Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help?!?!


Zook

Recommended Posts

Zook Newbie

Hi everyone. I haven't posted here in about 7 months, since I discovered that hidden MSG was the main source of my problems. I forget who it was here that mentioned it, but I couldn't be more thankful.

So here's the deal. Currently, MSG holds a status of GRAS (generally recognized as safe) by the FDA. This puts it in the category of salt and pepper. Right now we have the opportunity to be heard by the FDA, but unless they receive enough comments on the petition, they will not even consider it.

There is a citizen's petition at: Open Original Shared Link, which I urge anyone to at least read. Click on the document by John Edward Erb - Citizen Petition. Then you can review the pdf document and (I hope) click on the comment balloon and enter your comments to support that the GRAS status be removed from MSG.

I really do hope you'll help. Getting the word out to your friends and family would be helpful too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Even without a noticeable reaction MSG can be damaging to our health. We are also getting PLENTY of it in most processed foods. Most of the MSG we consume is not labeled in the ingredients since they have found ways to "hide" it by processing it into other "safer sounding" ingredients.

Its another neurotoxin that we are constantly exposed to unnecessarily. Its cheap, it allows food manufacturers to use lesser quality ingedients in their product, it enhances the flavor of the food and it affects the part of our brain which tells us when we're full. We eat more and in the end the only poeple benefiting are the ones who are making a profit by adding this neurotoxin into our food.

Zook Newbie

Thanks for adding that Rachel. :P It's a refreshing response from the ones I normally get (i.e., MSG is a great flavor enhancer and it's totally safe...).

ps. I think it was you who lead me to the MSG connection. Thanks!

Zook Newbie

I have a question about dairy and Celiacs. Can those with Celiacs tolerate it? If not, has anyone tried raw milk? It's not the same product as milk destined to be pasteurized (picture cows standing around in a small cramped area full of feces and not cared for vs. cows on lush green pastures that are treated as part of the family). It's even safer than pasteurized milk, no thanks to the biased studies and bad rap from industrialized dairy. Anyway, I thought I throw that out there since many people who can't tolerate dairy can tolerate raw dairy (though it should be called real dairy).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...