Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Taking Pamine (methscopolamine)?

jmengert

Recommended Posts

jmengert Enthusiast
jmengert
Posted

I have both IBS and celiac disease, and my gastro prescribed Pamine (the generic is Methscopolamine) to help with my IBS. I'm currently taking hyoscyamine, and I seriously doubt it's still helping me (I've been on it for 5 years). I hate trying new medicines because almost all of them make me nauseous, so I'm curious if anyone is on or was on Pamine?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dizzy Rookie
dizzy
Posted

Hi, I havent tried that one, but have tried the hycomine (spelling?) I think thats the kind that you can dissolve under the tongue, but that didnt work well for me. I had best luck with dicyclomine, I have been taking it now for 16 years, but for the past 5 years I dont need to take it everyday, only when symptoms act up real bad. maybe you could ask your doctor about it? oh, and it was for my IBS...

jmengert Enthusiast
jmengert
Posted
  • Author

Thanks--I'd never heard of dicyclomine before; I have an appointment next week, so I'll have to ask about that next week.

Oh, the joys of having both Celiac AND IBS

mela14 Enthusiast
mela14
Posted

Is hyoscomine ..Levsin?

If so, my experience with levsin and Levbid have been that they never really helped the IBS and in addition to making me very dry it gave me terrible migraines.

I started taking Zelnorm for the IBS with bloating and initially it helped but lately I don't feel it working that well.

I've never heard of the other drug.

jmengert Enthusiast
jmengert
Posted
  • Author

Yeah, hyoscyamine is generic for Levbid, Levsin, some others, too, I think. When I was first put on it, years ago, it helped tremendously. Now, I feel like it doesn't work at all. Maybe I grew immune to it?....

My doctor tried Zelnorm one time, but I have diarrhea prevelant IBS, and it's supposed to make that A LOT worse, so I never took it (and was upset my doctor didn't realize that huge side effect!)

Rikki Tikki Explorer
Rikki Tikki
Posted

How do they diagnose both IBS and celiac? I just don't see how they can say both. I was diagnosed with IBS for many years before someone thought to check for celiac.

I am just curious.

Thanks

jmengert Enthusiast
jmengert
Posted
  • Author

Sally, I think that's a great question, and one I really would like the answer to. As far as my personal experience, I was diagnosed with IBS five years ago but was never tested for Celiac (I had never even heard of celiac disease five years ago). They assumed it was IBS because I immediately felt almost 100% better after they put me on an anti-spasmodic (Levbid); thus, that's how they "diagnosed" me. I felt really good for five years (other than the occasional flare-up, which is common with IBS).

But, I now have been confirmed with celiac disease through blood tests about 2 1/2 months ago--I'm still taking the hyoscyamine because I'm assuming I still have IBS, but who knows? I've heard that celiac disease can lead to IBS, so I may have had undiagnosed celiac disease that gave me IBS. At any rate, I'm seeing my gastro on Tuesday, so I plan to ask him all of these questions; I'll let you know if I find out anything useful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jmengert Enthusiast
jmengert
Posted
  • Author

Sally, as requested here's what I found out from my gastroenterologist about IBS and Celiac. She feels that I still have IBS, even with my celiac disease diagnosis. She said it's quite common for people to have both. Thus, she wants me to keep on my IBS meds (either Levbid, which isn't really doing anything anymore, or Pamine, which I've been nervous to start because I hate taking medicines, especially new ones). So, if you still have symptoms after being gluten-free for awhile, it may be IBS, too, at least according to my doctor. Of course, my experience with IBS is that it comes in spurts and it's certainly easier to control than celiac disease.

I hope this info helps. Please let me know if you have any questions/comments. I hope you feel better soon--it sounds like you've had a lot to deal with in celiac disease, so feel free to drop me a line any time.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.