Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid


Aleshia

Recommended Posts

Aleshia Contributor

ok, here is my question, my thyroid tested normal... but I have symptoms of thyroid disorders like hashimotos and hyperparathyroidism does this mean I don't have either of those? or does that not even show up with the thyroid test?? I'm just trying to find out what is wrong with me cause the doctors keep saying i don't have celiac disease and the celiac panel came back negative 2 times (I don't think they did the full panel the second time but I'm not sure)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aleshia Contributor

does anyone know if the blood calcium levels are taken when they do a chemistry panel??

nora-n Rookie

Hi, on the thyroid forums we discuss this all the time, that one can be hypothyroid despite of "normal" blood test results. The reason is that the reference range is way too wide. Often people are already hypothyroid when the TSH is 2. 1 is normal. In Germany, many labs have lowered the top of the reference range down to 2,5 and people in fact report they get treatment for hypo with a TSH of 2,5. I the US, often patients have to wait until TSH goes up to 5.

Also, hyperparathyroidism can mimick hypothyroid symptoms.

Have you read www.parathyroid.com ?

You might get better answers if you post your lab reports and the reference ranges.

I do not know wether the ionized calcium is part of the blood chemistry panel. (the total calcium is about useless, only the ionizzed will do)

nora

loraleena Contributor

Check out all the posts on the thyroid threads and also check out dr.lowe.com, dr.ginahoneyman.com, and stopthethyroid madness.com.

MelliDuff Rookie

I will take a stab at answering your question. :lol:

First of all understand that hashimotos is different than Hypo or hyper thyroid. (hashimotos can exhibit the same symptoms of both) Though some doctors use the term hypothyroid interchangeably with hashimotos it is not the same thing. I suppose they do this because in most cases hashimotos causes your thyroid to EVENTUALLY to go into hypothyroid mode permanently, which in term will eventually (years of you dealing with hypothyroid symptoms or hyper not showing up in test ) require you to take synthriod or some other equivalent of the drug. (this is a genetically synthetically reproduced t4 compound used for treating hypothyroid) let me tell you though it is not the same thing. I think a lot of doctor cause unneeded confusion by using the two terms as one in the same. You can HAVE a hyper or hypo thyroid action with hashimotos. Basically you cycle between the two at any given time - making most people with hashimotos feel almost bi-polar. - Also making your tsh test normal or high or low at any given time- From what I know about this you may have all the symptoms of HYPOTHYROID and be testing as "normal" for your t4 and t3 uptake with a normal TSH lvl.

Hypothyroid - When you have this you are not converting your t3 into t4 - or you simply are not making enough t3 to convert to T4 therefor everything slows down - this is not caused by the destruction of the thyroid itself - This is classic hypothyroid - On a normal thyriod test they test for the lvl of T4 being below/above normal and your total TSH being above normal range (which is 1-4 or 5 depending on the lab) and they also test your total T3 lvls. Hypothyroid is not a destruction of the thyroid but rather a malfunction.

hashimotos- You have antibodies (just like you do within your intestine with celiac)- these antibodies are located in your thyroid - The higher than normal presence of these antibodies when tested for tells your doctor that you have hashimotoes. Hashimotoes is actually the destruction of your thyroid occurring because your body sees your thyroid as a foreign object and sends your antibodies into attack it. After years of having hashimotoes and not know you have it, eventually your thyroid takes so much damage that it becomes inoperable which spills you into having a hypothyroid or hyper but mostly cycling. Hello anxiety and depression. <_<

So with that said you can (and I did) test with in the "normal" TSH and T3 and T4 ranges and completely have

hashimotos - Its not something that a thyroid 1 panel test will show - which is the test every doctor will preform on you. You need to ask your doctor to do an antibodies test along with your TSH and T4 and T3. Thyroid Panel 2 antibodies test. (who knew :rolleyes: )

Warning here - some doctors will not put you on the synthetic hormone even with Hashimotes disease. More and more are learning and understanding that to prevent further damage to your thyroid they must - but some will not give you the medicine you need, they wait until enough of your thyroid is dead for you to score on a blood test an elevated THS lvl. If you have a high antibody test and your doctor does not give you the meds you need GO TO A DIFFERENT DOCTOR.

My antibodies where 850 the normal range is 0-39 :angry:

I had hypo symptoms since I was 16 years old - They only found out about my Hashimotes when I was pregnant with my second child at 31 years old. That is a long time to be very very uncomfortable. I had 5 THS test all within normal ranges up to that point.

Right now I take 125mg of Levoxl everyday.

I hope this helps you. I wish I could tell everyone about this antibodies test to save them from what I had to go through.

Aleshia Contributor
You might get better answers if you post your lab reports and the reference ranges.

ok here is what I have

T3 total 104 reference range 60-181

T4 thyroxine total 8.0 reference range 4.5 -12.5

those were from about a year ago...

I just got my thyroid rechecked but that dr hasn't given me copies of any of my lab reports which irritates me!

anyway... I will get them when I can

nora-n Rookie

You might want to read a bit on the thyroid forum at Open Original Shared Link and there are some good articles there too (that say you can be hypothyroid eve with normal labs)

Your thyroid tests were for the total t4 and total t3, which are not so accurate, especially in women since we have a lot of binding globulins and they get measured in the total tests like you had, and then they show up falsely high. Your free t4 and free t3 may be low. Wewant them in the upper half of the range.

And, you need the antibody tests too. If your doctor does not test for tese things, you can order your own thyroid panel at healthcheckusa.com and the discount code is 12345 and you have to mention you found it at the thyroid.about.com forum. I do not remember where on the website you find the panel. I think it also includes the TPO antibody test in addition to TSH, ft4 and ft3.

nora


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

    4. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    5. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,647
    • Most Online (within 30 mins)
      7,748

    Rosannerosannadanna
    Newest Member
    Rosannerosannadanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.