Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid


Aleshia

Recommended Posts

Aleshia Contributor

ok, here is my question, my thyroid tested normal... but I have symptoms of thyroid disorders like hashimotos and hyperparathyroidism does this mean I don't have either of those? or does that not even show up with the thyroid test?? I'm just trying to find out what is wrong with me cause the doctors keep saying i don't have celiac disease and the celiac panel came back negative 2 times (I don't think they did the full panel the second time but I'm not sure)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aleshia Contributor

does anyone know if the blood calcium levels are taken when they do a chemistry panel??

nora-n Rookie

Hi, on the thyroid forums we discuss this all the time, that one can be hypothyroid despite of "normal" blood test results. The reason is that the reference range is way too wide. Often people are already hypothyroid when the TSH is 2. 1 is normal. In Germany, many labs have lowered the top of the reference range down to 2,5 and people in fact report they get treatment for hypo with a TSH of 2,5. I the US, often patients have to wait until TSH goes up to 5.

Also, hyperparathyroidism can mimick hypothyroid symptoms.

Have you read www.parathyroid.com ?

You might get better answers if you post your lab reports and the reference ranges.

I do not know wether the ionized calcium is part of the blood chemistry panel. (the total calcium is about useless, only the ionizzed will do)

nora

loraleena Contributor

Check out all the posts on the thyroid threads and also check out dr.lowe.com, dr.ginahoneyman.com, and stopthethyroid madness.com.

MelliDuff Rookie

I will take a stab at answering your question. :lol:

First of all understand that hashimotos is different than Hypo or hyper thyroid. (hashimotos can exhibit the same symptoms of both) Though some doctors use the term hypothyroid interchangeably with hashimotos it is not the same thing. I suppose they do this because in most cases hashimotos causes your thyroid to EVENTUALLY to go into hypothyroid mode permanently, which in term will eventually (years of you dealing with hypothyroid symptoms or hyper not showing up in test ) require you to take synthriod or some other equivalent of the drug. (this is a genetically synthetically reproduced t4 compound used for treating hypothyroid) let me tell you though it is not the same thing. I think a lot of doctor cause unneeded confusion by using the two terms as one in the same. You can HAVE a hyper or hypo thyroid action with hashimotos. Basically you cycle between the two at any given time - making most people with hashimotos feel almost bi-polar. - Also making your tsh test normal or high or low at any given time- From what I know about this you may have all the symptoms of HYPOTHYROID and be testing as "normal" for your t4 and t3 uptake with a normal TSH lvl.

Hypothyroid - When you have this you are not converting your t3 into t4 - or you simply are not making enough t3 to convert to T4 therefor everything slows down - this is not caused by the destruction of the thyroid itself - This is classic hypothyroid - On a normal thyriod test they test for the lvl of T4 being below/above normal and your total TSH being above normal range (which is 1-4 or 5 depending on the lab) and they also test your total T3 lvls. Hypothyroid is not a destruction of the thyroid but rather a malfunction.

hashimotos- You have antibodies (just like you do within your intestine with celiac)- these antibodies are located in your thyroid - The higher than normal presence of these antibodies when tested for tells your doctor that you have hashimotoes. Hashimotoes is actually the destruction of your thyroid occurring because your body sees your thyroid as a foreign object and sends your antibodies into attack it. After years of having hashimotoes and not know you have it, eventually your thyroid takes so much damage that it becomes inoperable which spills you into having a hypothyroid or hyper but mostly cycling. Hello anxiety and depression. <_<

So with that said you can (and I did) test with in the "normal" TSH and T3 and T4 ranges and completely have

hashimotos - Its not something that a thyroid 1 panel test will show - which is the test every doctor will preform on you. You need to ask your doctor to do an antibodies test along with your TSH and T4 and T3. Thyroid Panel 2 antibodies test. (who knew :rolleyes: )

Warning here - some doctors will not put you on the synthetic hormone even with Hashimotes disease. More and more are learning and understanding that to prevent further damage to your thyroid they must - but some will not give you the medicine you need, they wait until enough of your thyroid is dead for you to score on a blood test an elevated THS lvl. If you have a high antibody test and your doctor does not give you the meds you need GO TO A DIFFERENT DOCTOR.

My antibodies where 850 the normal range is 0-39 :angry:

I had hypo symptoms since I was 16 years old - They only found out about my Hashimotes when I was pregnant with my second child at 31 years old. That is a long time to be very very uncomfortable. I had 5 THS test all within normal ranges up to that point.

Right now I take 125mg of Levoxl everyday.

I hope this helps you. I wish I could tell everyone about this antibodies test to save them from what I had to go through.

Aleshia Contributor
You might get better answers if you post your lab reports and the reference ranges.

ok here is what I have

T3 total 104 reference range 60-181

T4 thyroxine total 8.0 reference range 4.5 -12.5

those were from about a year ago...

I just got my thyroid rechecked but that dr hasn't given me copies of any of my lab reports which irritates me!

anyway... I will get them when I can

nora-n Rookie

You might want to read a bit on the thyroid forum at Open Original Shared Link and there are some good articles there too (that say you can be hypothyroid eve with normal labs)

Your thyroid tests were for the total t4 and total t3, which are not so accurate, especially in women since we have a lot of binding globulins and they get measured in the total tests like you had, and then they show up falsely high. Your free t4 and free t3 may be low. Wewant them in the upper half of the range.

And, you need the antibody tests too. If your doctor does not test for tese things, you can order your own thyroid panel at healthcheckusa.com and the discount code is 12345 and you have to mention you found it at the thyroid.about.com forum. I do not remember where on the website you find the panel. I think it also includes the TPO antibody test in addition to TSH, ft4 and ft3.

nora


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.