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Krystens mummy

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Krystens mummy Enthusiast

Hi all, Just want to know if I am over reacting. These are my symptoms.

around every two weeks I get:

Bloating

Nausea

Sometimes I vomit, not all the time

My stomach is sore to the touch like someone has punched it

in a couple of days my bowel will be sore too

It hurts when I eat I get stomach cramps almost instantly as soon as I eat and then I feel nauseous until that food is digested. Last time it took all night and half a day.

I feel better when I have liquid foods.

when I start to feel better thats when I start to feel tired this lasts a couple of days.

I have lost a little weight about two pounds a month for four months but this might be more cos Im not eating for a couple of days every two weeks

My poops seem normal

Sometimes I get flu like symptoms, sometimes not

Then the symptoms slowly get better and after 2-5 days I feel almost 100 percent again for a week and a half and then It starts again.

The other thing is is that I have a chronic sore throat that is always there in the morning when I wake up. It is down the bottom of my throat sometimes on the left sometimes the right which seems to get better by the middle of the day only to come back the next morning. I keep expecting to get a cold or something but it never comes. Could all of this be linked to celiac?

I have had blood taken early on when I first got symptoms which was negative. I have a child 16 months that is gluten sensitive and have celiac on my dads side with most of the family showing symptoms to varing degrees. I also had some interesting symptoms as a child. Thanks


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LuvMoosic4life Collaborator

It defintily sounds like it to me. I havent been diagnosed yet either, but I was going through a cycle like that for a long time, for years.. it was like Id get better and then it would start all over again and I would purposly avoid eating sometimes b/c I didnt know what to do... My throat has always been slightly soar, everytime I go to the dentist he asks me if I have a cold b/c my throat is red and tonsels are slightly larger than normal, I"ve been that way my whole life. The soarness you are having farther down sounds like the result of acid relux....even if you dont feel like you have it, you may be having it in your sleep and not knowing it....but vomiting doesnt help either, I've also been there....I would feel so naicous I'd have to make myself throw up, otherwise it would just sit in my stomach and bounce between there and half way up my chest----not very comforting....

curlyfries Contributor
The soarness you are having farther down sounds like the result of acid relux....even if you dont feel like you have it, you may be having it in your sleep and not knowing it....

I agree. If that's the case, perhaps you should see an ENT....especially if the gluten free diet doesn't make it better. Untreated reflux can lead to bad things :(

Lisa

Krystens mummy Enthusiast

Thanks for your replies guys, I also get lower back pain where I thought my kidneys were but now I'm assuming its called flank pain sometimes left or right sometimes both, does anyone else get this?. I had my tonsils out about eight years ago cos I was complaining of sore throat and flu like symptoms too often and they took them out. Maybe there was a different cause?

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    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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