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Newly Diagnosed In Florida!

Tori F.

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Tori F. Newbie
Tori F.
Posted

Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

  • 2 weeks later...
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Janelle Newbie
Janelle
Posted

:D Hi There Tori,

I too am recently diagnosed celiac disease and having a very confusing time. Sounds as though I am much older than you, but I am sure we have the same goals in mind. Getting through this celiac disease life, right?

ShayFL Enthusiast
ShayFL
Posted

Hi Tori!

I am one month in as well. I live in Tampa FL. But I have a niece in St. Augustine that I visit from time to time.

  • 2 weeks later...
katebuggie28 Apprentice
katebuggie28
Posted

Hi there. I am new to this too. (6 days) I used to travel to Baker county often. (glen st. mary / macclenny/sanderson) Are you near 125?I live near Orlando, but I plan on making a trip up that way soon, so hopefully you/we can find a few people to form a support group. I know it is very small town there, but I am sure that there are others in that area that can relate. Good luck

katebuggie28 Apprentice
katebuggie28
Posted
Hi Everyone,

My name is Tori and I have been diagnosed with Celiac for about a month. I have a wonderful husband and two small children. I live in Macclenny, FL and I travel to Jacksonville three to four times a week. I am looking for some local friends to maybe start up a support group. Does one exsist already? I am feeling a little overwhelmed and starting to get frustrated. I am scrared to eat anything unless it says "Gluten Free" on it. I would love to make some new friends dealing with the same thing I am. Thanks! Tori

Open Original Shared Link

they have a group in Jax. Hope this helps.

CarolAnne Apprentice
CarolAnne
Posted

Hello! My name is Carolanne...and I've lived in Florida for over 20 years. I am a Celiac, and I've been Wheat-Free for 20 years, and Gluten-Free for over 3 years. I'm trying to locate people who live Gluten Free here in Florida...and it's not been easy. Most of the links I've found have been disconnected or discontinued...and I'm having a devil of time finding people to connect to. I'd really like to find others who are interested in getting together...and I understand that I am not alone. I've read several posts from people looking for help, Doctors, restaurants, support groups, meetups and such here in Florida.

GlutenFreeInFlorida-subscribe@yahoogroups.com

I've created a Yahoo Group in the hopes of connecting with other people here in the Sunshine State...and to help others connect as well. I'd like to know if anyone is interested in something that will enable you to contact others in your own local area. I'd like to make more information available to people who are living Gluten-Free in Florida.

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      how much gluten do I need to eat before blood tests?

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
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      By Scott Adams · Posted

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    • Scott Adams
      Question

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

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      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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