - This is classic hypothyroid - On a normal thyriod test they test for the lvl of T4 being below/above normal and your total TSH being above normal range (which is 1-4 or 5 depending on the lab) and they also test your total T3 lvls. Hypothyroid is not a destruction of the thyroid but rather a malfunction.

hashimotos- You have antibodies (just like you do within your intestine with celiac)- these antibodies are located in your thyroid - The higher than normal presence of these antibodies when tested for tells your doctor that you have hashimotoes. Hashimotoes is actually the destruction of your thyroid occurring because your body sees your thyroid as a foreign object and sends your antibodies into attack it. After years of having hashimotoes and not know you have it, eventually your thyroid takes so much damage that it becomes inoperable which spills you into having a hypothyroid or hyper but mostly cycling. Hello anxiety and depression. <_<

So with that said you can (and I did) test with in the "normal" TSH and T3 and T4 ranges and completely have

hashimotos - Its not something that a thyroid 1 panel test will show - which is the test every doctor will preform on you. You need to ask your doctor to do an antibodies test along with your TSH and T4 and T3. Thyroid Panel 2 antibodies test. (who knew :rolleyes: )

Warning here - some doctors will not put you on the synthetic hormone even with Hashimotes disease. More and more are learning and understanding that to prevent further damage to your thyroid they must - but some will not give you the medicine you need, they wait until enough of your thyroid is dead for you to score on a blood test an elevated THS lvl. If you have a high antibody test and your doctor does not give you the meds you need GO TO A DIFFERENT DOCTOR.

My antibodies where 850 the normal range is 0-39 :angry:

I had hypo symptoms since I was 16 years old - They only found out about my Hashimotes when I was pregnant with my second child at 31 years old. That is a long time to be very very uncomfortable. I had 5 THS test all within normal ranges up to that point.

Right now I take 125mg of Levoxl everyday.

I hope this helps you. I wish I could tell everyone about this antibodies test to save them from what I had to go through.

Aleshia Contributor
You might get better answers if you post your lab reports and the reference ranges.

ok here is what I have

T3 total 104 reference range 60-181

T4 thyroxine total 8.0 reference range 4.5 -12.5

those were from about a year ago...

I just got my thyroid rechecked but that dr hasn't given me copies of any of my lab reports which irritates me!

anyway... I will get them when I can

nora-n Rookie

You might want to read a bit on the thyroid forum at Open Original Shared Link and there are some good articles there too (that say you can be hypothyroid eve with normal labs)

Your thyroid tests were for the total t4 and total t3, which are not so accurate, especially in women since we have a lot of binding globulins and they get measured in the total tests like you had, and then they show up falsely high. Your free t4 and free t3 may be low. Wewant them in the upper half of the range.

And, you need the antibody tests too. If your doctor does not test for tese things, you can order your own thyroid panel at healthcheckusa.com and the discount code is 12345 and you have to mention you found it at the thyroid.about.com forum. I do not remember where on the website you find the panel. I think it also includes the TPO antibody test in addition to TSH, ft4 and ft3.

nora


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Donna Moxley commented on Scott Adams's article in Latest Research
      2

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    2. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,277
    • Most Online (within 30 mins)
      7,748

    Michellesmitty
    Newest Member
    Michellesmitty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.