Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Confusions


canuckchick

Recommended Posts

canuckchick Rookie

Hi there,

After my sister was diagnosed with celiac, I cut out gluten for 10 days as part of a cleanse and felt much better. So I went back to wheat for 5 days, and my doctor ordered blood tests. She would only test for ttG and IgA as she said the rest were outdated or something (which isn't what the general consensus on this forum seems to be).

My ttg results were low (only 2) but my total IgA results were also low (0.88, and the sheet said that normal range was 0.9 - 5.5 g/L). My ferratin was also low (10), though my hemoglobin is ok. Other things (B12, folate, thyroid) are fine.

So I understand that low IgA can lead to a false negative on ttg, but based on the fact that my IgA is basically only at the low end of normal, rather than non-existent, I'm not sure if that's really a factor.

Sooooo.... I don't know. I have been gluten-free for about a month now, and while I wouldn't say that all my symptoms have cleared up (wouldn't that have been nice, a simple all-in-one solution like that), I do feel better overall. Even better, it has been a powerful kick in the pants to get more conscious about what goes into my body, and it has led me to better nutrition than I have probably ever experienced.

I think my approach is just to stick with the gluten-free for a while longer, and then challenge to see how I feel.

Any other thoughts from people? Should I go back to gluten and then request the full panel? Is it possible that if I did have elevated ttg levels, those 10 days off wheat could have dropped them that low, and that 5 days back on wasn't enough to bring them back up? (seems unlikely to me)

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I would think that your approach of going completely gluten-free, then doing a challenge, is the best one. Tests give results that, when compared to the average population, are probably correct. A gluten challenge after a month or so gluten-free will test your body specifically. It's really the best way.

Crimson Rookie
My ttg results were low (only 2) but my total IgA results were also low (0.88, and the sheet said that normal range was 0.9 - 5.5 g/L). My ferratin was also low (10), though my hemoglobin is ok. Other things (B12, folate, thyroid) are fine.

So I understand that low IgA can lead to a false negative on ttg, but based on the fact that my IgA is basically only at the low end of normal, rather than non-existent, I'm not sure if that's really a factor.

Ello,

It looks to me as if you may be one of the IgA deficients. If the normal range is .9 and you're .88....I would do a bit of research on IgA defiencies. It would be quite important to know because if you are, and would ever need a blood transfusion or organ transplant, that would be taken into consideration because your body may react badly to blood that is NOT IgA deficient. You could also be one of the rare people that forms an antibody against IgA and in that case, you'd be attacking blood that's given to you.

I'd give you links but they're on the other computer.

I def. recomend doing your research though.

Cheers!

nora-n Rookie

You can upload all your links (favourites) onto google bookmarks. i have google toolbar installed both in IE and firefox and you put in the button for google bookmarks there. That way you have access to your bookmarks from different places.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.