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Enterolab

OBXMom

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OBXMom Explorer
OBXMom
Posted

Can anyone tell me if it is worse to have both elevated Fecal Antigliadin & Fecal Antitissue Transglutaminase, rather than just the first? We got our Enterolab results today, and I'm comparing my daughter and myself.

Fecal Antigliadin IgA - Hers - 182, Mine - 16

Fecal Antitissue Transglutaminase IgA - Hers 103, mine -normal range (8)

I know when you are positive, you are positive, but don't her higher numbers, plus the double positive, indicate her system is having more problems right now?

Also, I am embarassed to admit I need help with the genetic info. I have read a number of posts, but I can't figure out which part of the numbers you turn into the DQ1 & 2 and so on.

Hers: HLA - DQB1, Allele 1 0201

HLA-DQB1, Allele 2, 202

HLA-DQ 2,2 (Subtype 2,2)

Mine HLA-DQB1, Allele 1, 202

HLA-DQB1, Allele 2, 0603

HLA-DQ 2,1 (Subtype 2,6)

Thank you for any help. All evening I've been trying to figure this out, and I feel like the little engine that could (I think I can, I think I can . . .)

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holiday16 Enthusiast
holiday16
Posted

Did you happen to figure out the gene part yet? My son had the same DQ2 (0202) and it took me a while to figure out how it was different from the DQ2 (0201). Wikipedia helped alot, but wow is it confusing!!!

fedora Enthusiast
fedora
Posted

hi,

Your daughter has the celiac gene DQ2. This is also known as DQ2.5. It is HLA - DQB1, Allele 1 0201

It can cause full blown celiac. She must have got this from her dad.

The other gene is DQ2.2. It is HLA-DQB1, Allele 2, 202. I has half of the celiac gene DQ2. It is definately a gluten intolerant gene and in some instances it can cause full blown celiac. She got this gene from you.

You have the same DQ2.2 gene. so you have half the celiac gene which sometimes(rarely) manifests as full blown celiac.

DQ6 your other gene is seen in gluten intolerant patients.

The difference in the antibody levels is your daughter has antibodies against her own body tissue(the ttg antibodies). This is worse. Yours may have gotten higher over time.

You both are reacting to gluten. Did you get the malabsorption test done too?

Hope she is feeling better.

neesee Apprentice
neesee
Posted

Here's a little extra info. Open Original Shared Link

OBXMom Explorer
OBXMom
Posted
  • Author

Thank you all for your help. I hadn't figured it out yet, and finally called Enterolab today, and was promised a callback in 48 hours, which didn't thrill me. But now I really don't need them, thanks to you. But it is just so complicated, isn't it?

Fedora, we did do the malabsorption test, and we were both o.k. there. However, my daughter was also positive for anti-casein (cow's mlk) at 108 units, with <10 being normal. I didn't realize that she had antibodies against her own tissue, thank you for explaining that, although I have to admit it sounds scary. I'm wondering if she might have a leaky gut.

Thanks again, now I can go back and read all the stuff with the genes abbreviated and know which we are.

fedora Enthusiast
fedora
Posted

OBXMom

Thank is great that your malabsorption was fine. Mine was too. I was gluten and casein intolerant. I also had ttg antibodies against my own tissue. This is how the auto immune damage is done. Has their dad been checked? They had to have gotten the celiac gene from him.

I am awaiting my DD enterolab results. I am officially impatient today. It has been over 2 weeks.

nora-n Rookie
nora-n
Posted

Here is the wiki:

Open Original Shared Link

enterolab reporting which kind of DQ2 beta chain they found, is a bit new, i did not read postings of reports like taht last year.

The latest news are also that some other labs test for the alpha chains, to find the half genes, which also predispose for celiac. Enterolab does not test for them, but Kimball genetics does, but they do not test for anything but DQ2 or 8, so some peole might end up to have to order two sets of genetic tests, one from enteroplab and one from Kimball genetics...

Open Original Shared Link

Open Original Shared Link

nora

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OBXMom Explorer
OBXMom
Posted
  • Author
OBXMom

Thank is great that your malabsorption was fine. Mine was too. I was gluten and casein intolerant. I also had ttg antibodies against my own tissue. This is how the auto immune damage is done. Has their dad been checked? They had to have gotten the celiac gene from him.

I am awaiting my DD enterolab results. I am officially impatient today. It has been over 2 weeks.

Hi Fedora,

My husband says he will just do a gluten free trial with us, but I wonder if he would be more convinced if we tested him, too. His only symptoms are bad allergies and skin rashes (not DH.)

I have to tell you, I checked Enterolab constantly to make sure the results weren't posted while we waited, and the day that I thought was 3 weeks I called. They said they were exactly at 3 weeks (starting count the day after they received the kit) and that it would come at the end of the next day. They meant it - I got them at about 5:00 pm. Maybe you will be luckier than we were, but if I were you I wouldn't expect it early. . .

OBXMom Explorer
OBXMom
Posted
  • Author

Thank you, Nora, I will pore over these. I wish I could absorb all of this more quickly. I really appreciate the help.

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      how much gluten do I need to eat before blood tests?

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