Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

American Celiac Disease Alliance


Lisa

Recommended Posts

Lisa Mentor

As many of you may know, May is Celiac Awareness Month. I am forwarding on a request from the American Celiac Disease Alliance, to encourage support for the Celiac Awareness Bill. DON'T THINK THAT YOUR VOICE CAN'T MAKE A DIFFERENCE.!

Thanks, Lisa

................................................

Add Your Voice -- Call For Celiac Awareness Bill Congresswoman Lowey has asked for our help in building MORE support for the National Celiac Disease Awareness bill, HConRes 70. With just a couple weeks left in May, your Representative needs to hear from YOU that this is important.

To call lawmakers in Washington, DC dial 1+(800) 985-8762 -- Ask for legislator's office. Not sure who is it? Click here, then enter your zip code.

Here are a few points to make when you call:

* You (or family member) have celiac disease. It is estimated that 1 in 133 Americans have the disease, that's about 3 million people.

* I want the Representative __________ to cosponsor H Con Res 70, the National Celiac Disease Awareness bill.

* The National Commission on Digestive Diseases recent report said that physicians in the U.S. don't understand that celiac disease is the most common genetic disorder in the world and aren't trained to look for it in patients.

* With better education, physicians and other health professionals can identify the celiac disease before anemia, osteoporosis, infertility or serious conditions take hold. People with celiac disease are also at greater risk for other autoimmune diseases like Type 1 diabetes.

* The American College of Gastroenterology, American Gastroenterology Association, American Dietetic Association, American Osteopathic Association, pharmaceutical companies, food manufacturers, and patient support groups ALL have endorsed the bill.

* Will Representative __________cosponsor, too?

[ Be sure to thank the staffer for their time.]


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,065
    • Most Online (within 30 mins)
      7,748

    Hoops
    Newest Member
    Hoops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.