Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly Celiac?

hjello

Recommended Posts

hjello Newbie
hjello
Posted

Hello,

I stumbled across some information on Celiac looking up some symptoms I was having and was shocked to see that some other problems I have had this passed year could be attributed to Celiac.

First about 10 years ago I was diagnosed with IBS and have always had very large BM's, frequent abdominal pain and occasionally diaharea. I have lived with it.

However, the last year some odd things happened which I thought we all unrelated. I was pregnant and my son was a very low birth weight, 4lbs, 12oz. I have had kidney stones 2 times and my knee cap dislocated. I have read that kidney problems and joint issues could be related to Celiac.

I also have dealt with back pain and stiffness for many years and jaw clicking.

When I read about Celiac the 2 main symptoms I don't have are BM's that float and weight loss. Infact, I am a litte overweight, carrying about 40 lbs extra. Are these 2 symptoms the most common in people with Celiac?

I am going to call my doctor and ask about testing, but I was hoping to hear your thoughts on my symptoms

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi, and welcome to these boards.

At least 40% of people with celiac disease are overweight, it can go either way. Malnutrition can cause people to either lose or gain.

There are over 200 possible symptoms of celiac disease. Obviously, not everybody has all of them. In fact, it seems that few people present with the same symptoms. The minority of people with celiac disease have the 'typical' presentation of diarrhea and weight loss.

IBS is a collection of symptoms (hence a 'syndrome') with have a cause. An official 'diagnosis' of IBS is meaningless, as the cause of the symptoms has not been found.

The majority of people here had a diagnosis of IBS before they were finally correctly diagnosed with celiac disease.

Your son could have gotten insufficient nutrition because your bowels are damaged, and you don't absorb enough nutrients for yourself, never mind for a growing baby as well. You are fortunate that your son is alive, it is very common to miscarry babies when having undiagnosed celiac disease (I had eight miscarriages) or to have a stillborn baby.

I would advise you to get tested for celiac disease immediately. Don't stop eating gluten before testing, as the tests won't be accurate otherwise.

gfpaperdoll Rookie
gfpaperdoll
Posted

Just wanted to add a welcome to the group to ursa's great post.

I just love these people that find out their problem on the internet - very savvy of you...

Once you get tested & go Gluten free you will not believe how wonderful you are going to feel. I am 61 & instead of getting older, each year I feel younger!!! :) & very blessed...

hang with us through out your testing etc - you might get a doc that knows nothing (being polite here & not using the word I would like to)

I think there are 5 blood tests that need to be run & check to see if you can get it sent to a good lab... You will need to print out the list of the blood tests & take them to the doctor with you & STRESS that you want them ALL run...

we call the IBS diagnosis = I Be Stumped

:lol::lol::lol::lol:

& you have to go to med school for years to be qualified to diagnose it !!!!! But since the doc is wearing a white coat, everybody & their relatives believe it :(

jhow32000 Rookie
jhow32000
Posted

No, no, no......you have to read, and read, and read about this stuff to help yourself. Celiac disease manifests in non-specific ways. No two people have the same symptoms and alot of overweight people with supposedly normal BMs have celiac disease.

The damage that is done occurs in the small intestine, the small intestine absorbs various nutrients in its different levels. However, the damage that is done to the small intestine by autoantibodies is patchy and does not occur the same way in any of us....this is partly why people with celiac disease have differing issues. For instance, I have had severe bone and joint pain, wasting, terrible acne, and deep depression from my celiac disease while my mother had repeated miscarriages, endometriosis, stomach pain, bloating, and weight gain. None of us had particularly bad GI symptoms and we all had very different problems. You could very well have it but be warned that the only way to be sure is to go Gluten Free strictly for about 6-8 weeks. I have had false negatives as have others in my family who are now officially diagnosed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.