Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm A Weird Celiac - Gained Weight?


jparsick84

Recommended Posts

Kit.DaMommy Rookie

Oh seeing all these posts made me feel so much better. After my first daughter I lost the weight just fine, but my second daughter was premie and nobody knew why and now my doctor says the celiac is probably why. Anyways after I had her I couldn't lose it like I did before, I actually gained. I am currently 55lbs overweight, I just went gluten free monday, hopefully I can finally get back into my cute pants. lol. Thank you all.

Love to all,

be blessed

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 52
  • Created
  • Last Reply
ATC-BS-MS Apprentice
I'm already a bit of an abnormality, as my Celiac symptoms were always strictly skin-related (DH like you wouldn't believe!). I was VERY lucky to not have the gastro symptoms so common with most Celiacs.

In relation to this, I actually GAINED 50 pounds before they diagnosed me. (We realized there was a problem when I was exercising 6 hours a week and still gaining weight). I think it's because I was always hungry, so I just kept eating, and I must have been getting enough of the good stuff that I was absorbing at least some of the food I was eating. Also, my symptoms were present for only about a year before diagnosis so I don't think my intestines were too badly damaged.

So my question is, is there anyone else out there who actually gained weight? My doctor was really confused by the weight gain being related to Celiac, but since going gluten-free, I haven't gained any more weight. Just knowing there are other "Celiac Weirdos" out there would be really great as I start to try to lose this weight...Thanks. :unsure:

I am also a wierd case of Celiac and casein sensitivity. I gained about 15 pounds FAST! This was very concerning to me since I am small framed and only 5'2". I was getting so frustrated and my doctor tried to put me on a 1000 calorie diet for diabetics. This was not good since I could barely function.

I had the same problem as you with feeling hungry all the time, but no absorption. I had diarrehea constantly but gained the weight.

I encourage you to keep eating healthy and starting/continuing to exercise...the weight will come off after your body stays in a steady state. I have successfully lost about 10 pounds of the weight and I am sure you will be very successful too!!

If you ever want tips or suggestions about exercising, I have lots of websites and workouts.

Malficient Newbie

I too gained weight after going gluten free (I've always been a bit overweight). I tracked everything I ate for a full month, and showed it to my dr. She realized I was eating too many carbs and not enough lean protein (I'm also mostly vegetarian). I was eating risotto at least a couple days a week, and brown rice pasta dishes, and thai dishes with rice or cellophane noodles (and my triglyercides were way too high). So I cut back, focused more on veggie dishes and leaner protein like tofu and fish, and have gone down down a pants size. So that might be one angle to look at. Just a suggestion!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,624
    • Most Online (within 30 mins)
      7,748

    Keylargo
    Newest Member
    Keylargo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.