Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treating Dh While Breastfeeding

jhow32000

By jhow32000
in Dermatitis Herpetiformis

Recommended Posts

jhow32000 Rookie
jhow32000
Posted

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ItchyMeredith Contributor
ItchyMeredith
Posted

With both of my children I broke out with DH terribly at 2 months postpartum. I breastfed them both. I still breastfeed my 18 month old. My dermatologist prescribed some topical steroid that started with an F. I'm sorry but I don't remember the name of it. Sadly, it didn't help me at all. How long has she been gluten free??? I was MUCH better within a month of going gluten free. I was DH free within 5 months.

I'm sorry I couldn't be more help.

Good Luck!

KimmyJ Rookie
KimmyJ
Posted

Interesting to hear that other women experienced this. My DH actually cleared up during my pregnancy, but hit full force after I delivered my baby. (It wasn't until after my baby was born that I was diagnosed.) Is she gluten-free? My DH cleared up within a few weeks of going gluten-free. I didn't want to take anything that would hurt Layla, especially not Dapsone.

krisb Contributor
krisb
Posted
I didn't want to take anything that would hurt Layla, especially not Dapsone.

I have the same problem. I'm breastfeeding my 14 month old and I have used the topical steroids to help me. I never questioned the Dr.'s if it was ok. What kind of side effects does it have on the baby?

ravenwoodglass Mentor
ravenwoodglass
Posted

I would be looking for the source of the contamination, something has had to trigger the DH. Since it cropped up after the baby was born and home perhaps something that she is using on the baby is not safe. Lotion, powder, baby wipes anything new that wasn't used in the home before. Is she on a new supplement? Or could her trigger have been something that they used or gave her to eat in the hospital? The antibodies remain in the skin sometimes for up to 2 years after diagnosis and starting the gluten-free life. Even a tiny amount will cause a flareup until they are absorbed. Something is triggering the flare up and until the source is ferreted out she will continue to suffer. I also found topicals to be very ineffective, they usually gave me oral steroids when things got too bad but I don't think that is safe while breastfeeding.

glutenfreedoc Newbie
glutenfreedoc
Posted

Hi,

I agree, with other replies. There must be contamination, even maybe from meds/IV used during childbirth process. I would hope she is still on a good multi-vitamin. I would suggest she seek someone nearby to consult her on nutrition and supplementation, as she likely needs help healing her gut right now. She needs to heal form the inside-out. If she can find some gluten-free oat, she may soak in a warm bath of oatmeal. She should follow the warm bath with a cold rinse, it will help flush out the inflammation on the skin. She may also try chilled aloe to help. It will soothe the itching and help heal. Vitamin C will also help the decrease the allergic response. I have been gluten-free since 2003, I know it is hard. I am also still breast feeding my 9 month old son. It takes a toll on my nutrient content. So, it is really important to be very careful with the gluten right now.

My sister is gluten-free and breastfeeding. She has been broken out terribly since giving birth and would like to use something to relieve her pain. What is safe to use while BFing? Everything topical I have heard of and looked up are not safe or have not been studied.
ItchyMeredith Contributor
ItchyMeredith
Posted

I have a weirdo theory-

I ate gluten through both of my pregnancies. I had no DH. When I was 2 months postpartum with both boys I was itching and blistering like crazy. Because your immune system is repressed during pregnancy- what if the crazy DH reactions postpartum is due to whatever cross contamination you may have gotten during your pregnancy. Maybe your body is somehow saving it up and waiting till it can have a DH response. DH blisters can come from IgA deposits from 2 years ago- maybe they are the blistering deposits from 9 months of slight cross contamination here and there that didn't become inflamed and blistered due to your suppressed immune system. Just a thought.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.