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Krystens mummy

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Krystens mummy Enthusiast

Hi all, Just want to know if I am over reacting. These are my symptoms.

around every two weeks I get:

Bloating

Nausea

Sometimes I vomit, not all the time

My stomach is sore to the touch like someone has punched it

in a couple of days my bowel will be sore too

It hurts when I eat I get stomach cramps almost instantly as soon as I eat and then I feel nauseous until that food is digested. Last time it took all night and half a day.

I feel better when I have liquid foods.

when I start to feel better thats when I start to feel tired this lasts a couple of days.

I have lost a little weight about two pounds a month for four months but this might be more cos Im not eating for a couple of days every two weeks

My poops seem normal

Sometimes I get flu like symptoms, sometimes not

Then the symptoms slowly get better and after 2-5 days I feel almost 100 percent again for a week and a half and then It starts again.

The other thing is is that I have a chronic sore throat that is always there in the morning when I wake up. It is down the bottom of my throat sometimes on the left sometimes the right which seems to get better by the middle of the day only to come back the next morning. I keep expecting to get a cold or something but it never comes. Could all of this be linked to celiac?

I have had blood taken early on when I first got symptoms which was negative. I have a child 16 months that is gluten sensitive and have celiac on my dads side with most of the family showing symptoms to varing degrees. I also had some interesting symptoms as a child. Thanks


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LuvMoosic4life Collaborator

It defintily sounds like it to me. I havent been diagnosed yet either, but I was going through a cycle like that for a long time, for years.. it was like Id get better and then it would start all over again and I would purposly avoid eating sometimes b/c I didnt know what to do... My throat has always been slightly soar, everytime I go to the dentist he asks me if I have a cold b/c my throat is red and tonsels are slightly larger than normal, I"ve been that way my whole life. The soarness you are having farther down sounds like the result of acid relux....even if you dont feel like you have it, you may be having it in your sleep and not knowing it....but vomiting doesnt help either, I've also been there....I would feel so naicous I'd have to make myself throw up, otherwise it would just sit in my stomach and bounce between there and half way up my chest----not very comforting....

curlyfries Contributor
The soarness you are having farther down sounds like the result of acid relux....even if you dont feel like you have it, you may be having it in your sleep and not knowing it....

I agree. If that's the case, perhaps you should see an ENT....especially if the gluten free diet doesn't make it better. Untreated reflux can lead to bad things :(

Lisa

Krystens mummy Enthusiast

Thanks for your replies guys, I also get lower back pain where I thought my kidneys were but now I'm assuming its called flank pain sometimes left or right sometimes both, does anyone else get this?. I had my tonsils out about eight years ago cos I was complaining of sore throat and flu like symptoms too often and they took them out. Maybe there was a different cause?

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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